Thank you all for responding and my apologies for not updating sooner. This month has been the worst yet. I am so scared for him my heart is breaking. He had his MRI, then PET and CAT. Nothing detected. The mystery infusion was Morphine. He felt better. I picked up his Norco on Thursday. He had to defer his 6th Opdivo 480 infusion yesterday as he is not feeling well at all. The Drs have not given us a clear concise or definitive diagnosis on the lump under his right ear. Today his steroids were picked up. He has not started them yet. I hope he starts feeling better. I am so scared for him. His appetite is not good, he is still sleeping most days. How do we know the Opdivo is working? Is it just making him sicker? We meet with the main Oncologist and his surgeon on Nov 12th at the Melanoma Clinic in San Francisco. Dr. Kashani and Dr. Leong have been amazing. His treatment Onc in Sac is very good too. I just feel like we are missing something? Hoping the Pred helps….. we shall see. We will be 1/2 way through the one year regimen with infusion 6 as soon as he is healthy enough to do it. How would we know if this working? I see significant quality of life issues. Extreme fatigue, we got the rash under control with steroid creams, nausea, body aches, headaches. I am trying so hard to be strong but I am so scared for him. Pr I hate this stupid nightmare disease. Since he was staged 3C after initial surgery with the axillary node 2 lit, is it progressing? I know he was sick long before diagnosis, I felt it and he was fatigued since last year. How else could the tumor be 5.5 mm HUGe! So many questions. Sending hugs and prayers to all.
