David McCaw

Also, Ed Williams provided me information on an interesting trial in Salt Lake city, where they are working to getting patients that did not respond to pd1 and have got more than 40% according to an Asco report.NCT02493361, 15852, Trial of pIL-12/MK-3475 in Metastatic Melanoma, contact Tamara, (801) 587-4767,[email protected]

I am sorry, you did not pass the assessment.  I will be going through a similar exercise in Canada,  starting on April 25.  Ipi/nivo  failed for me, although i did 4 combos and 2 monos.  I have been on MEK inhibitors cotellic for two weeks,  but no shrinkage yet. I have a rare braf mutation,  k601n.  I wish you well in your journey at MSK,  I might be down there or another location if the Tils trial does not pan out. Since all i am being offered later is tvec which probably won't help my liver or lungs.  Don't give up hope.  keep going.

also if you need more support contact Annette Cyr of Melanoma Network Canada, [email protected]

Hi Janis, Ontario funds either ipi or keytruda but not both.  Follow up with your oncologist, they should know.  or get another oncologist.  

I have read that some patients have their cells stored at MD Anderson.   Below is the contact information for the lab

Chantale Bernatchez, Ph.D.
Director
Phone: 713-563-8830
Email: [email protected]

Location

The TIL Lab is located in the Center for Cancer Immunology Research (CCIR) at the South Campus of MD Anderson Cancer Center (7455 Fannin, Houston, Texas). We have a cGMP-quality laboratory where clinical-grade TIL are expanded from fresh tumor samples.

https://www.mdanderson.org/research/departments-labs-institutes/labs/til-laboratory/research.html

As Ed stated previously, it's a small world. I lived in Paul's hometown during the 70's (high school and college ). I still have family there and will be dropping in during March. I really enjoyed Paul's posts, an amazing man and will be sadly missed and as a stage 4 melanoma patient,  I must be as brave as Paul to keep living life to its fullest. My condolences to his family and friends.  Such an unfair end of  life. I was really rooting for Paul to get to the next trial. Hopefully others will continue to remember Paul, and not give up hope.  I am still reading Paul's posts, he was a real fighter / warrior and shared his thoughts openly.

Hi Anon,  here is an article written by Catherine Poole on the MIF board. Also, did you speak with Marcus Butler at Princess Margaret hospital or Pamela Ohashi.  I am also interested in the program 

http://melanomainternational.org/2015/05/til-therapy-for-melanoma-magic-bullet-or/#.WJt0CE6vC2c

Hi Anon,  here is an article written by Catherine Poole on the MIF board. Also, did you speak with Marcus Butler at Princess Margaret hospital or Pamela Ohashi.  I am also interested in the program 

http://melanomainternational.org/2015/05/til-therapy-for-melanoma-magic-bullet-or/#.WJt0CE6vC2c

Hi Anon,  here is an article written by Catherine Poole on the MIF board. Also, did you speak with Marcus Butler at Princess Margaret hospital or Pamela Ohashi.  I am also interested in the program 

http://melanomainternational.org/2015/05/til-therapy-for-melanoma-magic-bullet-or/#.WJt0CE6vC2c

I have done 4 combos,.Only fatigue and rash. They did scans at zero and week 8, unfortunately I had progression to liver and lungs. ( ( previously stage 3c with intransits on left inner thigh, after clnd on 9/29)I am scheduled to have first maintenance nivo on week 12 in 10 days. They will do another CT scan at week 15, if progression,  I will take Braf inhibitors combi V. I am hoping that I am a late responder.  I wish everyone well in their treatments and to either be NED or become NED.  I am also interested in any late responders.

I have done 4 combos,.Only fatigue and rash. They did scans at zero and week 8, unfortunately I had progression to liver and lungs. ( ( previously stage 3c with intransits on left inner thigh, after clnd on 9/29)I am scheduled to have first maintenance nivo on week 12 in 10 days. They will do another CT scan at week 15, if progression,  I will take Braf inhibitors combi V. I am hoping that I am a late responder.  I wish everyone well in their treatments and to either be NED or become NED.  I am also interested in any late responders.