The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

btwiford

Forum Replies Created

Viewing 2 reply threads
  • Replies
      btwiford
      Participant

        Hi, first time giving my story, i been on site, for a year. Snow white, tomorrow we meet with Dr Dumas, to review our MRI. Long story, 1 1/2 years ago we went to Hoag, for simple procedure with Afib. The doctor at ER said, all is good with Afib, but I knowtice you have not had Xray on chect for  1/2 years.He ask if you mind if we do a Xray? Of course we said yes. He came back with a different look on his face, he had melanoma on skin removed 3 1/2 years prior, check limph nodes, all clear.

        The person that did surgery never said have a xray, or MRI, just to to his derm doctor to check skin. Well he had stage IV, maybe 6 months. I believe in prayers, next day met with doctor, said yes stage IV, going to the power of prayer, week later, he had a smile on his face, cancer is isolated, we could operate.

        Again Hoag, in Newport Beach, we had a surgeon that goes to City of Hope, and other places, Kr Joyal, I will verify, the best!

        Here, with your dad, we could relate, cancer went to the brain, we want the best doctor, we research, and chose Dr Duma, at Newport Beach,ca.He did gamma knife, removed to turmors, was so close to mobility. First one, he was done, in 45 minutes. The second was serious, but he felt confident, and yes, he could not walk, speak, ready to give up. Dr Duma, said he will be out in a week, well, end up in rehab, just like your dad. 

        Going one step ahead, I want you to know how I found my doctor, oncologist fro Hoag. The one they she did do right, she said chemo does not work on stage IV melanoma. Long story, but, our therapy nurse, was fellowing this girl who was so advanced in melanoma, but was in a clincal study, and on 6 years survivor.

        She came over the fellowing week, I ask, do you know the doctor on the clinical studay, she said Doctor Antone Ribas, UCLA, he ran and got Keytruda approved.

        I read, all with melanoma, yes, you have to go to melanoma doctor. My husband is on his 8 infusion, Dr Duma said 3 month ago scan, NED, body scan turmors are shrinking.

        We said, so far to travel, being that we live in Huntington Beach, his colleage, goes to Torrance office, Monday and Tuesday.

        Oh and yes, he did not have infusion for 2 to 3 weeks.

        One day, I being first time on this forum, want everyone to get a melanoma specialist!

        Good Luck, and God Bless, oh tomorrow we review our MRI with Dr Duma, funny,sweet, and he sure know what he is doing with gamma knife and and surgery.

        btwiford
        Participant

          Hi, first time giving my story, i been on site, for a year. Snow white, tomorrow we meet with Dr Dumas, to review our MRI. Long story, 1 1/2 years ago we went to Hoag, for simple procedure with Afib. The doctor at ER said, all is good with Afib, but I knowtice you have not had Xray on chect for  1/2 years.He ask if you mind if we do a Xray? Of course we said yes. He came back with a different look on his face, he had melanoma on skin removed 3 1/2 years prior, check limph nodes, all clear.

          The person that did surgery never said have a xray, or MRI, just to to his derm doctor to check skin. Well he had stage IV, maybe 6 months. I believe in prayers, next day met with doctor, said yes stage IV, going to the power of prayer, week later, he had a smile on his face, cancer is isolated, we could operate.

          Again Hoag, in Newport Beach, we had a surgeon that goes to City of Hope, and other places, Kr Joyal, I will verify, the best!

          Here, with your dad, we could relate, cancer went to the brain, we want the best doctor, we research, and chose Dr Duma, at Newport Beach,ca.He did gamma knife, removed to turmors, was so close to mobility. First one, he was done, in 45 minutes. The second was serious, but he felt confident, and yes, he could not walk, speak, ready to give up. Dr Duma, said he will be out in a week, well, end up in rehab, just like your dad. 

          Going one step ahead, I want you to know how I found my doctor, oncologist fro Hoag. The one they she did do right, she said chemo does not work on stage IV melanoma. Long story, but, our therapy nurse, was fellowing this girl who was so advanced in melanoma, but was in a clincal study, and on 6 years survivor.

          She came over the fellowing week, I ask, do you know the doctor on the clinical studay, she said Doctor Antone Ribas, UCLA, he ran and got Keytruda approved.

          I read, all with melanoma, yes, you have to go to melanoma doctor. My husband is on his 8 infusion, Dr Duma said 3 month ago scan, NED, body scan turmors are shrinking.

          We said, so far to travel, being that we live in Huntington Beach, his colleage, goes to Torrance office, Monday and Tuesday.

          Oh and yes, he did not have infusion for 2 to 3 weeks.

          One day, I being first time on this forum, want everyone to get a melanoma specialist!

          Good Luck, and God Bless, oh tomorrow we review our MRI with Dr Duma, funny,sweet, and he sure know what he is doing with gamma knife and and surgery.

          btwiford
          Participant

            Hi, first time giving my story, i been on site, for a year. Snow white, tomorrow we meet with Dr Dumas, to review our MRI. Long story, 1 1/2 years ago we went to Hoag, for simple procedure with Afib. The doctor at ER said, all is good with Afib, but I knowtice you have not had Xray on chect for  1/2 years.He ask if you mind if we do a Xray? Of course we said yes. He came back with a different look on his face, he had melanoma on skin removed 3 1/2 years prior, check limph nodes, all clear.

            The person that did surgery never said have a xray, or MRI, just to to his derm doctor to check skin. Well he had stage IV, maybe 6 months. I believe in prayers, next day met with doctor, said yes stage IV, going to the power of prayer, week later, he had a smile on his face, cancer is isolated, we could operate.

            Again Hoag, in Newport Beach, we had a surgeon that goes to City of Hope, and other places, Kr Joyal, I will verify, the best!

            Here, with your dad, we could relate, cancer went to the brain, we want the best doctor, we research, and chose Dr Duma, at Newport Beach,ca.He did gamma knife, removed to turmors, was so close to mobility. First one, he was done, in 45 minutes. The second was serious, but he felt confident, and yes, he could not walk, speak, ready to give up. Dr Duma, said he will be out in a week, well, end up in rehab, just like your dad. 

            Going one step ahead, I want you to know how I found my doctor, oncologist fro Hoag. The one they she did do right, she said chemo does not work on stage IV melanoma. Long story, but, our therapy nurse, was fellowing this girl who was so advanced in melanoma, but was in a clincal study, and on 6 years survivor.

            She came over the fellowing week, I ask, do you know the doctor on the clinical studay, she said Doctor Antone Ribas, UCLA, he ran and got Keytruda approved.

            I read, all with melanoma, yes, you have to go to melanoma doctor. My husband is on his 8 infusion, Dr Duma said 3 month ago scan, NED, body scan turmors are shrinking.

            We said, so far to travel, being that we live in Huntington Beach, his colleage, goes to Torrance office, Monday and Tuesday.

            Oh and yes, he did not have infusion for 2 to 3 weeks.

            One day, I being first time on this forum, want everyone to get a melanoma specialist!

            Good Luck, and God Bless, oh tomorrow we review our MRI with Dr Duma, funny,sweet, and he sure know what he is doing with gamma knife and and surgery.

        Viewing 2 reply threads
        About the MRF Patient Forum

        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.