Hello everyone. I hope those that have previously responded to this post are doing well.
I’d like to share my experiences with treatment for my stage 4 melanoma diagnosis..
I have Mets to my lungs, neck, and liver. No primary site ever identified.
I was started on immunotherapy in July 2018 (tanfinlar and mekinist combo).
I had side effects ..fever, elevated liver enzymes, skin sensitivity, raise in b/p, some facial swelling. These meds were stopped in April 2019 due to side effects effecting the course of treatment.
Mektovi and Braftovi were started the same month and are my current meds. Again some side effects mostly fevers causing lowering off the dose. Treatment may change for me in the near future as my recent ct scan shows a few new tumor growths in my lungs and liver though some shrinkage of tumors in my liver and stable tumors in my lungs. A bit confusing to gauge what is considered success with meds.
Next: Possibly a clinical trial with Spartalizumab…immunotherapy. Is anyone familiar with this? Has anyone tried chemotherapy?
I hope sharing this information may be is some help.
I try to remain positive that there are new drugs and combinations available to us.
Carrie
