Gordon747

We are in NZ so can’t do your survey but my husband has recently completed 4 infusions of yervoy. It is not funded here either and we had to pay for it. The cost for each treatment was $63,000 plus $3,500 for it to be administered privately. The cost is based on weight. The onc first quoted $37000 per dose but that is based on a person weighing 75kg. My husband weighed 107kg. Is this the same as Aussie? or is it a standard cost. Would appreciate your comments as we may have to do another round. Funny thing is you can buy it at Walmart in the US!

Barbara

We are in NZ so can’t do your survey but my husband has recently completed 4 infusions of yervoy. It is not funded here either and we had to pay for it. The cost for each treatment was $63,000 plus $3,500 for it to be administered privately. The cost is based on weight. The onc first quoted $37000 per dose but that is based on a person weighing 75kg. My husband weighed 107kg. Is this the same as Aussie? or is it a standard cost. Would appreciate your comments as we may have to do another round. Funny thing is you can buy it at Walmart in the US!

Barbara

We are in NZ so can’t do your survey but my husband has recently completed 4 infusions of yervoy. It is not funded here either and we had to pay for it. The cost for each treatment was $63,000 plus $3,500 for it to be administered privately. The cost is based on weight. The onc first quoted $37000 per dose but that is based on a person weighing 75kg. My husband weighed 107kg. Is this the same as Aussie? or is it a standard cost. Would appreciate your comments as we may have to do another round. Funny thing is you can buy it at Walmart in the US!

Barbara

We also live in New Zealand. My husband has stage 4 melanoma and is 58. Have you had braf testing to see if he is negative or positive for the mutation. My husband is negative and he has just finished his fourth infusion of ipilumamab.. Unfortunately it is not funded in NZ and has cost around $300,000 for the four infusions which,have to be administered privately.. If he had been positive for the braf mutation he would have been able to get. Zelboraf as part of a compassionate use programme. If your husband hasn’t been tested he needs to be ASAP. I understand that if you are positive for the braf mutation you should take the zelborafy as it is very fast acting but you can become resistant to it. Braf positive people can then take ipi. There is also another drug which I think is a later version of zelboraf called dabrafebab (sp) which is also on the compassionate use programme. My husband’s oncologist was very reluctant to prescribe the ipi due to the side effects and cost but we went ahead with it. My husband suffered very minor side effects and does not seem to have gone downhill since he started it. He is to have PET scan in the next month or so to see what effect it has had on his tumours which included brain, spine, lung, bones,adrenal gland etc. our biggest problem is that the tumour in his cauda equina has left him in a wheelchair due to nerve damage. He had dicarbazine chemo as first line treatment but it did not work. He then has radiation whole brain and on his spine which were very effective in controlling pain and alleviating headaches. He was a pilot so now is unable to work. He has a very positive attitude and we are hopeful that the ipi will prove successful as time seems to be of the essence with all the new treatments which seem to be in development. Hope this helps.
Barbara

We also live in New Zealand. My husband has stage 4 melanoma and is 58. Have you had braf testing to see if he is negative or positive for the mutation. My husband is negative and he has just finished his fourth infusion of ipilumamab.. Unfortunately it is not funded in NZ and has cost around $300,000 for the four infusions which,have to be administered privately.. If he had been positive for the braf mutation he would have been able to get. Zelboraf as part of a compassionate use programme. If your husband hasn’t been tested he needs to be ASAP. I understand that if you are positive for the braf mutation you should take the zelborafy as it is very fast acting but you can become resistant to it. Braf positive people can then take ipi. There is also another drug which I think is a later version of zelboraf called dabrafebab (sp) which is also on the compassionate use programme. My husband’s oncologist was very reluctant to prescribe the ipi due to the side effects and cost but we went ahead with it. My husband suffered very minor side effects and does not seem to have gone downhill since he started it. He is to have PET scan in the next month or so to see what effect it has had on his tumours which included brain, spine, lung, bones,adrenal gland etc. our biggest problem is that the tumour in his cauda equina has left him in a wheelchair due to nerve damage. He had dicarbazine chemo as first line treatment but it did not work. He then has radiation whole brain and on his spine which were very effective in controlling pain and alleviating headaches. He was a pilot so now is unable to work. He has a very positive attitude and we are hopeful that the ipi will prove successful as time seems to be of the essence with all the new treatments which seem to be in development. Hope this helps.
Barbara

We also live in New Zealand. My husband has stage 4 melanoma and is 58. Have you had braf testing to see if he is negative or positive for the mutation. My husband is negative and he has just finished his fourth infusion of ipilumamab.. Unfortunately it is not funded in NZ and has cost around $300,000 for the four infusions which,have to be administered privately.. If he had been positive for the braf mutation he would have been able to get. Zelboraf as part of a compassionate use programme. If your husband hasn’t been tested he needs to be ASAP. I understand that if you are positive for the braf mutation you should take the zelborafy as it is very fast acting but you can become resistant to it. Braf positive people can then take ipi. There is also another drug which I think is a later version of zelboraf called dabrafebab (sp) which is also on the compassionate use programme. My husband’s oncologist was very reluctant to prescribe the ipi due to the side effects and cost but we went ahead with it. My husband suffered very minor side effects and does not seem to have gone downhill since he started it. He is to have PET scan in the next month or so to see what effect it has had on his tumours which included brain, spine, lung, bones,adrenal gland etc. our biggest problem is that the tumour in his cauda equina has left him in a wheelchair due to nerve damage. He had dicarbazine chemo as first line treatment but it did not work. He then has radiation whole brain and on his spine which were very effective in controlling pain and alleviating headaches. He was a pilot so now is unable to work. He has a very positive attitude and we are hopeful that the ipi will prove successful as time seems to be of the essence with all the new treatments which seem to be in development. Hope this helps.
Barbara

Barbara

Barbara

Barbara

If you go to http://www.goodrx.com/ yervoy you will see a list of well known US companies including Walmart are advertising it from $6588 for a 50ml dose and also state there could be manufacturers financial assistance available for eligible persons. Do you think this is a hoax?

Barbara

If you go to http://www.goodrx.com/ yervoy you will see a list of well known US companies including Walmart are advertising it from $6588 for a 50ml dose and also state there could be manufacturers financial assistance available for eligible persons. Do you think this is a hoax?

Barbara

If you go to http://www.goodrx.com/ yervoy you will see a list of well known US companies including Walmart are advertising it from $6588 for a 50ml dose and also state there could be manufacturers financial assistance available for eligible persons. Do you think this is a hoax?

Barbara