Forum Replies Created
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- April 28, 2014 at 11:28 pm
I have been doing interferon since July 2013….I must say it's been rough..the first month was really hard. I didn't have a pic put in…my dr choose for me to have a IV in my arm on weekdays. Anyway the first month was intense and exhausting. I slept what seemed like all the time. I'm not gonna sugar coat it and say its easy cause it's not and interferon is so controversial and many people say it doesn't prevent it from returning. Make sure u take good care of urself and drink lots of fluids. I now give myself injections 3x a week….and they have gotten much easier to handle over the last few months. I'm on my last leg of this treatment and I can't wait for it to b over but whatever u do don't stop living ur life….I'm not saying u will b able to do everything u do now but try! Don't let melanoma nor this treatment keep u from living. I am also a stage3a. All meds have different side effects on dif people….I wish u the best with interferon.
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- April 28, 2014 at 11:28 pm
I have been doing interferon since July 2013….I must say it's been rough..the first month was really hard. I didn't have a pic put in…my dr choose for me to have a IV in my arm on weekdays. Anyway the first month was intense and exhausting. I slept what seemed like all the time. I'm not gonna sugar coat it and say its easy cause it's not and interferon is so controversial and many people say it doesn't prevent it from returning. Make sure u take good care of urself and drink lots of fluids. I now give myself injections 3x a week….and they have gotten much easier to handle over the last few months. I'm on my last leg of this treatment and I can't wait for it to b over but whatever u do don't stop living ur life….I'm not saying u will b able to do everything u do now but try! Don't let melanoma nor this treatment keep u from living. I am also a stage3a. All meds have different side effects on dif people….I wish u the best with interferon.
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- April 28, 2014 at 11:28 pm
I have been doing interferon since July 2013….I must say it's been rough..the first month was really hard. I didn't have a pic put in…my dr choose for me to have a IV in my arm on weekdays. Anyway the first month was intense and exhausting. I slept what seemed like all the time. I'm not gonna sugar coat it and say its easy cause it's not and interferon is so controversial and many people say it doesn't prevent it from returning. Make sure u take good care of urself and drink lots of fluids. I now give myself injections 3x a week….and they have gotten much easier to handle over the last few months. I'm on my last leg of this treatment and I can't wait for it to b over but whatever u do don't stop living ur life….I'm not saying u will b able to do everything u do now but try! Don't let melanoma nor this treatment keep u from living. I am also a stage3a. All meds have different side effects on dif people….I wish u the best with interferon.
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- May 30, 2013 at 11:31 pm
i had the same problem ur having. i had a mole on upper forearm removed along with 1 positive node. i felt just like u when this all began for me.i am now in a trial just like u r where i was chosen to "watch and wait". i saw 4 different oncologist who all said the same thing. i researched stage 3a melanoma and there are not many treatment for it. i have learned that if u r doing monthly body check and seeing ur clinical trial doctors u will know if it rears its head. the drs r here to help us. i know i c my pcp, oncolist, clinical trial drs, and a dermatologist faithfully…..yeah i know it may seem extreme but like u im scared! with my body checks i have my best friend help me so where i cant c she can. in the end u will need to make ur own chose….but just remember that being in a clinical trial u will b watch alot more then if u were not in one! good luck and i wish the best for u!
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- May 30, 2013 at 11:31 pm
i had the same problem ur having. i had a mole on upper forearm removed along with 1 positive node. i felt just like u when this all began for me.i am now in a trial just like u r where i was chosen to "watch and wait". i saw 4 different oncologist who all said the same thing. i researched stage 3a melanoma and there are not many treatment for it. i have learned that if u r doing monthly body check and seeing ur clinical trial doctors u will know if it rears its head. the drs r here to help us. i know i c my pcp, oncolist, clinical trial drs, and a dermatologist faithfully…..yeah i know it may seem extreme but like u im scared! with my body checks i have my best friend help me so where i cant c she can. in the end u will need to make ur own chose….but just remember that being in a clinical trial u will b watch alot more then if u were not in one! good luck and i wish the best for u!
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- May 30, 2013 at 11:31 pm
i had the same problem ur having. i had a mole on upper forearm removed along with 1 positive node. i felt just like u when this all began for me.i am now in a trial just like u r where i was chosen to "watch and wait". i saw 4 different oncologist who all said the same thing. i researched stage 3a melanoma and there are not many treatment for it. i have learned that if u r doing monthly body check and seeing ur clinical trial doctors u will know if it rears its head. the drs r here to help us. i know i c my pcp, oncolist, clinical trial drs, and a dermatologist faithfully…..yeah i know it may seem extreme but like u im scared! with my body checks i have my best friend help me so where i cant c she can. in the end u will need to make ur own chose….but just remember that being in a clinical trial u will b watch alot more then if u were not in one! good luck and i wish the best for u!
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- April 7, 2013 at 8:27 pm
I am a stage 3a diagnosed Jan of this year. I had on lymph node positive. The mole and lymph node have been removed and i too am doing the watch and wait. When i first started seeing the oncologists my frustration level was through the roof. I have had not 2 but 3 opinions all saying to watch nd wait. I always thought doing that meant i was doing nothing. Over the last several weeks i have come to realize this is the best for me for many reason. The main reason i chose this is to not burn a bridge i may need later.Like everyone has said we will never b free from this monster but we can become more knowledgeable about it. My mind set is I will never b completely rid of cancer but for now things r ok. So when im asked i usually tell them im watching and wait but for now theres no real signs of it.
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- April 7, 2013 at 8:27 pm
I am a stage 3a diagnosed Jan of this year. I had on lymph node positive. The mole and lymph node have been removed and i too am doing the watch and wait. When i first started seeing the oncologists my frustration level was through the roof. I have had not 2 but 3 opinions all saying to watch nd wait. I always thought doing that meant i was doing nothing. Over the last several weeks i have come to realize this is the best for me for many reason. The main reason i chose this is to not burn a bridge i may need later.Like everyone has said we will never b free from this monster but we can become more knowledgeable about it. My mind set is I will never b completely rid of cancer but for now things r ok. So when im asked i usually tell them im watching and wait but for now theres no real signs of it.
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- April 7, 2013 at 8:27 pm
I am a stage 3a diagnosed Jan of this year. I had on lymph node positive. The mole and lymph node have been removed and i too am doing the watch and wait. When i first started seeing the oncologists my frustration level was through the roof. I have had not 2 but 3 opinions all saying to watch nd wait. I always thought doing that meant i was doing nothing. Over the last several weeks i have come to realize this is the best for me for many reason. The main reason i chose this is to not burn a bridge i may need later.Like everyone has said we will never b free from this monster but we can become more knowledgeable about it. My mind set is I will never b completely rid of cancer but for now things r ok. So when im asked i usually tell them im watching and wait but for now theres no real signs of it.
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- July 7, 2013 at 9:24 pm
weel i am starting interferon on the 22nd. i have asked my dr about alot of clinical trials and thes they r using…he more or less said hes not involved in clinical trials and interferon is the only treatment he is able to give me. i live in pennsylvania and what ive read on clinical trial there doesnt seem to b one within traveling distance for me. looks like i have no other choices. praying that it keeps this monster away but am optimistic about results. if anyone happens to know of a melanoma clinic within pa plz let me know and again thanks for all ur input.
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- July 7, 2013 at 9:24 pm
weel i am starting interferon on the 22nd. i have asked my dr about alot of clinical trials and thes they r using…he more or less said hes not involved in clinical trials and interferon is the only treatment he is able to give me. i live in pennsylvania and what ive read on clinical trial there doesnt seem to b one within traveling distance for me. looks like i have no other choices. praying that it keeps this monster away but am optimistic about results. if anyone happens to know of a melanoma clinic within pa plz let me know and again thanks for all ur input.
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- July 7, 2013 at 9:24 pm
weel i am starting interferon on the 22nd. i have asked my dr about alot of clinical trials and thes they r using…he more or less said hes not involved in clinical trials and interferon is the only treatment he is able to give me. i live in pennsylvania and what ive read on clinical trial there doesnt seem to b one within traveling distance for me. looks like i have no other choices. praying that it keeps this monster away but am optimistic about results. if anyone happens to know of a melanoma clinic within pa plz let me know and again thanks for all ur input.
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- July 4, 2013 at 11:18 pm
thank u Linny for ur imput. i know interferon has lots of side affect and thats what scares me. i think it has been to long after initial removal for me to enter another clinical trial but im gonna look into it. i have had 4 dif opinions….2 said treatment and 2 say clinical trial. im going to do some more research to check all the options. upsetting not more options for this monster!
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- July 4, 2013 at 11:18 pm
thank u Linny for ur imput. i know interferon has lots of side affect and thats what scares me. i think it has been to long after initial removal for me to enter another clinical trial but im gonna look into it. i have had 4 dif opinions….2 said treatment and 2 say clinical trial. im going to do some more research to check all the options. upsetting not more options for this monster!
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- July 4, 2013 at 11:18 pm
thank u Linny for ur imput. i know interferon has lots of side affect and thats what scares me. i think it has been to long after initial removal for me to enter another clinical trial but im gonna look into it. i have had 4 dif opinions….2 said treatment and 2 say clinical trial. im going to do some more research to check all the options. upsetting not more options for this monster!
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