Habs27
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Habs27

Forum Replies Created

Viewing 1 reply thread
  • Replies
      • January 13, 2020 at 5:57 am
      Habs27
      Participant
        Cheers Mark. Also super helpful. We’re in Vancouver BC Canada. My mother moved here to be closer to my newborn son in June, and I happen to live a 15 minute walk to the cancer agency here.

        The surgeon has kept her in hospital (after cancelling the surgery when the tumour grew so quickly) until she gets an appointment with the cancer clinic. I’m not sure how to make sure it’s a melanoma specialist to be honest (up here we go where we are referred typically) but I will inquire once we have a contact.
        We are so hopeful she has radiation at least for comfort as this tumour has caused immense pain in her back. It’s left upper lobe. (the team has struggled to manage it but we’re hopeful the complex pain team can prescribe a long acting pain drug tomorrow)
        Massive thanks for taking the time to comment and here’s to hoping she’s BRAF positive.

        • January 12, 2020 at 9:31 pm
        Habs27
        Participant
          Thank you so much.
          She actually was referred immediately to a thoracic surgeon. We keep hearing he is one of the best. A team of surgeons reviewed her case and deemed it too unsafe to operate and needs to be shrunk pre surgery.

          The problem is her pain is climbing everyday. We all wish they cut it out when they found it, but the surgeon didn’t think it was melanoma from the CT so they waited over the holidays and it doubled in size. I think in her head it’s growing so that can’t help. Anyways must keep looking forward and staying positive.

          Thanks again.

          • January 12, 2020 at 3:17 am
          Habs27
          Participant
            Thank you so much. This is all very encouraging. She’s awaiting the genetic test and then will await an appointment at the cancer center here. Thanks for taking the time to help us!
            • January 12, 2020 at 3:17 am
            Habs27
            Participant
              Thank you so much. This is all very encouraging. She’s awaiting the genetic test and then will await an appointment at the cancer center here. Thanks for taking the time to help us!
              • January 11, 2020 at 5:46 pm
              Habs27
              Participant
                Celeste. You are my hero. Thank you for taking the time to read and reply. You have given me so much hope that I will convey to my mom. This is exactly what she needs to hear right now. We’re very lucky to be close to a cancer center – now we wait for them to call and get these treatments going. Please accept the most heartfelt thanks and virtual hug from all of us. Your generosity to a complete stranger is unbelievable.
                • January 11, 2020 at 5:27 pm
                Habs27
                Participant
                  Ed – thank you so much for this information and for taking the time out of your Saturday to help a stranger. I can’t convey how helpful it is to learn this. I found the video very helpful too. All the best and massive thanks
                  • January 11, 2020 at 1:57 pm
                  Habs27
                  Participant
                    Hey there
                    My mother just had a 3cm tumour found in her left upper lobe in December. They proposed a wedge resection, but in waiting a month for surgery it doubled in size and her pain through the roof. They biopsied and found it was Melanoma. She first had it in the skin 6-7 years ago. They thought they had a good margin so no further treatment.

                    Now surgery is cancelled and we are trying to get her pain controlled (currently on 6mg of hydromorphone every three hours) and are awaiting referral to the cancer agency here in BC
                    Has anyone had good experience with cbd for pain control at least to help taper the opiates?
                    Any idea what the current treatment for an inoperable lung MET?

                Viewing 1 reply thread
                About the MRF Patient Forum

                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.