@gwenmorgan
Forum Replies Created
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- March 20, 2017 at 12:18 am
And the brain drain- vp shunt and the IVC filter. The shunt hurt. Like a craniotomy c-section all at once… I got to watch the IVC filter being installed on a big monitor over me and I could ask questions during the procedure.
i asked the neurosurgeon what color brain mets were when he removed the first one and he said a purplish color. Someone discussed that once here.
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- January 22, 2017 at 7:06 pm
So I had my first Keytruda treatment and am abruptly stopping BRAF for this concurrent treatment for idiotic insurance reasons. However, I have had 9 brain mets over the past 2 years and some lung ones, some brain surgeries, cyber knife treatments, ambulance rides and general shit too and I'm trying to determine side effects of treating with Keytruda and BRAF from an actual patients perspective not a statistical report and I'm selfish and am really interested in actual success with LM. Thanks anyone?
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- January 22, 2017 at 7:06 pm
So I had my first Keytruda treatment and am abruptly stopping BRAF for this concurrent treatment for idiotic insurance reasons. However, I have had 9 brain mets over the past 2 years and some lung ones, some brain surgeries, cyber knife treatments, ambulance rides and general shit too and I'm trying to determine side effects of treating with Keytruda and BRAF from an actual patients perspective not a statistical report and I'm selfish and am really interested in actual success with LM. Thanks anyone?
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- January 22, 2017 at 7:06 pm
So I had my first Keytruda treatment and am abruptly stopping BRAF for this concurrent treatment for idiotic insurance reasons. However, I have had 9 brain mets over the past 2 years and some lung ones, some brain surgeries, cyber knife treatments, ambulance rides and general shit too and I'm trying to determine side effects of treating with Keytruda and BRAF from an actual patients perspective not a statistical report and I'm selfish and am really interested in actual success with LM. Thanks anyone?
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- January 17, 2017 at 1:15 pm
Rabia Not buying, presenting- sorry on phone and iPad at same time and trying to teach the 6's in multiplication to a 3rd grader for a time test.
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- January 17, 2017 at 1:15 pm
Rabia Not buying, presenting- sorry on phone and iPad at same time and trying to teach the 6's in multiplication to a 3rd grader for a time test.
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- January 17, 2017 at 1:15 pm
Rabia Not buying, presenting- sorry on phone and iPad at same time and trying to teach the 6's in multiplication to a 3rd grader for a time test.
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- February 19, 2016 at 10:18 am
After cyber knife I report any neurological changes, left arm weakness, dizziness, I had a seizure last Thursday from edema and hit the ER. They always do a brain MRI with contrast regardless of time frame as it is considered new symptoms.
Also, no nivo for me do to the edema so it is awesome that you can continue.
Best wishes!
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- March 20, 2017 at 1:45 am
Thank you! Blessings on your Amazing and Powerful Family! Prayers to St Peregrine, the Patron Saint for Cancer …for all of Us as we continue to experience this evil. There is not much else I can do other than get up every day.
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- April 23, 2016 at 2:38 am
Also, I had what I refer to as "sparkles" which are like mini muscle spasms or twitches on my left side- hands ands legs. Like electrical pulses. I have also had issues with my left leg feeling numb, sort of dragging when I walk and 1 seizure.
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- April 23, 2016 at 2:38 am
Also, I had what I refer to as "sparkles" which are like mini muscle spasms or twitches on my left side- hands ands legs. Like electrical pulses. I have also had issues with my left leg feeling numb, sort of dragging when I walk and 1 seizure.
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- April 23, 2016 at 2:38 am
Also, I had what I refer to as "sparkles" which are like mini muscle spasms or twitches on my left side- hands ands legs. Like electrical pulses. I have also had issues with my left leg feeling numb, sort of dragging when I walk and 1 seizure.
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- April 22, 2016 at 11:06 pm
Hi Christine,
I originally thought my headaches were from too much computer time for work. I went to an eye doctor and was prescribed a very slight glasses prescription that “might” be able to help.
Within a few weeks the headaches would come from exercise or exertion and could last multiple days. Lots of naps (or staying in bed trying to nap)and Aleve.
One day, I took my children to a convenience store and opened the commercial refrigerator and the coldness hit my head like an explosion and I could barely walk to the car. It happened again another day when I opened the freezer at my home.
Then headaches came with nausea. I had seen my general practitioner twice complaining of headaches and swollen glands in my neck. The third time I vomited all over his office – that was when he sent me for an MRI – where we found the 3 brain mets.
I currently have 9 brain mets that have been treated with cyberknife and I seem to always have a mild headache – normally behind my eyes or at the original craniotomy site. It could be stress, sinus issues, or just that there is a lot of activity with three children.
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- April 22, 2016 at 11:06 pm
Hi Christine,
I originally thought my headaches were from too much computer time for work. I went to an eye doctor and was prescribed a very slight glasses prescription that “might” be able to help.
Within a few weeks the headaches would come from exercise or exertion and could last multiple days. Lots of naps (or staying in bed trying to nap)and Aleve.
One day, I took my children to a convenience store and opened the commercial refrigerator and the coldness hit my head like an explosion and I could barely walk to the car. It happened again another day when I opened the freezer at my home.
Then headaches came with nausea. I had seen my general practitioner twice complaining of headaches and swollen glands in my neck. The third time I vomited all over his office – that was when he sent me for an MRI – where we found the 3 brain mets.
I currently have 9 brain mets that have been treated with cyberknife and I seem to always have a mild headache – normally behind my eyes or at the original craniotomy site. It could be stress, sinus issues, or just that there is a lot of activity with three children.
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- April 22, 2016 at 11:06 pm
Hi Christine,
I originally thought my headaches were from too much computer time for work. I went to an eye doctor and was prescribed a very slight glasses prescription that “might” be able to help.
Within a few weeks the headaches would come from exercise or exertion and could last multiple days. Lots of naps (or staying in bed trying to nap)and Aleve.
One day, I took my children to a convenience store and opened the commercial refrigerator and the coldness hit my head like an explosion and I could barely walk to the car. It happened again another day when I opened the freezer at my home.
Then headaches came with nausea. I had seen my general practitioner twice complaining of headaches and swollen glands in my neck. The third time I vomited all over his office – that was when he sent me for an MRI – where we found the 3 brain mets.
I currently have 9 brain mets that have been treated with cyberknife and I seem to always have a mild headache – normally behind my eyes or at the original craniotomy site. It could be stress, sinus issues, or just that there is a lot of activity with three children.
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