Thank you both for sharing your stories. It’s so hard to be told that the reality is that there is no stopping the wildfire once ir starts so it’s so encouraging to hear a successful story and also helpful to even “prepare for the worst” by hearing the unsuccessful ones. My dad turned 61 on Thursday, his melanoma originated in scalp in July, clear scans and negative slnb… then in November found 6 brain Mets- 3 large and 3 smaller. Underwent SRS shortly after diagnosis and then had one round of immunotherapy- had a horrible episode shortly after that that put him in hospital for swelling of the brain. High dose steroids, and switch to taf/mek at that time (beginning of January). had a great mri in late March showing shrinkage and no progression so they tapered him off steroids and stopped the chemo last week. Started immunotherapy on Thursday (61st birthday) and on Friday morning he collapsed and was seizuring (awake but couldn’t stop the head tremors and lost use of his left arm for that day)… did the mri Friday to find Tina more tumors- I think it’s 15- they started whole brain radiation immediately. They said without it we were looking at weeks or days and with it prob 3-6 months and 6 months would be a miracle. We meet with onc again in AM to find out if he will attempt to continue any treatments with the WBR or if they will just continue high dose steroids and that will be that. I’m not sure his brain can handle another round of immuno but guess we will see. Thanks again for your responses it’s so helpful. Until then I’m just praying for a miracle, and for quality of life. I HATE CANCER.
