Forum Replies Created
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- September 14, 2016 at 1:54 pm
Hi Melissa, wow I'm sorry your family has been through so much recently. It's amazing how you are standing by your Mom.
In terms of resources, maybe try checking out the #Gyncsm community. They are a community of gynecologic cancer survivors, patient advocates, caregivers and health care providers. They have lots of resources listed on their website and a very active helpful community that might be useful to tap into to ask questions and find support as things go along with your mom.
While ovarian melanomas are certainly more rare than other types, this group might be able to point you in the direction of some information and resources.
The fact that you're getting a second opinion is fantastic. Stay strong and keep us posted here.
-Melody
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- September 14, 2016 at 1:54 pm
Hi Melissa, wow I'm sorry your family has been through so much recently. It's amazing how you are standing by your Mom.
In terms of resources, maybe try checking out the #Gyncsm community. They are a community of gynecologic cancer survivors, patient advocates, caregivers and health care providers. They have lots of resources listed on their website and a very active helpful community that might be useful to tap into to ask questions and find support as things go along with your mom.
While ovarian melanomas are certainly more rare than other types, this group might be able to point you in the direction of some information and resources.
The fact that you're getting a second opinion is fantastic. Stay strong and keep us posted here.
-Melody
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- September 14, 2016 at 1:54 pm
Hi Melissa, wow I'm sorry your family has been through so much recently. It's amazing how you are standing by your Mom.
In terms of resources, maybe try checking out the #Gyncsm community. They are a community of gynecologic cancer survivors, patient advocates, caregivers and health care providers. They have lots of resources listed on their website and a very active helpful community that might be useful to tap into to ask questions and find support as things go along with your mom.
While ovarian melanomas are certainly more rare than other types, this group might be able to point you in the direction of some information and resources.
The fact that you're getting a second opinion is fantastic. Stay strong and keep us posted here.
-Melody
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- August 26, 2016 at 1:52 pm
Its a great question since many immunotherapies are still in the experimental phase and others new on the market so there's a lot of unanswered questions and more research needed. Others have chimed in with some personal stories and hopefully more will. It varies between person to person what changes might be appropriate and what someone can handle
The best thing to do is probably have a conversation with your doctor about it if you haven't already. With some immunotherapies, there are certain foods and activities they might suggest to avoid to limit infections, so you want to get the best information from your doc so you make an informed decision about what's right for you.
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- August 26, 2016 at 1:52 pm
Its a great question since many immunotherapies are still in the experimental phase and others new on the market so there's a lot of unanswered questions and more research needed. Others have chimed in with some personal stories and hopefully more will. It varies between person to person what changes might be appropriate and what someone can handle
The best thing to do is probably have a conversation with your doctor about it if you haven't already. With some immunotherapies, there are certain foods and activities they might suggest to avoid to limit infections, so you want to get the best information from your doc so you make an informed decision about what's right for you.
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- August 26, 2016 at 1:52 pm
Its a great question since many immunotherapies are still in the experimental phase and others new on the market so there's a lot of unanswered questions and more research needed. Others have chimed in with some personal stories and hopefully more will. It varies between person to person what changes might be appropriate and what someone can handle
The best thing to do is probably have a conversation with your doctor about it if you haven't already. With some immunotherapies, there are certain foods and activities they might suggest to avoid to limit infections, so you want to get the best information from your doc so you make an informed decision about what's right for you.
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- July 28, 2016 at 2:23 pm
Getting the diagnosis can trigger a roller coaster of different emotions. It sounds like you're being proactive about the situation and doing what you can to think ahead.
It might be helpful to check out The MRF's newly diagnosed guide. It has lots of info about staging, questions to ask about treatment, etc: https://www.melanoma.org/sites/default/files/u13882/JustDiagnosed…NowWhat.pdf
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- July 28, 2016 at 2:23 pm
Getting the diagnosis can trigger a roller coaster of different emotions. It sounds like you're being proactive about the situation and doing what you can to think ahead.
It might be helpful to check out The MRF's newly diagnosed guide. It has lots of info about staging, questions to ask about treatment, etc: https://www.melanoma.org/sites/default/files/u13882/JustDiagnosed…NowWhat.pdf
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- July 28, 2016 at 2:23 pm
Getting the diagnosis can trigger a roller coaster of different emotions. It sounds like you're being proactive about the situation and doing what you can to think ahead.
It might be helpful to check out The MRF's newly diagnosed guide. It has lots of info about staging, questions to ask about treatment, etc: https://www.melanoma.org/sites/default/files/u13882/JustDiagnosed…NowWhat.pdf
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- May 16, 2016 at 1:36 pm
As others have mentioned, it's great that you have found yourself here and are reaching out. It sounds like you've been through a lot lately. Let your doctor know about your other diagnoses as well as any medications you're on as it may have implications for your treatment options for the melanoma. If you're not working with a therapist already, speak with your doc about this too or your contact at the psychiatric facility. Support is SO important to the journey!! The MRF also has some support resources here on their website, too.
-MW
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- May 16, 2016 at 1:36 pm
As others have mentioned, it's great that you have found yourself here and are reaching out. It sounds like you've been through a lot lately. Let your doctor know about your other diagnoses as well as any medications you're on as it may have implications for your treatment options for the melanoma. If you're not working with a therapist already, speak with your doc about this too or your contact at the psychiatric facility. Support is SO important to the journey!! The MRF also has some support resources here on their website, too.
-MW
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- May 16, 2016 at 1:36 pm
As others have mentioned, it's great that you have found yourself here and are reaching out. It sounds like you've been through a lot lately. Let your doctor know about your other diagnoses as well as any medications you're on as it may have implications for your treatment options for the melanoma. If you're not working with a therapist already, speak with your doc about this too or your contact at the psychiatric facility. Support is SO important to the journey!! The MRF also has some support resources here on their website, too.
-MW
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- April 13, 2016 at 1:48 pm
While I haven't personally been there, I know The American Cancer Society has many guides on talking to children about cancer that might be useful to check out: http://www.cancer.org/treatment/childrenandcancer/helpingchildrenwhenafamilymemberhascancer/
This is another pretty comrehensive guide from the Unversity of Michigan that has everything from articles to children books: http://www.med.umich.edu/cancer/files/talking-w-kids-about-a-loved-ones-cancer-information-guide.pdf
Gilda's Club and Camp Kasem are two other organizations that help families and children coping with a parent's diagnosis.
On their website here, the Melanoma Research Foundation does list support organizations, so it may be worth reaching out to see what type of support exists in your area: http://www.melanoma.org/understand-melanoma/resource-library/helpful-links
Wishing you all the best.
-MW
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- April 13, 2016 at 1:48 pm
While I haven't personally been there, I know The American Cancer Society has many guides on talking to children about cancer that might be useful to check out: http://www.cancer.org/treatment/childrenandcancer/helpingchildrenwhenafamilymemberhascancer/
This is another pretty comrehensive guide from the Unversity of Michigan that has everything from articles to children books: http://www.med.umich.edu/cancer/files/talking-w-kids-about-a-loved-ones-cancer-information-guide.pdf
Gilda's Club and Camp Kasem are two other organizations that help families and children coping with a parent's diagnosis.
On their website here, the Melanoma Research Foundation does list support organizations, so it may be worth reaching out to see what type of support exists in your area: http://www.melanoma.org/understand-melanoma/resource-library/helpful-links
Wishing you all the best.
-MW
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- April 13, 2016 at 1:48 pm
While I haven't personally been there, I know The American Cancer Society has many guides on talking to children about cancer that might be useful to check out: http://www.cancer.org/treatment/childrenandcancer/helpingchildrenwhenafamilymemberhascancer/
This is another pretty comrehensive guide from the Unversity of Michigan that has everything from articles to children books: http://www.med.umich.edu/cancer/files/talking-w-kids-about-a-loved-ones-cancer-information-guide.pdf
Gilda's Club and Camp Kasem are two other organizations that help families and children coping with a parent's diagnosis.
On their website here, the Melanoma Research Foundation does list support organizations, so it may be worth reaching out to see what type of support exists in your area: http://www.melanoma.org/understand-melanoma/resource-library/helpful-links
Wishing you all the best.
-MW
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