daniellekha

Thank you for sharing your story as well.  I am so sorry you are waiting for news you don't think will be good.  Stinks.  I didn't hear back AGAIN today.  So we are on day 9 with no call.  And I've left messages for the doctors to please call me.  I know they are busy but this is a real, live person who is living in a state of waiting with baited breath and I'd like to move forward, one way or another.  

Here I sit, STILL waiting for the lymph node biopsy result.  It's been more than a week!  I called Hopkins today and asked the nurse to please have the doctor call me and NOTHING.  I'd like to think that this delay means it was fine and no one is bothering to tell me because it doesn't feel urgent to them but I'm about to get esophageal cancer from the acid eroding my esophagus from the anxiety.  Gah.

Trying to take deep breaths.  It's just hard. Knowing people here have gone/are going through this does help me. I feel less alone.  Seeing a few responses to my post this morning lifted my spirirts.  Thank you for taking the time to respond.

So you know exactly how I feel having kids that age!  This waiting game is torture but having people reach out to me here and tell me they are still here and fighting the good fight and doing okay gives me hope.  Thank you so much.

Knowing you are seeing the same team I will be seeing and are still here helps me breathe.  Truly.  I was hoping so much the Dr. in Radiology yesterday would say, "gee, I can't tell which nodes to biopsy" but he had no trouble zooming in the problem area identified by the dermatologist.  I'm also wondering how quickly things will move at Hopkins if this comes back as positive.  Like, days?  Or will I have to keep waiting for weeks for things to happen?