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donswife

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      donswife
      Participant

        Hi – I am also surprised to hear that there is nothing that they can do. My husband's first site was his leg. He had a perfusion and infusion on the leg. It cleared all the tumours in the leg. Unfortunately, the cancer has spread above the leg and we are still faced with several options. His melanoma was treated at the Roswell Cancer Insitute in Buffalo. They are amazing. You must contact them. We also went to the Dana Farber Institute in Boston. They agreed with the leg treatment in Buffalo. We are from toronto Canada and can't say enough about our Amercian friends.

        donswife
        Participant

          Hi – I am also surprised to hear that there is nothing that they can do. My husband's first site was his leg. He had a perfusion and infusion on the leg. It cleared all the tumours in the leg. Unfortunately, the cancer has spread above the leg and we are still faced with several options. His melanoma was treated at the Roswell Cancer Insitute in Buffalo. They are amazing. You must contact them. We also went to the Dana Farber Institute in Boston. They agreed with the leg treatment in Buffalo. We are from toronto Canada and can't say enough about our Amercian friends.

          donswife
          Participant

            Thank you so much for this invaluable information. We have just started all of our appointments and information gathering. It seems to be a troublesome decision between the two. I am just new at this so any information is the beginning of our learing and hopeful recovery.

            donswife

            donswife
            Participant

              Thank you so much for this invaluable information. We have just started all of our appointments and information gathering. It seems to be a troublesome decision between the two. I am just new at this so any information is the beginning of our learing and hopeful recovery.

              donswife

              donswife
              Participant

                Hi – we found out today that our clinical trial (if my husband was approved to participate) is GSK 1120212 in combination with BKM 120. Do you have any information about that? Anything would help and thank you ! donswife.

                donswife
                Participant

                  Hi – we found out today that our clinical trial (if my husband was approved to participate) is GSK 1120212 in combination with BKM 120. Do you have any information about that? Anything would help and thank you ! donswife.

                  donswife
                  Participant

                    Thank you very much!  We are meeting with the doctor again tomorrow so I will be sure to ask and update the post.

                    donswife
                    Participant

                      Thank you very much!  We are meeting with the doctor again tomorrow so I will be sure to ask and update the post.

                      donswife
                      Participant

                        Thank you so much Sherrron!  I really appreciate your reply and kind words.

                        donswife
                        Participant

                          Thank you so much Sherrron!  I really appreciate your reply and kind words.

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                      The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

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