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FrankB
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FrankB

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      • June 10, 2016 at 9:13 pm
      FrankB
      Participant

        I'm also new, worried and scared. Just got diagnosed about 3 weeks ago, no stage yet. Probably gonna be pretty bad. It's in my infra orbital nerve. I'm at john Hopkins so hopefully have some good doctors. I feel your worry because when your talking about it people have no idea how bad it is. I usually hear, my mother had one cut off her arm she is fine. I'm totally scared to death. I can read and what I read about mine is very bad results. Hoping for a miracle and hopefully God will see me through. Good luck with yours. You for sure are not alone. 

        Frank

         

        • June 10, 2016 at 9:13 pm
        FrankB
        Participant

          I'm also new, worried and scared. Just got diagnosed about 3 weeks ago, no stage yet. Probably gonna be pretty bad. It's in my infra orbital nerve. I'm at john Hopkins so hopefully have some good doctors. I feel your worry because when your talking about it people have no idea how bad it is. I usually hear, my mother had one cut off her arm she is fine. I'm totally scared to death. I can read and what I read about mine is very bad results. Hoping for a miracle and hopefully God will see me through. Good luck with yours. You for sure are not alone. 

          Frank

           

          • June 10, 2016 at 9:13 pm
          FrankB
          Participant

            I'm also new, worried and scared. Just got diagnosed about 3 weeks ago, no stage yet. Probably gonna be pretty bad. It's in my infra orbital nerve. I'm at john Hopkins so hopefully have some good doctors. I feel your worry because when your talking about it people have no idea how bad it is. I usually hear, my mother had one cut off her arm she is fine. I'm totally scared to death. I can read and what I read about mine is very bad results. Hoping for a miracle and hopefully God will see me through. Good luck with yours. You for sure are not alone. 

            Frank

             

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