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caretothepeople

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      caretothepeople
      Participant

        Hi Melissa, wow I'm sorry your family has been through so much recently. It's amazing how you are standing by your Mom.

        In terms of resources, maybe try checking out the #Gyncsm community. They are a community of gynecologic cancer survivors, patient advocates, caregivers and health care providers. They have lots of resources listed on their website and a very active helpful community that might be useful to tap into to ask questions and find support as things go along with your mom.

        While ovarian melanomas are certainly more rare than other types, this group might be able to point you in the direction of some information and resources.

        The fact that you're getting a second opinion is fantastic. Stay strong and keep us posted here.

        -Melody

        caretothepeople
        Participant

          Hi Melissa, wow I'm sorry your family has been through so much recently. It's amazing how you are standing by your Mom.

          In terms of resources, maybe try checking out the #Gyncsm community. They are a community of gynecologic cancer survivors, patient advocates, caregivers and health care providers. They have lots of resources listed on their website and a very active helpful community that might be useful to tap into to ask questions and find support as things go along with your mom.

          While ovarian melanomas are certainly more rare than other types, this group might be able to point you in the direction of some information and resources.

          The fact that you're getting a second opinion is fantastic. Stay strong and keep us posted here.

          -Melody

          caretothepeople
          Participant

            Hi Melissa, wow I'm sorry your family has been through so much recently. It's amazing how you are standing by your Mom.

            In terms of resources, maybe try checking out the #Gyncsm community. They are a community of gynecologic cancer survivors, patient advocates, caregivers and health care providers. They have lots of resources listed on their website and a very active helpful community that might be useful to tap into to ask questions and find support as things go along with your mom.

            While ovarian melanomas are certainly more rare than other types, this group might be able to point you in the direction of some information and resources.

            The fact that you're getting a second opinion is fantastic. Stay strong and keep us posted here.

            -Melody

            caretothepeople
            Participant

              Its a great question since many immunotherapies are still in the experimental phase and others new on the market so there's a lot of unanswered questions and more research needed. Others have chimed in with some personal stories and hopefully more will. It varies between person to person what changes might be appropriate and what someone can handle

              The best thing to do is probably have a conversation with your doctor about it if you haven't already. With some immunotherapies, there are certain foods and activities they might suggest to avoid to limit infections, so you want to get the best information from your doc so you make an informed decision about what's right for you.

              caretothepeople
              Participant

                Its a great question since many immunotherapies are still in the experimental phase and others new on the market so there's a lot of unanswered questions and more research needed. Others have chimed in with some personal stories and hopefully more will. It varies between person to person what changes might be appropriate and what someone can handle

                The best thing to do is probably have a conversation with your doctor about it if you haven't already. With some immunotherapies, there are certain foods and activities they might suggest to avoid to limit infections, so you want to get the best information from your doc so you make an informed decision about what's right for you.

                caretothepeople
                Participant

                  Its a great question since many immunotherapies are still in the experimental phase and others new on the market so there's a lot of unanswered questions and more research needed. Others have chimed in with some personal stories and hopefully more will. It varies between person to person what changes might be appropriate and what someone can handle

                  The best thing to do is probably have a conversation with your doctor about it if you haven't already. With some immunotherapies, there are certain foods and activities they might suggest to avoid to limit infections, so you want to get the best information from your doc so you make an informed decision about what's right for you.

                  caretothepeople
                  Participant

                    Getting the diagnosis can trigger a roller coaster of different emotions. It sounds like you're being proactive about the situation and doing what you can to think ahead.

                    It might be helpful to check out The MRF's newly diagnosed guide. It has lots of info about staging, questions to ask about treatment, etc: https://www.melanoma.org/sites/default/files/u13882/JustDiagnosed…NowWhat.pdf

                     

                    caretothepeople
                    Participant

                      Getting the diagnosis can trigger a roller coaster of different emotions. It sounds like you're being proactive about the situation and doing what you can to think ahead.

                      It might be helpful to check out The MRF's newly diagnosed guide. It has lots of info about staging, questions to ask about treatment, etc: https://www.melanoma.org/sites/default/files/u13882/JustDiagnosed…NowWhat.pdf

                       

                      caretothepeople
                      Participant

                        Getting the diagnosis can trigger a roller coaster of different emotions. It sounds like you're being proactive about the situation and doing what you can to think ahead.

                        It might be helpful to check out The MRF's newly diagnosed guide. It has lots of info about staging, questions to ask about treatment, etc: https://www.melanoma.org/sites/default/files/u13882/JustDiagnosed…NowWhat.pdf

                         

                        caretothepeople
                        Participant

                          As others have mentioned, it's great that you have found yourself here and are reaching out. It sounds like you've been through a lot lately. Let your doctor know about your other diagnoses as well as any medications you're on as it may have implications for your treatment options for the melanoma. If you're not working with a therapist already, speak with your doc about this too or your contact at the psychiatric facility. Support is SO important to the journey!! The MRF also has some support resources here on their website, too.

                           

                          -MW

                          caretothepeople
                          Participant

                            As others have mentioned, it's great that you have found yourself here and are reaching out. It sounds like you've been through a lot lately. Let your doctor know about your other diagnoses as well as any medications you're on as it may have implications for your treatment options for the melanoma. If you're not working with a therapist already, speak with your doc about this too or your contact at the psychiatric facility. Support is SO important to the journey!! The MRF also has some support resources here on their website, too.

                             

                            -MW

                            caretothepeople
                            Participant

                              As others have mentioned, it's great that you have found yourself here and are reaching out. It sounds like you've been through a lot lately. Let your doctor know about your other diagnoses as well as any medications you're on as it may have implications for your treatment options for the melanoma. If you're not working with a therapist already, speak with your doc about this too or your contact at the psychiatric facility. Support is SO important to the journey!! The MRF also has some support resources here on their website, too.

                               

                              -MW

                              caretothepeople
                              Participant

                                While I haven't personally been there, I know The American Cancer Society has many guides on talking to children about cancer that might be useful to check out: http://www.cancer.org/treatment/childrenandcancer/helpingchildrenwhenafamilymemberhascancer/

                                This is another pretty comrehensive guide from the Unversity of Michigan that has everything from articles to children books: http://www.med.umich.edu/cancer/files/talking-w-kids-about-a-loved-ones-cancer-information-guide.pdf

                                Gilda's Club and Camp Kasem are two other organizations that help families and children coping with a parent's diagnosis.

                                On their website here, the Melanoma Research Foundation does list support organizations, so it may be worth reaching out to see what type of support exists in your area: http://www.melanoma.org/understand-melanoma/resource-library/helpful-links

                                Wishing you all the best.

                                -MW

                                caretothepeople
                                Participant

                                  While I haven't personally been there, I know The American Cancer Society has many guides on talking to children about cancer that might be useful to check out: http://www.cancer.org/treatment/childrenandcancer/helpingchildrenwhenafamilymemberhascancer/

                                  This is another pretty comrehensive guide from the Unversity of Michigan that has everything from articles to children books: http://www.med.umich.edu/cancer/files/talking-w-kids-about-a-loved-ones-cancer-information-guide.pdf

                                  Gilda's Club and Camp Kasem are two other organizations that help families and children coping with a parent's diagnosis.

                                  On their website here, the Melanoma Research Foundation does list support organizations, so it may be worth reaching out to see what type of support exists in your area: http://www.melanoma.org/understand-melanoma/resource-library/helpful-links

                                  Wishing you all the best.

                                  -MW

                                  caretothepeople
                                  Participant

                                    While I haven't personally been there, I know The American Cancer Society has many guides on talking to children about cancer that might be useful to check out: http://www.cancer.org/treatment/childrenandcancer/helpingchildrenwhenafamilymemberhascancer/

                                    This is another pretty comrehensive guide from the Unversity of Michigan that has everything from articles to children books: http://www.med.umich.edu/cancer/files/talking-w-kids-about-a-loved-ones-cancer-information-guide.pdf

                                    Gilda's Club and Camp Kasem are two other organizations that help families and children coping with a parent's diagnosis.

                                    On their website here, the Melanoma Research Foundation does list support organizations, so it may be worth reaching out to see what type of support exists in your area: http://www.melanoma.org/understand-melanoma/resource-library/helpful-links

                                    Wishing you all the best.

                                    -MW

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