HollyC
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HollyC

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      • March 3, 2019 at 5:35 pm
      HollyC
      Participant

        Thank you Ann for your response.  I felt in my heart that the best action for me is to do the treatment.   I just need to know that I’m doing everything I can.   Did you do Opdivo?  What stage are you? 

        • March 3, 2019 at 5:33 pm
        HollyC
        Participant

          Thank you Ed for this link!!  It was very helpful in helping to make my decision to move forward with treatment.   I had my first treatment last week and thought I tolerated it well. But just yesterday, I have a rash all over.  Not real itchy but just spots and rash.  I hear that’s a common side effect. 

          • March 3, 2019 at 4:44 pm
          HollyC
          Participant

            Thank you Beth for your response!    I did decide to move forward with treatment. In fact I had my first one on February 22. Felt really good after and was hoping  that maybe I wouldn’t have any side effects but yesterday morning I woke up with a rash pretty much all over. Interesting that it took a week for it to hit me. Did you have a rash at all?  Did you have any side effects? 

            How often are you getting scans and what type of scans? 

            Did you notice any difference of going to monthly treatments vs Bi/weekly? 

            Appreciate your time!!!

             

            • March 3, 2019 at 4:39 pm
            HollyC
            Participant

              Thank you Niki for your response!  I appreciate it!  I decided to move forward with immunotherapy as like you, I’m not a wait and see kind of girl.  

              I just checked out your website and read your story.  Seems like you are doing well and staying ahead of this monster.  It gives me hope so thank you for sharing!!! 

               

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