Dave G
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Dave G

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  • Replies
      • April 9, 2012 at 7:11 pm
      Dave G
      Participant

        I am down to 10mg/day from the 100 I started out at. I have had what i would call loose stool which improves as the days pass. I am planning on going down to 5mg/day following my appointment with the oncologist Wednesday. This has been ongoing ever since I began the reductions. Doctor's advice is the same and as long as things are getting better and not worse I am staying the course.

        Good Luck

        • April 9, 2012 at 7:11 pm
        Dave G
        Participant

          I am down to 10mg/day from the 100 I started out at. I have had what i would call loose stool which improves as the days pass. I am planning on going down to 5mg/day following my appointment with the oncologist Wednesday. This has been ongoing ever since I began the reductions. Doctor's advice is the same and as long as things are getting better and not worse I am staying the course.

          Good Luck

          • April 9, 2012 at 7:11 pm
          Dave G
          Participant

            I am down to 10mg/day from the 100 I started out at. I have had what i would call loose stool which improves as the days pass. I am planning on going down to 5mg/day following my appointment with the oncologist Wednesday. This has been ongoing ever since I began the reductions. Doctor's advice is the same and as long as things are getting better and not worse I am staying the course.

            Good Luck

            • February 20, 2012 at 9:09 am
            Dave G
            Participant

              Kevin,

              I also tried the Yervoy route with no luck. Then IL2 – again no luck. I'm still hoping that maybe one or both of these treatments kick in late and do some good but I can't wait on that. Going to try another trial in a week and I understand there are others but I need get off this steroid first. The way I see it why not keep getting up to bat and give it a go – what else is there to do anyway?

              Keep at it and good luck,

              Dave G

              • February 20, 2012 at 9:09 am
              Dave G
              Participant

                Kevin,

                I also tried the Yervoy route with no luck. Then IL2 – again no luck. I'm still hoping that maybe one or both of these treatments kick in late and do some good but I can't wait on that. Going to try another trial in a week and I understand there are others but I need get off this steroid first. The way I see it why not keep getting up to bat and give it a go – what else is there to do anyway?

                Keep at it and good luck,

                Dave G

                • February 20, 2012 at 9:09 am
                Dave G
                Participant

                  Kevin,

                  I also tried the Yervoy route with no luck. Then IL2 – again no luck. I'm still hoping that maybe one or both of these treatments kick in late and do some good but I can't wait on that. Going to try another trial in a week and I understand there are others but I need get off this steroid first. The way I see it why not keep getting up to bat and give it a go – what else is there to do anyway?

                  Keep at it and good luck,

                  Dave G

                  • February 19, 2012 at 1:58 pm
                  Dave G
                  Participant

                    Interferon can be tough and results are somewhat unclear from my perspective. Initially I couldn't understand why the doctors were proposing this treatment as I had the melanoma removed and scans indicated NED. I was stage 2 at the time and did opt in knowing I had great support at home and could stop the treatments at anytime. I lasted 8 months and it did knock me down quite a bit. The biggest side effect by far was the fatigue. As with all treatment options some work and some do not. The Interferon did not work in my case as I am now stage 4 liver METS. But would I do it again? Probably – but as stated in earlier replies it is a personal choice albeit not easy.

                    Dave G

                    • February 19, 2012 at 1:58 pm
                    Dave G
                    Participant

                      Interferon can be tough and results are somewhat unclear from my perspective. Initially I couldn't understand why the doctors were proposing this treatment as I had the melanoma removed and scans indicated NED. I was stage 2 at the time and did opt in knowing I had great support at home and could stop the treatments at anytime. I lasted 8 months and it did knock me down quite a bit. The biggest side effect by far was the fatigue. As with all treatment options some work and some do not. The Interferon did not work in my case as I am now stage 4 liver METS. But would I do it again? Probably – but as stated in earlier replies it is a personal choice albeit not easy.

                      Dave G

                      • February 19, 2012 at 1:58 pm
                      Dave G
                      Participant

                        Interferon can be tough and results are somewhat unclear from my perspective. Initially I couldn't understand why the doctors were proposing this treatment as I had the melanoma removed and scans indicated NED. I was stage 2 at the time and did opt in knowing I had great support at home and could stop the treatments at anytime. I lasted 8 months and it did knock me down quite a bit. The biggest side effect by far was the fatigue. As with all treatment options some work and some do not. The Interferon did not work in my case as I am now stage 4 liver METS. But would I do it again? Probably – but as stated in earlier replies it is a personal choice albeit not easy.

                        Dave G

                        • February 15, 2012 at 10:08 am
                        Dave G
                        Participant

                          Joan,

                          I completed 4 rounds of IPPY with very little side effects. Some minor fatigue and a minor rash on my arms. Otherwise all went well. Unfortunately the scans showed progression so I moved on to IL2. Now thats the one with the side effects…

                          Good Luck

                          • February 15, 2012 at 10:08 am
                          Dave G
                          Participant

                            Joan,

                            I completed 4 rounds of IPPY with very little side effects. Some minor fatigue and a minor rash on my arms. Otherwise all went well. Unfortunately the scans showed progression so I moved on to IL2. Now thats the one with the side effects…

                            Good Luck

                            • February 15, 2012 at 10:08 am
                            Dave G
                            Participant

                              Joan,

                              I completed 4 rounds of IPPY with very little side effects. Some minor fatigue and a minor rash on my arms. Otherwise all went well. Unfortunately the scans showed progression so I moved on to IL2. Now thats the one with the side effects…

                              Good Luck

                              • February 25, 2012 at 11:57 am
                              Dave G
                              Participant

                                Believe it or not I was told Crisco is the best. Fortunately I had minimal skin rash and itching from the IL2 so didn't have to try it.

                                Good Luck

                                Dave G

                                • February 25, 2012 at 11:57 am
                                Dave G
                                Participant

                                  Believe it or not I was told Crisco is the best. Fortunately I had minimal skin rash and itching from the IL2 so didn't have to try it.

                                  Good Luck

                                  Dave G

                                  • February 25, 2012 at 11:57 am
                                  Dave G
                                  Participant

                                    Believe it or not I was told Crisco is the best. Fortunately I had minimal skin rash and itching from the IL2 so didn't have to try it.

                                    Good Luck

                                    Dave G

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