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FaithRun

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      FaithRun
      Participant

        I am currently on Mek/Taf for my melanoma.  As soon as I found out that it was metastatic I canged my diet and started taking vit C, D3, K, Magnesium and Zinc.  I cut out refined sugar and processed foods. I try to make a protein smoothie every day (whey protein, yogurt, peanut butter, berries, macha, green superfoods poweder, chia and flax, ice) and a fresh juice from the juicer.  I feel that these changes not only have helped slow the cancer down but helps my body heal itself better.  Once I started the Mek/Taf (5 days ago) I have had a great response.  Aside from one day of horrible headaches and fever I feel that my vitimins and diet have greatly assisted me in my healing and my ability to respond well to the treatment. 

        I would say, keep doing what you are doing.  Research what would be good for you.  If you want to look into the sups I am taking and see what you think would work best for you.  And as always, keep your Dr in the loop.

        I hope all goes well for you.

        Charron

         

        FaithRun
        Participant

          BD,

          Good on you for being persistant and going in and getting the testing done in a reasonable time frame.  My dermatologist also said the same thing about my melanoma when she sent it in for testing.  I think it is their way of saying "I can't say Yes or No until the results come back"  The important thing is that they did notice the difference and biopsied it. 

          I hope all goes well with your surgery and your sentinel nodes come back clear. 

          Charron

          FaithRun
          Participant

            I would be persistent with the DR and call daily or weekly to see if they have any cancellations that you can get in.  Let them know that you are very concerned.  Keep track of any changes in this and also keep track of the lotions, soaps, and perfumes that you are using in that area.  Some of those things or combination of things can cause irritation.  Try not to stress out too much about it because stress can make your reaction worse.  Have you talked to your primary physician yet?  They may be able to refer you to a dermatologist and get you in sooner.  (just a thought)  From your description it does not sound like a melanoma, however, it could be something that needs to be looked at like a SCC or a BCC since it is pink and raw.  I will hope for your sake that it is contact dermatitis and you can walk away from this with less stress. 

            I hope all turns out well for you. 

            FaithRun
            Participant

              I also hope and pray that this is just a blue nevi.  Keep your head up and stay positive.  A positive attitude and low stress is imperitive.  I remember when I had my mole and it became irritated to the point that I had to go to the dermatologist.  I researched all the things it could be and scared myself out of my skin.  I had to stop and take a step away and say to myself.  "It is not something to worry about UNTIL it IS something to worry about."  There are many what if's in life.  Focus on the now.  When a bump comes in the road have a plan but don't always worry that a bump is right around the corner. 

              I hope all works out for you.

              FaithRun
              Participant

                So sorry to hear this.  I will keep you and your loved ones in my positive thoughts and prayers.

                FaithRun
                Participant
                  Did you receieve my email?
                  FaithRun
                  Participant
                    Hi Christine! We can pm, since i have a feeling that there will be a lot of conversation. Then we can just post weekly updates on the forum for any hiligts that would be beneficial for the rest of the community too. I’ll see if I can find a way to PM you through this.

                    FaithRun
                    Participant
                      Thank you for the insight. I have been wondering about the hair loss. I have over 2 dozen nodules (skin tumors) in my scalp and I will be curious to see if treatment will effect that area due to the concentration there. Was there anything that helped avoid the coughing? My sternum is very weak and I have fractured it last month just by coughing. If there is a way to avoid another fracture I would be more than happy to try.
                      I hope you and your wife’s journey continue with lots of successes and joy.
                      FaithRun
                      Participant
                        Hi Christine!
                        I would be glad to share notes and experiences in this treatment. I will also feel less “alone”. This forum community has really helped bring more information to the surface and make it less of a mystery. I do just want to get started and really kick this crud. I am nervous as well because of some of the listed side effects but just hope that I can manage them through diet and plain perseverance. I will be only 3 days behind starting treatment from you so hopefully we can support and cheer each other on as well as swap recipes for healthy snacks (if your into that) Have a great weekend!
                        FaithRun
                        Participant
                          Thank you! I have read the articles and am glad to have more information in my Arsenal. (I’m also crafty, but my sewing machine needs a good dusting off and service… I have a feeling I may have some time on my hands over the next year.)
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