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Hayden30
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Hayden30

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      • September 11, 2015 at 4:18 pm
      Hayden30
      Participant

        I've been on that combo for about a month and a half. The first week was so bad with gi side effects and nausea, but slowly they started getting better and now I have no side effects at all. I feel great and the combo is working. I hope you have very minimal side effects, but If you do at first please stick with it and know that things will get better. 

        • September 11, 2015 at 4:18 pm
        Hayden30
        Participant

          I've been on that combo for about a month and a half. The first week was so bad with gi side effects and nausea, but slowly they started getting better and now I have no side effects at all. I feel great and the combo is working. I hope you have very minimal side effects, but If you do at first please stick with it and know that things will get better. 

          • September 11, 2015 at 4:18 pm
          Hayden30
          Participant

            I've been on that combo for about a month and a half. The first week was so bad with gi side effects and nausea, but slowly they started getting better and now I have no side effects at all. I feel great and the combo is working. I hope you have very minimal side effects, but If you do at first please stick with it and know that things will get better. 

            • August 11, 2015 at 7:06 pm
            Hayden30
            Participant

              Hello, 

              im not sure i can offer much help but I just had a craniotomy last week so I thought I'd share my experience. 

              Im 30 years old and had a tumor about 12 mm removed. It was pretty close to the surface they told me. I stayed over night in the hospital and was able to leave the next morning. It had very little pain, and recovery was very easy for me. I was extremely fatigued but that was it. I've had many surgeries including two lung resections, an eye muscle removed, and various subcutaneous tumors removed. This was the easiest surgery of all of them. I realize your fathers situation is different, and age and overall health may have played a role in my easy recovery. I just wanted to share. I hope for the best for your dad! 

               

              Hayden

              • August 11, 2015 at 7:06 pm
              Hayden30
              Participant

                Hello, 

                im not sure i can offer much help but I just had a craniotomy last week so I thought I'd share my experience. 

                Im 30 years old and had a tumor about 12 mm removed. It was pretty close to the surface they told me. I stayed over night in the hospital and was able to leave the next morning. It had very little pain, and recovery was very easy for me. I was extremely fatigued but that was it. I've had many surgeries including two lung resections, an eye muscle removed, and various subcutaneous tumors removed. This was the easiest surgery of all of them. I realize your fathers situation is different, and age and overall health may have played a role in my easy recovery. I just wanted to share. I hope for the best for your dad! 

                 

                Hayden

                • August 11, 2015 at 7:06 pm
                Hayden30
                Participant

                  Hello, 

                  im not sure i can offer much help but I just had a craniotomy last week so I thought I'd share my experience. 

                  Im 30 years old and had a tumor about 12 mm removed. It was pretty close to the surface they told me. I stayed over night in the hospital and was able to leave the next morning. It had very little pain, and recovery was very easy for me. I was extremely fatigued but that was it. I've had many surgeries including two lung resections, an eye muscle removed, and various subcutaneous tumors removed. This was the easiest surgery of all of them. I realize your fathers situation is different, and age and overall health may have played a role in my easy recovery. I just wanted to share. I hope for the best for your dad! 

                   

                  Hayden

                  • October 1, 2015 at 2:22 pm
                  Hayden30
                  Participant

                    I saw that! I've previously used yervoy, does that disqualify me from receiving the combo? Is it possible insurance companies will ok this combo with previous treatment? I've been waiting so long for this to be approved. 

                    • October 1, 2015 at 2:22 pm
                    Hayden30
                    Participant

                      I saw that! I've previously used yervoy, does that disqualify me from receiving the combo? Is it possible insurance companies will ok this combo with previous treatment? I've been waiting so long for this to be approved. 

                      • October 1, 2015 at 2:22 pm
                      Hayden30
                      Participant

                        I saw that! I've previously used yervoy, does that disqualify me from receiving the combo? Is it possible insurance companies will ok this combo with previous treatment? I've been waiting so long for this to be approved. 

                        • October 1, 2015 at 2:17 pm
                        Hayden30
                        Participant

                          I agree! I've been anxiously awaiting this combo approval while on my BRAF drugs, is there anyway insurance might cover this for people that have done Yervoy or nivo alone previously? 

                          • October 1, 2015 at 2:17 pm
                          Hayden30
                          Participant

                            I agree! I've been anxiously awaiting this combo approval while on my BRAF drugs, is there anyway insurance might cover this for people that have done Yervoy or nivo alone previously? 

                            • October 1, 2015 at 2:17 pm
                            Hayden30
                            Participant

                              I agree! I've been anxiously awaiting this combo approval while on my BRAF drugs, is there anyway insurance might cover this for people that have done Yervoy or nivo alone previously? 

                              • August 12, 2015 at 3:06 pm
                              Hayden30
                              Participant

                                It took about 5 days to notice my tumors in my abdomen were shrinking, and in about a week a couple were completely gone. I've been on it 12 days now and its working more and more. 

                                • August 12, 2015 at 3:06 pm
                                Hayden30
                                Participant

                                  It took about 5 days to notice my tumors in my abdomen were shrinking, and in about a week a couple were completely gone. I've been on it 12 days now and its working more and more. 

                                  • August 12, 2015 at 3:06 pm
                                  Hayden30
                                  Participant

                                    It took about 5 days to notice my tumors in my abdomen were shrinking, and in about a week a couple were completely gone. I've been on it 12 days now and its working more and more. 

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