Bruiser

Thanks, treatment is most important without a doubt but it was Hillman that told us to per sue malpractice suit as well. He has children and a wife to consider if the worst happens. As a man, father and husband he worries about their future. He worked 2 jobs and breadwinner and now depends on SSDI to provide.

That is insane. Any dr can use a simple dermascope and see cancer cells. His entire lymphatic system and blood is full of cancer. Has lympedema and cellulitis and says foot smells like death. Today he told me his good hip is horrible pain and he thinks its pinched nerve or pulled muscle. His left foot and limb is primary tumor and scans show metastasized to femur and hip and both lungs. With long delay without any treatment we r really concerned. I think metastasized to bones. Praying for ur mom

Haven’t heard of isolated limb perfusion. He saw Dr DA var at Hillman and they discussed a clinical trial administered through digestive system like colonoscopy but with VA being only insurance may be fibancial issue but we were told clinical trial drug tx has no charge. Next visit 2 weeks, have to wait and see. We r very concerned because he hasn’t had any treatment since Feb

Haven’t heard of isolated limb perfusion. He saw Dr DA var at Hillman and they discussed a clinical trial administered through digestive system like colonoscopy but with VA being only insurance may be fibancial issue but we were told clinical trial drug tx has no charge. Next visit 2 weeks, have to wait and see. We r very concerned because he hasn’t had any treatment since Feb

Thanks Celeste,
He will return to Hillman Friday and see if meets criteria. Knows options very limited and the melanoma is more powerful now but he wants to try any clinical trial knowing won’t help him but may benefit others in future. Keep praying

His PET scans, labs and other testing return with more lymph nodes involved, has tumor on hip bone, tiny white spots all over his leg which is melanoma, new tumor on left neck and lung lesions biopsed as melanoma and growing

When tumor was dime size but before diagnosed as melanoma surgery would have been option and probably successful. By time it was diagnosed tumor was too big and had metastasized to lymphatic and blood system so surgery no longer option. Dr said would be like mutilating him to surgically try and remove everything. He sees Dr Davar a melanoma specialist at Hillman. He has not met criteria because of severe reaction to the combo tx which almost killed him. He was placed on steroids and meds to slowly rebuild his system;therefore, couldn’t take any txs and labs, bp, etc messed up so couldn’t begin a clinical trial. He is being double treated by VAMC and Hillman Center and both agree he can’t begin clinical trial until labs and body meet the criteria for a clinical trial

Yes he got the combo, that’s what they call immunotherapy. His braf is negative. Has 4 mutations. Dr says only option is a next generation clinical trial and that he wouldn’t benefit from any TD. Did get 5 radiation txs to try and shrink. Hasn’t met criteria for any clinical trials. Looking for miracle but not promising. Prayers and faith