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carpediemtr
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carpediemtr

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      • September 20, 2013 at 3:59 pm
      carpediemtr
      Participant

        Hello. I just found this site recently after that Metastatic Melonoma was diagnosed on my brother (lungs) at second half of July 2013.

        First he started to take temodar in August and completed first cycle. Then, according to positive braf result, he started to take Zelboraf last Thursday (12th of Sep.)

        After about 4 or five days, allergic reactions started to happen on his body. Then yesterday, his hands, face, neck all became red and we diagnosed rash on his upper body. Then, today rashes diffused all over his body. Also he has fever and nausea today.

        After communication with our oncologist (but he hadn't worked with any braf patient until my brother), he suggested to stop medicine. On the other hand, we asked for advice of another oncologist who study about Zelboraf, stated that if we see this kind of side effects, it would mean that Zelboraf is effective on melanoma and suggests not to stop, but maybe reduce the dose.

        So now we have a dilemma about the decision. Has anybody experienced the same side effects here? And what was the solution? If these effects continue and grow, should we stop the Zelboraf and will not take again? Could you please help us? We need your urgent advice.

        Thank you in advance.

        • September 20, 2013 at 3:59 pm
        carpediemtr
        Participant

          Hello. I just found this site recently after that Metastatic Melonoma was diagnosed on my brother (lungs) at second half of July 2013.

          First he started to take temodar in August and completed first cycle. Then, according to positive braf result, he started to take Zelboraf last Thursday (12th of Sep.)

          After about 4 or five days, allergic reactions started to happen on his body. Then yesterday, his hands, face, neck all became red and we diagnosed rash on his upper body. Then, today rashes diffused all over his body. Also he has fever and nausea today.

          After communication with our oncologist (but he hadn't worked with any braf patient until my brother), he suggested to stop medicine. On the other hand, we asked for advice of another oncologist who study about Zelboraf, stated that if we see this kind of side effects, it would mean that Zelboraf is effective on melanoma and suggests not to stop, but maybe reduce the dose.

          So now we have a dilemma about the decision. Has anybody experienced the same side effects here? And what was the solution? If these effects continue and grow, should we stop the Zelboraf and will not take again? Could you please help us? We need your urgent advice.

          Thank you in advance.

          • September 20, 2013 at 3:59 pm
          carpediemtr
          Participant

            Hello. I just found this site recently after that Metastatic Melonoma was diagnosed on my brother (lungs) at second half of July 2013.

            First he started to take temodar in August and completed first cycle. Then, according to positive braf result, he started to take Zelboraf last Thursday (12th of Sep.)

            After about 4 or five days, allergic reactions started to happen on his body. Then yesterday, his hands, face, neck all became red and we diagnosed rash on his upper body. Then, today rashes diffused all over his body. Also he has fever and nausea today.

            After communication with our oncologist (but he hadn't worked with any braf patient until my brother), he suggested to stop medicine. On the other hand, we asked for advice of another oncologist who study about Zelboraf, stated that if we see this kind of side effects, it would mean that Zelboraf is effective on melanoma and suggests not to stop, but maybe reduce the dose.

            So now we have a dilemma about the decision. Has anybody experienced the same side effects here? And what was the solution? If these effects continue and grow, should we stop the Zelboraf and will not take again? Could you please help us? We need your urgent advice.

            Thank you in advance.

            • September 22, 2013 at 12:21 pm
            carpediemtr
            Participant

              joycedixon, to manage these side effects, what kind of medical dermatologic treatment did you have with Zelboraf? Or any herbal treatment did you take? My brother is just taking Avil and dekort (IV/ IM) and antihistaminic pomad.

              • September 22, 2013 at 12:21 pm
              carpediemtr
              Participant

                joycedixon, to manage these side effects, what kind of medical dermatologic treatment did you have with Zelboraf? Or any herbal treatment did you take? My brother is just taking Avil and dekort (IV/ IM) and antihistaminic pomad.

                • September 22, 2013 at 12:21 pm
                carpediemtr
                Participant

                  joycedixon, to manage these side effects, what kind of medical dermatologic treatment did you have with Zelboraf? Or any herbal treatment did you take? My brother is just taking Avil and dekort (IV/ IM) and antihistaminic pomad.

                  • September 22, 2013 at 12:16 pm
                  carpediemtr
                  Participant

                    Thank you very much POW. I will check MIF soon. Also may your brother rest in peace.

                    • September 22, 2013 at 12:16 pm
                    carpediemtr
                    Participant

                      Thank you very much POW. I will check MIF soon. Also may your brother rest in peace.

                      • September 22, 2013 at 12:16 pm
                      carpediemtr
                      Participant

                        Thank you very much POW. I will check MIF soon. Also may your brother rest in peace.

                        • September 21, 2013 at 4:39 pm
                        carpediemtr
                        Participant

                          Tahnk you POW. We live in Europe, Turkey. There are some Melanoma Specialists here, maybe we will switch our oncologist acccording to this.

                          • September 21, 2013 at 4:39 pm
                          carpediemtr
                          Participant

                            Tahnk you POW. We live in Europe, Turkey. There are some Melanoma Specialists here, maybe we will switch our oncologist acccording to this.

                            • September 21, 2013 at 4:39 pm
                            carpediemtr
                            Participant

                              Tahnk you POW. We live in Europe, Turkey. There are some Melanoma Specialists here, maybe we will switch our oncologist acccording to this.

                              • September 21, 2013 at 3:58 pm
                              carpediemtr
                              Participant

                                • Thank you for all your helpful advises. They are really worthy for us.

                                   

                                  But, my oncologist couldn't give me satisfactory information regarding side effects. Thus, we are searching a literate oncologist and dermatologist according to your advises. But in order to prevent hitch regarding treatment and to manage side effects in this period, we need to be informed about the methodology you followed.

                                   

                                   
                                  To manage these side effects, what kind of medical dermatologic treatment did you have with Zelboraf? Or any herbal treatment did you take? My brother is just taking Avil and dekort (IV/ IM) and antihistaminic pomad.

                                • September 21, 2013 at 3:58 pm
                                carpediemtr
                                Participant

                                  • Thank you for all your helpful advises. They are really worthy for us.

                                     

                                    But, my oncologist couldn't give me satisfactory information regarding side effects. Thus, we are searching a literate oncologist and dermatologist according to your advises. But in order to prevent hitch regarding treatment and to manage side effects in this period, we need to be informed about the methodology you followed.

                                     

                                     
                                    To manage these side effects, what kind of medical dermatologic treatment did you have with Zelboraf? Or any herbal treatment did you take? My brother is just taking Avil and dekort (IV/ IM) and antihistaminic pomad.

                                  • September 21, 2013 at 3:58 pm
                                  carpediemtr
                                  Participant

                                    • Thank you for all your helpful advises. They are really worthy for us.

                                       

                                      But, my oncologist couldn't give me satisfactory information regarding side effects. Thus, we are searching a literate oncologist and dermatologist according to your advises. But in order to prevent hitch regarding treatment and to manage side effects in this period, we need to be informed about the methodology you followed.

                                       

                                       
                                      To manage these side effects, what kind of medical dermatologic treatment did you have with Zelboraf? Or any herbal treatment did you take? My brother is just taking Avil and dekort (IV/ IM) and antihistaminic pomad.

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