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ErikaHouston2

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      ErikaHouston2
      Participant

        I took Entocort for about 7 months for my Crohn's disease. It is not a systemic steroid, it is basically GI tract specific. It is estimated only 5 to 10% gets into your blood flow.  My Dr. described it as almost coating your GI tract with a steroid cream, vs. like Prednisone which is systemic and causes all the horrible side effects like moon face, moodiness, etc.

        There was no concern with this drug and my melanoma history.

        I now take other, stronger immune system suppressents and there is more concern. Unfortunately for me, I had to pick the lesser of two evils, and get my Crohn's disease under control so I now take Imuran (Entocort wasn't working).

        In your case, I think you should have nothing to worry about since it is not a systemic drug.

        Good luck.

         

        ErikaHouston2
        Participant

          I took Entocort for about 7 months for my Crohn's disease. It is not a systemic steroid, it is basically GI tract specific. It is estimated only 5 to 10% gets into your blood flow.  My Dr. described it as almost coating your GI tract with a steroid cream, vs. like Prednisone which is systemic and causes all the horrible side effects like moon face, moodiness, etc.

          There was no concern with this drug and my melanoma history.

          I now take other, stronger immune system suppressents and there is more concern. Unfortunately for me, I had to pick the lesser of two evils, and get my Crohn's disease under control so I now take Imuran (Entocort wasn't working).

          In your case, I think you should have nothing to worry about since it is not a systemic drug.

          Good luck.

           

          ErikaHouston2
          Participant

            I took Entocort for about 7 months for my Crohn's disease. It is not a systemic steroid, it is basically GI tract specific. It is estimated only 5 to 10% gets into your blood flow.  My Dr. described it as almost coating your GI tract with a steroid cream, vs. like Prednisone which is systemic and causes all the horrible side effects like moon face, moodiness, etc.

            There was no concern with this drug and my melanoma history.

            I now take other, stronger immune system suppressents and there is more concern. Unfortunately for me, I had to pick the lesser of two evils, and get my Crohn's disease under control so I now take Imuran (Entocort wasn't working).

            In your case, I think you should have nothing to worry about since it is not a systemic drug.

            Good luck.

             

            ErikaHouston2
            Participant

              I don't think you'd find a Dr. that would even offer you further treatment for a stage I. You did EXACTLY what you were supposed to do.

              I was diagnosed with Stage IA in Oct '08  (.65mm).  At the time of diagnosis I had a 6 month old.  My Dr's did not tell me to wait to get pregnant.

              I got pregnant in August of '09 and now have a beautiful 10 month old. Wouldn't change it for the world. I did go to the derm every 3 months during the pregnancy.

               You're very fortunate to have caught the melanoma so early. Get busy having another baby :-).

              ErikaHouston2
              Participant

                I don't think you'd find a Dr. that would even offer you further treatment for a stage I. You did EXACTLY what you were supposed to do.

                I was diagnosed with Stage IA in Oct '08  (.65mm).  At the time of diagnosis I had a 6 month old.  My Dr's did not tell me to wait to get pregnant.

                I got pregnant in August of '09 and now have a beautiful 10 month old. Wouldn't change it for the world. I did go to the derm every 3 months during the pregnancy.

                 You're very fortunate to have caught the melanoma so early. Get busy having another baby :-).

                ErikaHouston2
                Participant

                  I was breastfeeding a 5 month old at my original diagnosis. Kept breastfeeding a few months more. I went on to have another baby and also breastfed him. So glad that you caught this early and it's isolated. It's been over 2 years since my original (stage I) was found.

                  Enjoy your children and keep breastfeeding!

                  ErikaHouston2
                  Participant

                    I was breastfeeding a 5 month old at my original diagnosis. Kept breastfeeding a few months more. I went on to have another baby and also breastfed him. So glad that you caught this early and it's isolated. It's been over 2 years since my original (stage I) was found.

                    Enjoy your children and keep breastfeeding!

                    ErikaHouston2
                    Participant

                      Hi Lori, I am so sorry I am just responding to this. I actually had googled the two words (crohn's/ melanoma) and this post came up and I realized that my account is linked to an old email address that I no longer use!  I am doing great. I have had no new activity related to melanoma since my original primary in 2008. I did have to move onto more aggressive drugs for the Crohn's. I have been on Imuran for 3.5 years and it has successfully but my Crohn's in remission. It's not ideal to have a supressed immune system but I think it is better than the next step of drugs (i.e. Remicade, Cimzia, etc.).  I am at peace with it because I needed to live my life and stay out of the hospital and this drug appears to have done that.  How have you done? What are you taking these days for your Crohn's?

                       

                      ErikaHouston2
                      Participant

                        Hi Lori, I am so sorry I am just responding to this. I actually had googled the two words (crohn's/ melanoma) and this post came up and I realized that my account is linked to an old email address that I no longer use!  I am doing great. I have had no new activity related to melanoma since my original primary in 2008. I did have to move onto more aggressive drugs for the Crohn's. I have been on Imuran for 3.5 years and it has successfully but my Crohn's in remission. It's not ideal to have a supressed immune system but I think it is better than the next step of drugs (i.e. Remicade, Cimzia, etc.).  I am at peace with it because I needed to live my life and stay out of the hospital and this drug appears to have done that.  How have you done? What are you taking these days for your Crohn's?

                         

                        ErikaHouston2
                        Participant

                          Hi Lori, I am so sorry I am just responding to this. I actually had googled the two words (crohn's/ melanoma) and this post came up and I realized that my account is linked to an old email address that I no longer use!  I am doing great. I have had no new activity related to melanoma since my original primary in 2008. I did have to move onto more aggressive drugs for the Crohn's. I have been on Imuran for 3.5 years and it has successfully but my Crohn's in remission. It's not ideal to have a supressed immune system but I think it is better than the next step of drugs (i.e. Remicade, Cimzia, etc.).  I am at peace with it because I needed to live my life and stay out of the hospital and this drug appears to have done that.  How have you done? What are you taking these days for your Crohn's?

                           

                          ErikaHouston2
                          Participant
                            Me! I was diagnosed with stage I in 2008 and Crohn’s in 2010. I would LOVE to talk to you !
                            ErikaHouston2
                            Participant
                              Me! I was diagnosed with stage I in 2008 and Crohn’s in 2010. I would LOVE to talk to you !
                              ErikaHouston2
                              Participant
                                Me! I was diagnosed with stage I in 2008 and Crohn’s in 2010. I would LOVE to talk to you !
                                ErikaHouston2
                                Participant

                                  Thank you for the information. I've now consulted with two other specialists and both agreed I should not ever go on a TNF blocker. So I'm glad I pushed the issue and questioned outside of my GI Dr. It is rather scary how much of this healthcare stuff we have to take in our own hands..minus the medical degree. I appreciate your input and wish your brother all the best.

                                  ErikaHouston2
                                  Participant

                                    Thank you for the information. I've now consulted with two other specialists and both agreed I should not ever go on a TNF blocker. So I'm glad I pushed the issue and questioned outside of my GI Dr. It is rather scary how much of this healthcare stuff we have to take in our own hands..minus the medical degree. I appreciate your input and wish your brother all the best.

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