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dmackccr

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      dmackccr
      Participant

        Thanks for the reply.

        I'm on here trying to research and learn from others so I can better deal with this and advise my son.  He is 28 and was diagnosed last month.

        Praying that a clinical trial will open up for 3a.  It's frustrating knowing there is a treatment that is proving to be so effective, yet we can't get it. 

        If you don't mind me asking, how long have you been on the Interferon? 

        dmackccr
        Participant

          Thanks for the reply.

          I'm on here trying to research and learn from others so I can better deal with this and advise my son.  He is 28 and was diagnosed last month.

          Praying that a clinical trial will open up for 3a.  It's frustrating knowing there is a treatment that is proving to be so effective, yet we can't get it. 

          If you don't mind me asking, how long have you been on the Interferon? 

          dmackccr
          Participant

            Thanks for the reply.

            I'm on here trying to research and learn from others so I can better deal with this and advise my son.  He is 28 and was diagnosed last month.

            Praying that a clinical trial will open up for 3a.  It's frustrating knowing there is a treatment that is proving to be so effective, yet we can't get it. 

            If you don't mind me asking, how long have you been on the Interferon? 

            dmackccr
            Participant

              Thank you for your reply.  From what I understand, if it is 3B or C, the clinical trial would be covered (paid for) by the medical group doing the study. I don't understand what you mean by "non-resectable vs. resected disease – the site where the melanoma showed up was resected, and then the sentinel lymph node – but without further surgery (removing the remaining nodes in the groin) the staging remains 3A – which means ineligible forcurrent clinical trials. 

              We were ready to go forward with the CLND, but had a blood clot form in the leg where the surgery was performed.  In the meantime, the study was realsed from ASCO.  The surgical oncologist told us about the study, so we were leaning towards not having the CLND.  Then we met with the medical oncologist – once he realized we are dealing with Stage 3A (no trials available), he said he would have the CLND. So, just trying to figure out which way to go … 

              dmackccr
              Participant

                Thank you for your reply.  From what I understand, if it is 3B or C, the clinical trial would be covered (paid for) by the medical group doing the study. I don't understand what you mean by "non-resectable vs. resected disease – the site where the melanoma showed up was resected, and then the sentinel lymph node – but without further surgery (removing the remaining nodes in the groin) the staging remains 3A – which means ineligible forcurrent clinical trials. 

                We were ready to go forward with the CLND, but had a blood clot form in the leg where the surgery was performed.  In the meantime, the study was realsed from ASCO.  The surgical oncologist told us about the study, so we were leaning towards not having the CLND.  Then we met with the medical oncologist – once he realized we are dealing with Stage 3A (no trials available), he said he would have the CLND. So, just trying to figure out which way to go … 

                dmackccr
                Participant

                  Thank you for your reply.  From what I understand, if it is 3B or C, the clinical trial would be covered (paid for) by the medical group doing the study. I don't understand what you mean by "non-resectable vs. resected disease – the site where the melanoma showed up was resected, and then the sentinel lymph node – but without further surgery (removing the remaining nodes in the groin) the staging remains 3A – which means ineligible forcurrent clinical trials. 

                  We were ready to go forward with the CLND, but had a blood clot form in the leg where the surgery was performed.  In the meantime, the study was realsed from ASCO.  The surgical oncologist told us about the study, so we were leaning towards not having the CLND.  Then we met with the medical oncologist – once he realized we are dealing with Stage 3A (no trials available), he said he would have the CLND. So, just trying to figure out which way to go … 

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