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buffalogirl

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      buffalogirl
      Participant

        Two years on treatment with nivolamab – optivo.  I had surgery at Mayo in Sept of 2015.  Nov. 2015 it spread – Stage 4.  I had 2 radiation treatments and 12 lymph nodes removed.  I came home to Sioux Falls to do the treatment here.  I feel good.  I don't really have bad days.  I'm a little tired but maybe that's just 63 years old.  My first two treatments I had Opdivo and Yervoy.  After the 2nd I had some diarrhea but not bad.  I lead a normal life.  I swim 3 days a week.  I walk my daughter's dog 3 times a week for 2 miles.  If I was you, try to be excited about the treatment.  You won't lose your hair.  Might get a little thin but might not be treatment – just getting older.  I don't have a port.  My life is very normal and great really.  I am very thankful for this drug.  I'm on my 51st treatment and cancer free for almost 2 years.  Deciding tomorrow whether or not to continue treatment.  Go full blast.  We are trailblazers!  

        buffalogirl
        Participant

          I had the sentinal lymphnode biopsy in June. Same thing.  First was positive at .5cm.  Second was negative.  I was told they had all the cancer and then just have close monitoring.  I opted for a second opinion. 

           

          In Sept I had a lymphadanectomy and they found a 3.1 cm cancerous lymph.  Glad I got a second opinion.  I will do radiation and a trial – but not interferon.  Both PET scan and ultrasound showed a large mass.  Turns out it was very big, black and full of cancer.

          buffalogirl
          Participant

            I had the sentinal lymphnode biopsy in June. Same thing.  First was positive at .5cm.  Second was negative.  I was told they had all the cancer and then just have close monitoring.  I opted for a second opinion. 

             

            In Sept I had a lymphadanectomy and they found a 3.1 cm cancerous lymph.  Glad I got a second opinion.  I will do radiation and a trial – but not interferon.  Both PET scan and ultrasound showed a large mass.  Turns out it was very big, black and full of cancer.

            buffalogirl
            Participant

              I had the sentinal lymphnode biopsy in June. Same thing.  First was positive at .5cm.  Second was negative.  I was told they had all the cancer and then just have close monitoring.  I opted for a second opinion. 

               

              In Sept I had a lymphadanectomy and they found a 3.1 cm cancerous lymph.  Glad I got a second opinion.  I will do radiation and a trial – but not interferon.  Both PET scan and ultrasound showed a large mass.  Turns out it was very big, black and full of cancer.

              buffalogirl
              Participant

                I am currently be treated for IIIB melanoma at Mayo Clinic in Rochester, MN.  I like it.  I am making the same decisions as you.  No interferon for me.  Good Luck.

                buffalogirl
                Participant

                  I am currently be treated for IIIB melanoma at Mayo Clinic in Rochester, MN.  I like it.  I am making the same decisions as you.  No interferon for me.  Good Luck.

                  buffalogirl
                  Participant

                    I am currently be treated for IIIB melanoma at Mayo Clinic in Rochester, MN.  I like it.  I am making the same decisions as you.  No interferon for me.  Good Luck.

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