@calmspirit
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- September 20, 2023 at 11:27 pm
Thought I would update this in case anyone else is going through what we are.Although genomics report came back saying metastatic melanoma the oncologist thinks they are wrong. 2 different pathologists and 2 different opinions.
She is sending biopsies to a lab that has no connection to any place to get an outside opinion.
I never dreamed it would be this confusing trying to get a diagnosis.
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- September 19, 2023 at 8:24 pm
Results from genome came in today saying metastatic melanoma.
Meeting with oncologist first thing in morning.
From what I’ve read it will likely be stage IV or more.
I have noted to ask if BRAF testing was or will be done.
Any other questions anyone can recommend we may want answers to?
Thanks
CSI have read all of the attached links. Thank you.
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- September 18, 2023 at 11:30 pm
Judi, if the post was addressed to me, I am located in the USA, in South Dakota, my sister is in St. Louis.They diagnosed her with stage 3 breast cancer and immediately started chemo.
Then further pathology reports came in saying they thought melanoma instead. (1st lab in SD. 2nd lab in MO)
The only thing I found that really stood out differently in lab reports was “notably GATA3 is positive in lymphocytes but remains negative in the neoplastic tumor cells”
Apparently that doesn’t mean much to anyone here. It likewise means nothing to me.
We are still waiting for results from the lab the biopsies were sent to that is supposed to give us a definite answer.In the meantime all treatments have been stopped.
Thanks
CS -
- September 11, 2023 at 1:13 pm
Im sorry I wasn’t clearer. The oncologist set up the chemo treatments thinking it was only breast cancer.The report showing she has metastatic melanoma came from the pathologist. The report came in Thursday, the same day as her first chemo.
This has all been rapidly happening. We went to uc concerned about the lump on 8.23 they sent us for immediate ultrasound.. they immediately sent us (now 8.24 as it was late day) for mammogram and they sent us for biopsies. Later that day we got a call saying it was pos for breast cancer.
She then returned home and we started a search for an oncologist. After being told we would have a month wait to get in at Siteman. Our contacts were able to get her right in at another place..
Days of testing followed…
Led to a breast cancer plan of chemo every 2 weeksx4 then every 3 weeksx4 then surgery, then radiation.. 1st chemo was Thursday, followed by pathologist report saying she has melonoma.
She was to see oncologist today to discuss but instead is in hospital.
So I’m trying to understand relationship between melonoma and breast cancer.
If melonoma metastases to the breast does it still show as melonoma or as breast cancer?
If it is melonoma causing breast cancer would the treatment be for breast cancer or melonoma?
Do people develop both concurrently?Do the test results mean anything definitely?
If she continues with chemo for bc will this effect the melonoma?
Can I assume the melonoma would need a different treatment?
Thanks so very much for your input and for sharing your story. I am sorry for all you have been through but so happy you are through it.
CS
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