The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Elliemae216

Forum Replies Created

Viewing 5 reply threads
  • Replies
      Elliemae216
      Participant

        You have every right to be frightened. I was dx last November with Stage IA, on my back.  I'm not 25, more like 51 and was scared to death.  I too have light skin, lots of freckles and moles and blonde (well, now it's colored blond). My dermatologist referred me to an oncologist and I see her every 6 months, and the derm every 3 months.  This past visit, the dermatologist taught me how to check my lymp nodes, which I now do month along with my self skin check.   I would just be frank with your doctor, express you concerns and fears. I had a mental breakdown with my doctor several months ago.  They have a lot of answers, and it is ok for you to question their decisions.  It is your body.  I worry every day of a reoccurance and wonder if there is a cell that got away.  I do suffer from Migraines, and I've had a couple of MRI's done since my surgery.  My doc had me see my GYN to check my private parts, and then follow up with my eye doc. 

        Just to tell you something funny about being scared…. the day of my surgery, my husband was with me, but my mother insisted on being there too.  After the procedure, and enduring what had just happened to me, I began to cry like a baby…. remember… I'm 50…. and wanted my mother.  The nurse ran out to the waiting room and got my mother.  Oh, I was so glad she was there. 

        Be glad you had a good eye and noticed a difference.  Keep doing your self skin checks and if you see anything that changes or concerns you, dial up that doc! 

        Wishing you the best. 

         

        Elliemae216
        Participant

          You have every right to be frightened. I was dx last November with Stage IA, on my back.  I'm not 25, more like 51 and was scared to death.  I too have light skin, lots of freckles and moles and blonde (well, now it's colored blond). My dermatologist referred me to an oncologist and I see her every 6 months, and the derm every 3 months.  This past visit, the dermatologist taught me how to check my lymp nodes, which I now do month along with my self skin check.   I would just be frank with your doctor, express you concerns and fears. I had a mental breakdown with my doctor several months ago.  They have a lot of answers, and it is ok for you to question their decisions.  It is your body.  I worry every day of a reoccurance and wonder if there is a cell that got away.  I do suffer from Migraines, and I've had a couple of MRI's done since my surgery.  My doc had me see my GYN to check my private parts, and then follow up with my eye doc. 

          Just to tell you something funny about being scared…. the day of my surgery, my husband was with me, but my mother insisted on being there too.  After the procedure, and enduring what had just happened to me, I began to cry like a baby…. remember… I'm 50…. and wanted my mother.  The nurse ran out to the waiting room and got my mother.  Oh, I was so glad she was there. 

          Be glad you had a good eye and noticed a difference.  Keep doing your self skin checks and if you see anything that changes or concerns you, dial up that doc! 

          Wishing you the best. 

           

          Elliemae216
          Participant

            You have every right to be frightened. I was dx last November with Stage IA, on my back.  I'm not 25, more like 51 and was scared to death.  I too have light skin, lots of freckles and moles and blonde (well, now it's colored blond). My dermatologist referred me to an oncologist and I see her every 6 months, and the derm every 3 months.  This past visit, the dermatologist taught me how to check my lymp nodes, which I now do month along with my self skin check.   I would just be frank with your doctor, express you concerns and fears. I had a mental breakdown with my doctor several months ago.  They have a lot of answers, and it is ok for you to question their decisions.  It is your body.  I worry every day of a reoccurance and wonder if there is a cell that got away.  I do suffer from Migraines, and I've had a couple of MRI's done since my surgery.  My doc had me see my GYN to check my private parts, and then follow up with my eye doc. 

            Just to tell you something funny about being scared…. the day of my surgery, my husband was with me, but my mother insisted on being there too.  After the procedure, and enduring what had just happened to me, I began to cry like a baby…. remember… I'm 50…. and wanted my mother.  The nurse ran out to the waiting room and got my mother.  Oh, I was so glad she was there. 

            Be glad you had a good eye and noticed a difference.  Keep doing your self skin checks and if you see anything that changes or concerns you, dial up that doc! 

            Wishing you the best. 

             

            Elliemae216
            Participant

              I am very sorry to hear of your diagnosis.  I can comment about the nerve pain, as I too had the same issue.  My dermatologist describe it this way….  Our nerves  constantly communicate with each other.  When we had our surgery to remove a tumor, the nerves were also cut, thus stopping the nerves talking to each other.  The nerve now has a ridge to cross, and it will take time for the nerve to build a bridge to the other side. In the mean time, the nerve tries to communicate but is not receiving a response.   I hope that made sense to you.  My surgery was last December.  My Melanoma was located on my back in the upper mid region.  It was very difficult for me not to tear my wound, which I did.  I recall rolling over one night in bed and feeling the wound tear. It was horrible pain, and took months to heal.  The nerve portion is much better today but occassionally feel a little burning.  Also, I see the dermatologist every 3 months and the oncologist on rotating months.  Last week, my dermatologist taught me how to start doing lymph node checks.  I believe it's everyone Melanoma survivor's fear that their melanoma has spread… that's why I am on this site today…  looking for answers.  You are not alone in your fears and questions. 

               

              Elliemae216
              Participant

                I am very sorry to hear of your diagnosis.  I can comment about the nerve pain, as I too had the same issue.  My dermatologist describe it this way….  Our nerves  constantly communicate with each other.  When we had our surgery to remove a tumor, the nerves were also cut, thus stopping the nerves talking to each other.  The nerve now has a ridge to cross, and it will take time for the nerve to build a bridge to the other side. In the mean time, the nerve tries to communicate but is not receiving a response.   I hope that made sense to you.  My surgery was last December.  My Melanoma was located on my back in the upper mid region.  It was very difficult for me not to tear my wound, which I did.  I recall rolling over one night in bed and feeling the wound tear. It was horrible pain, and took months to heal.  The nerve portion is much better today but occassionally feel a little burning.  Also, I see the dermatologist every 3 months and the oncologist on rotating months.  Last week, my dermatologist taught me how to start doing lymph node checks.  I believe it's everyone Melanoma survivor's fear that their melanoma has spread… that's why I am on this site today…  looking for answers.  You are not alone in your fears and questions. 

                 

                Elliemae216
                Participant

                  I am very sorry to hear of your diagnosis.  I can comment about the nerve pain, as I too had the same issue.  My dermatologist describe it this way….  Our nerves  constantly communicate with each other.  When we had our surgery to remove a tumor, the nerves were also cut, thus stopping the nerves talking to each other.  The nerve now has a ridge to cross, and it will take time for the nerve to build a bridge to the other side. In the mean time, the nerve tries to communicate but is not receiving a response.   I hope that made sense to you.  My surgery was last December.  My Melanoma was located on my back in the upper mid region.  It was very difficult for me not to tear my wound, which I did.  I recall rolling over one night in bed and feeling the wound tear. It was horrible pain, and took months to heal.  The nerve portion is much better today but occassionally feel a little burning.  Also, I see the dermatologist every 3 months and the oncologist on rotating months.  Last week, my dermatologist taught me how to start doing lymph node checks.  I believe it's everyone Melanoma survivor's fear that their melanoma has spread… that's why I am on this site today…  looking for answers.  You are not alone in your fears and questions. 

                   

              Viewing 5 reply threads
              About the MRF Patient Forum

              The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

              The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.