Forum Replies Created
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- April 29, 2014 at 8:23 pm
I have been NED for almost 6 years after being diagnosed Stage IIIB. All I chose was surgery and have been thankful my bet has worked so far! However, there are better options now and this board can help guide you with experience. Personally, I did not choose interferon because the risks and side effects for me outweighed the small percentage that it would help. Others have made that choice and have been glad they did. You will hear this over and over and it is true – FIND a melanoma specialist! It may take extra effort to get to one but you will be glad you did. Weigh all your options and make the decisions with all the education you can taking into account your personal life and what you feel is best.
Good luck – this board can be a great support.
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- April 29, 2014 at 8:23 pm
I have been NED for almost 6 years after being diagnosed Stage IIIB. All I chose was surgery and have been thankful my bet has worked so far! However, there are better options now and this board can help guide you with experience. Personally, I did not choose interferon because the risks and side effects for me outweighed the small percentage that it would help. Others have made that choice and have been glad they did. You will hear this over and over and it is true – FIND a melanoma specialist! It may take extra effort to get to one but you will be glad you did. Weigh all your options and make the decisions with all the education you can taking into account your personal life and what you feel is best.
Good luck – this board can be a great support.
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- April 29, 2014 at 8:23 pm
I have been NED for almost 6 years after being diagnosed Stage IIIB. All I chose was surgery and have been thankful my bet has worked so far! However, there are better options now and this board can help guide you with experience. Personally, I did not choose interferon because the risks and side effects for me outweighed the small percentage that it would help. Others have made that choice and have been glad they did. You will hear this over and over and it is true – FIND a melanoma specialist! It may take extra effort to get to one but you will be glad you did. Weigh all your options and make the decisions with all the education you can taking into account your personal life and what you feel is best.
Good luck – this board can be a great support.
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- April 15, 2014 at 2:19 pm
I too am sorry for your recent diagnosis and don't ever beat yourself up for being scared! It's a scary place to be indeed but you are in the right place for support. I am constantly amazed at the strong, positive, informed and encouraging Stage IV fighters here! Oh and I should also mention – those who are healthy even at Stage IV! Lean on them as much as you can but one more word of advice that we hear often around here. Seek out a melanoma specialist if you have not already. THAT alone can make all the difference in the world – even if it is just for some peace of mind and even if you have to travel to do so. I will be thinking about you as you go through this scary time.
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- April 15, 2014 at 2:19 pm
I too am sorry for your recent diagnosis and don't ever beat yourself up for being scared! It's a scary place to be indeed but you are in the right place for support. I am constantly amazed at the strong, positive, informed and encouraging Stage IV fighters here! Oh and I should also mention – those who are healthy even at Stage IV! Lean on them as much as you can but one more word of advice that we hear often around here. Seek out a melanoma specialist if you have not already. THAT alone can make all the difference in the world – even if it is just for some peace of mind and even if you have to travel to do so. I will be thinking about you as you go through this scary time.
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- April 15, 2014 at 2:19 pm
I too am sorry for your recent diagnosis and don't ever beat yourself up for being scared! It's a scary place to be indeed but you are in the right place for support. I am constantly amazed at the strong, positive, informed and encouraging Stage IV fighters here! Oh and I should also mention – those who are healthy even at Stage IV! Lean on them as much as you can but one more word of advice that we hear often around here. Seek out a melanoma specialist if you have not already. THAT alone can make all the difference in the world – even if it is just for some peace of mind and even if you have to travel to do so. I will be thinking about you as you go through this scary time.
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- February 20, 2015 at 5:08 am
I saw Dr. David Polsky at NYU – he has 2 offices. They were all great and he knew more about melanoma than anyone I've seen as far as dermatologists. They didn't take my BCBS because I live in NC but my son sees this doctor and I thought as a Stage III NED patient, it was worth getting checked out by someone like this. The place is called Ronald O. Perelman Dept of Dermatology.
I got in pretty quickly as I was just there visiting.
Good luck.
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- February 20, 2015 at 5:08 am
I saw Dr. David Polsky at NYU – he has 2 offices. They were all great and he knew more about melanoma than anyone I've seen as far as dermatologists. They didn't take my BCBS because I live in NC but my son sees this doctor and I thought as a Stage III NED patient, it was worth getting checked out by someone like this. The place is called Ronald O. Perelman Dept of Dermatology.
I got in pretty quickly as I was just there visiting.
Good luck.
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- February 20, 2015 at 5:08 am
I saw Dr. David Polsky at NYU – he has 2 offices. They were all great and he knew more about melanoma than anyone I've seen as far as dermatologists. They didn't take my BCBS because I live in NC but my son sees this doctor and I thought as a Stage III NED patient, it was worth getting checked out by someone like this. The place is called Ronald O. Perelman Dept of Dermatology.
I got in pretty quickly as I was just there visiting.
Good luck.
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- March 18, 2014 at 2:50 pm
I too am a patient of Dr. Amin's and I live in Asheville. It is well worth the drive to see this man and I've been very pleased with the whole Carolina's Health System.
debbie
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- March 18, 2014 at 2:50 pm
I too am a patient of Dr. Amin's and I live in Asheville. It is well worth the drive to see this man and I've been very pleased with the whole Carolina's Health System.
debbie
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- March 18, 2014 at 2:50 pm
I too am a patient of Dr. Amin's and I live in Asheville. It is well worth the drive to see this man and I've been very pleased with the whole Carolina's Health System.
debbie
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