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EpicEpt
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EpicEpt

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      • June 18, 2023 at 1:56 pm
      EpicEpt
      Participant
        Thanks tkoss! I’ve moved, but just beginning the process of switching to Medicaid. Hopefully, that won’t be a problem as this is not Texas (I guess they want to take us back to survival of the fittest?).

        Sorry to digress. I’m a little confused as to why your LNs swelled. Was it metastasis or a result of your therapy? And what about the headache? Was that related to the immunotherapy? I’m also leary of doctors who won’t level with me on what to expect, or if they honestly don’t know. It’s absolutely true that we should not try to be our own doctors- but that’s not the same as being an informed patient with options. Steve Jobs was a cautionary example of this. He tried to cure his pancreatic cancer with herbs and special diets. Nino months later it had spread to his liver. He received a liver transplant but died soon afterward.

        I only bring this up because he refused to have a relationship with his medical team, took on quack cures, and he lost the chance for a cure, or at least a long-term remission. My step-sister on the other hand got stage 3 melanoma 13 years ago, had surgery, and with regular checkups has had no recurrence. In those days of course, immunotherapy was not an option. As she has had no recurrence, they haven’t suggested putting her on it now.

        • May 4, 2023 at 11:56 am
        EpicEpt
        Participant
          Some weeks later– and of course (!) I’ll do the course. Does anyone know, however, whether starting three months out (recommended within three months of surgery) or six months, say, makes a difference? I’m on Medicaid and moving back to my home state. I hope my insurance switchover will be smooth but it may not be…
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