Delores T.

Hi, just doing some research on that trial, did your niece do it?  We hope my husband can get into another trial where you get interferon or keytruda, but it was temporarily postponed and our 98 day window of opportunity is getting smaller and smaller.  Otherwise, he will reluctantly do interferon.  He had primary tumor stage 2b with ulceration in 2014 then recurrence in lymph nodes in May 2016 with two malignant tumours after his neck dissection in June.  Looking for the best treatment plan moving forward…

Any updates would be greatly appreciated.

Kind regards, 

Delores and George

Hi, just doing some research on that trial, did your niece do it?  We hope my husband can get into another trial where you get interferon or keytruda, but it was temporarily postponed and our 98 day window of opportunity is getting smaller and smaller.  Otherwise, he will reluctantly do interferon.  He had primary tumor stage 2b with ulceration in 2014 then recurrence in lymph nodes in May 2016 with two malignant tumours after his neck dissection in June.  Looking for the best treatment plan moving forward…

Any updates would be greatly appreciated.

Kind regards, 

Delores and George

Hi, just doing some research on that trial, did your niece do it?  We hope my husband can get into another trial where you get interferon or keytruda, but it was temporarily postponed and our 98 day window of opportunity is getting smaller and smaller.  Otherwise, he will reluctantly do interferon.  He had primary tumor stage 2b with ulceration in 2014 then recurrence in lymph nodes in May 2016 with two malignant tumours after his neck dissection in June.  Looking for the best treatment plan moving forward…

Any updates would be greatly appreciated.

Kind regards, 

Delores and George

I am stage 3c,had neck dissection in June  2016, 2 tumors removed successfully. Onc recommended interferon as treatment option  but we found the MEK trail online in moncton, NB.  Luck was on my side received keytruda instead of interfeon. 7 injection so far – fatigue,dry skin, minor headaches,upset stomach are my side effects. Currently I am NED and coping Well. If you can find a trail it is a good option, each trail has different conditions  for entry, but it worth checking out.  Good luck

I am stage 3c,had neck dissection in June  2016, 2 tumors removed successfully. Onc recommended interferon as treatment option  but we found the MEK trail online in moncton, NB.  Luck was on my side received keytruda instead of interfeon. 7 injection so far – fatigue,dry skin, minor headaches,upset stomach are my side effects. Currently I am NED and coping Well. If you can find a trail it is a good option, each trail has different conditions  for entry, but it worth checking out.  Good luck

I am stage 3c,had neck dissection in June  2016, 2 tumors removed successfully. Onc recommended interferon as treatment option  but we found the MEK trail online in moncton, NB.  Luck was on my side received keytruda instead of interfeon. 7 injection so far – fatigue,dry skin, minor headaches,upset stomach are my side effects. Currently I am NED and coping Well. If you can find a trail it is a good option, each trail has different conditions  for entry, but it worth checking out.  Good luck

Oops that was suppose to say 25 sessions of radiation

Oops that was suppose to say 25 sessions of radiation

Oops that was suppose to say 25 sessions of radiation

Hi Peggy,

Currently, my husband is stage 3b after neck dissection with two positive malignant lymph nodes.  We just got a call from the radiation oncologist saying that his margins were ok but he has extra capsular extension on these nodes, so she is recommending 5x sessions of radiation to try and stop recurrence in the neck area.   His initial primary was on his scalp and it was ulcerated with a stage 2 T2bNOMO, but now with the recurrence he moves up in stages.  Our own oncologist wants us to go on interferon as well but we are not convinced with its overall benefit, losing out on a year of quality life.  Were your tumours ulcerated or did you have the pathology indicating the ECE?  We are wondering about the same trial just to try and get the benefit of keytruda, please advise what your decision will be.  We are also waiting for a second opinion from another oncologist in Torinto who away on vacation till early August, but I believe you have 90 days from surgery date to get into trial.  That trial originally was comparing interferon, ipi and pem but since has taken out out ipi so it is a 50-50 chance for the remaining options.

Kind regards and we wishi you all the best, 

Delores

Hi Peggy,

Currently, my husband is stage 3b after neck dissection with two positive malignant lymph nodes.  We just got a call from the radiation oncologist saying that his margins were ok but he has extra capsular extension on these nodes, so she is recommending 5x sessions of radiation to try and stop recurrence in the neck area.   His initial primary was on his scalp and it was ulcerated with a stage 2 T2bNOMO, but now with the recurrence he moves up in stages.  Our own oncologist wants us to go on interferon as well but we are not convinced with its overall benefit, losing out on a year of quality life.  Were your tumours ulcerated or did you have the pathology indicating the ECE?  We are wondering about the same trial just to try and get the benefit of keytruda, please advise what your decision will be.  We are also waiting for a second opinion from another oncologist in Torinto who away on vacation till early August, but I believe you have 90 days from surgery date to get into trial.  That trial originally was comparing interferon, ipi and pem but since has taken out out ipi so it is a 50-50 chance for the remaining options.

Kind regards and we wishi you all the best, 

Delores

Hi Peggy,

Currently, my husband is stage 3b after neck dissection with two positive malignant lymph nodes.  We just got a call from the radiation oncologist saying that his margins were ok but he has extra capsular extension on these nodes, so she is recommending 5x sessions of radiation to try and stop recurrence in the neck area.   His initial primary was on his scalp and it was ulcerated with a stage 2 T2bNOMO, but now with the recurrence he moves up in stages.  Our own oncologist wants us to go on interferon as well but we are not convinced with its overall benefit, losing out on a year of quality life.  Were your tumours ulcerated or did you have the pathology indicating the ECE?  We are wondering about the same trial just to try and get the benefit of keytruda, please advise what your decision will be.  We are also waiting for a second opinion from another oncologist in Torinto who away on vacation till early August, but I believe you have 90 days from surgery date to get into trial.  That trial originally was comparing interferon, ipi and pem but since has taken out out ipi so it is a 50-50 chance for the remaining options.

Kind regards and we wishi you all the best, 

Delores

Hi Steve – just wondering if you did interferon at all?  We are looking into a trial comparing interferon, Venroy or Keytruda but not sure if taking the immunotherapy drugs helps kill microscopic cells left behind from sugary ? My husband had a primary stage 2b scalp tumor with recent recurrence in neck.  Two of the twelve nodes removed in followup surgery were malignant.  We are trying to evaluate taking either radiation in neck, trying a trial in New Brunswick where we are from or taking the watch and observe approach???  Any advice?

Hi Steve – just wondering if you did interferon at all?  We are looking into a trial comparing interferon, Venroy or Keytruda but not sure if taking the immunotherapy drugs helps kill microscopic cells left behind from sugary ? My husband had a primary stage 2b scalp tumor with recent recurrence in neck.  Two of the twelve nodes removed in followup surgery were malignant.  We are trying to evaluate taking either radiation in neck, trying a trial in New Brunswick where we are from or taking the watch and observe approach???  Any advice?

Hi Steve – just wondering if you did interferon at all?  We are looking into a trial comparing interferon, Venroy or Keytruda but not sure if taking the immunotherapy drugs helps kill microscopic cells left behind from sugary ? My husband had a primary stage 2b scalp tumor with recent recurrence in neck.  Two of the twelve nodes removed in followup surgery were malignant.  We are trying to evaluate taking either radiation in neck, trying a trial in New Brunswick where we are from or taking the watch and observe approach???  Any advice?