Ginsy

Hi. I don’t think it is a good idea to ask this question. Try to stay calm until you hear what the doctor has to say. I will keep you in prayer.

Hi Amie, I know how you are feeling. I was diagnosed as stage IV in September 2017. I had one treatment of Yervoy/Opdivo. That caused me all of my problems. Rash and Thyroid. They cleared up the rash with 3 days worth of steroids and I have been on two different meds for Thyroid. The Thyroid after about 6 months is soooo much better. I am not so worn out now. Also I guess the Opdivo has caused the aches and pains, but big deal. The Opdivo is working great. My multiple tumors are responding. I am considered stable. I have had about 10 Opdivo treatments. I function quite well. At the beginning things can be rough but the doctors I have at Kaiser!!!!! (Amazingly) have been great! I will keep you and your family in prayer. Trust in the Lord and lean not on your own understanding. Be at peace. You have a whole bunch of us on this board you can pour your heart out to and vent. Cry, scream whatever you have to do and then give it over to God. Those of us who have been diagnosed in the past few years are so blessed to have been diagnosed at such a time as this as these new treatments are working. Time will tell the whole story but be grateful for today. I know I am. God bless you and yours.

Hi Mike, My name is Gini and this is my first time posting on the site. I have read most of the posts here on the site beginning with the 2010 posts. Treatment with Yervoy/Opdivo combo is what I started off with in October 2017. I only made it through the first treatment then had to stop due to hyperthyroidism which later turned into hypothyroidism. Plus I got the rash pretty bad all over my body. After about 6 weeks I started treatment again with Opdivo only. I have had 10 treatments so far and my tumors have shrunk remarkably. My 2 brain mets shrunk enough that I was finally able to resume driving about 3 months ago. I was diagnosed as having 1 tumor on each of the following organs. Lung, liver, maybe Kidney, 2 on my scalp, one on the back upper portion of my spinal cord a big one in my jaw and a big one on my chest. I am a mess but the tumors are shrinking and my main side effects are fatigue and muscle aches, back pain, joint pain etc. I was given oxicodone for the pain. I am on thyroid medication also. Now that my thyroid is doing better I am not so wiped out all day and can finally get back to taking care of the things that need taking care of. Praise the Lord!! Anyway never give up Mike. We all must keep up the good fight. I will pray the combo treatment works for you. God bless you.