Helo15169

Please help as I am new to this topic but have been on your site since Jan 1. Thank you so much!

Celeste,
Thank you so much for responding. I hope you are doing great. I am so new to this site but have been checking it out for the last 4 months. My fiancé told me to get a different mole checked out a year ago then we both forgot about it as she was at my primary together for another reason. I just thought wirh my knowledge now that an open lesion that hurts and changes shape, color and elevates and was asymmetrical and was perfectly elliptical when it was biopsied then completely excised. I was diagnosed with POTS which is a nervous system issue. I was so healthy and worked out 6 days a week wirh weights and cardio. I have had every scanb of chest, head and pelvis and Brain MRI inblate marvh amd docs did so clean. This was wirh cotnrast as well. I have just read that melanoma is so hard to find on a scan. My lung and liver have hurt for a few weeks then went away and now having bone pains. I have had colonoscopies and cardiologist workup, don’t have auto immune, disbetes. I feel like what else could it be but skin cancer. The path has all been benign but so scared. I did have two odd rashes in 16 and late 17 and just let them go away roughly 45 days after arrival. I have also noticed twitching by the lesion right after thisnall started. The nerves or muscles would twitch a lot on my arm. I live in Chicago and have had a pool since 31 and always laid out on weekends. Then fiancé moved to Hawaii for a year and I would run out side often and hike and enjoy that Hawaiian beaches and sun as I visited very often in 2015. I am still trying to find out what’s going on as I am far from normal. Just hoping it’s not skin cancer in body. I am so aware of skin now which is why I am shocked the spot is normal. They went down to fat and have had a few good derms and surgeons talk to me regarding that spot. Just trying to feel better! Please feel free to share your story as I am so intrigued and want to provide support!

Billy,
Thank you so much for responding. It means a lot. I have heard of regression when a mole/ cancer completely disappears and to gone. This lesion was a block like and ended up elliptical pink and raised which leads me to believe there was still something there. I have been worked up by so many docs and CT scans of head, chest and Pelvis as of end of March and MRI of Brain as well. I was diagnosed wiiyh POTS which is very confusing to me. I was so healthy and working out 6 days a week for many years of my life. I laid out in sun so much and my fiancé was living in hawaiii for a year that is when this sore came on my skin. I would run outside very often and very active outside on Oahu. I am blue eyes and fair skin but always wear a ton of sunscreen and reapply. No family history of melanoma or skin cancer. I just don’t know what else could cause this as I don’t have any tumors in body but heard that Melankma could be missed on a CT with contrast but not an MRI. I have felt so short of breath and mucusy. My doc is sending me back to oncologist and get a pet scan. I also wanted to say I had 2 odd rashes in late 16 and 17 that lasted a month to almost 2 months then vanished. They didn’t bleed or anything. I hope all is well wirh you!

Ted,
Thank you very much for the response. I hope you are doing very well. Feel free to share your story with me if you are comfortable. I have been checking out this site for months now and just signed up. I only kept thinking it was my skin because I have had pretty much everything else worked up. The autonomic nervous system issues started in the gym on Jan 7 right before Bears game where heart was beating so fast and palpitations. I got diagnosed with POTS. I was working out 6-7 days per week before this. I have had CT scans of head, chest and pelvis and super clean as well as MRI of Brain, colonoscopy? Heart is great besides the pots. I have been super short of breath and felt pains in liver and lungs then then have come and gone and now weird bone pains. I have just felt so aweful and haven’t worked out in 140 days or so since this started. I just thought an open sore that kind of expanded to a square like on skin and was brown then turned a reddish/ pinkish color and changed and hurt and elevated and I just never got it looked at until February. I have been told that there would be something if it was melanoma. I did have 2 rashes in 2016 and 2017 that were odd but went away in a month or two but never got checked out. I was just dumb wirh my skin but nothing else. Now I know to much about skin. I have blue eyes and blonde hair/ bald and fair skin. I laid out in chicago often in summer on weekends then my fiancé moved to Hawaii for a year and I was running outside often and out in Hawaii sun quite often in that year as I visited often and lived there for 4 months or so. I jus don’t know what else can make me feel so bad.