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      Participant

        I also started a blog to share my experience with others going through this

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        Participant

          Hi Mark 

          Thanks for the reply and sorry for this delayed response but I don´t seem to get an alert when someone posts something here. When the surgeon mentioned I would lose my big toe, I didn´t think much of it, but a year later I have noticed it has made a huge difference. A few months after surgery I had accute pain in my foot which I imagine was from my body readjsuting to the loss of the toe. This got better with 3 months of physiotherapy. A year later, I am getting pain on my inner knee of the leg that lost the toe, and pain in the hips along with muscular pain in the upper leg. I am still surprised how a small part of your body that goes missing makes such a difference. 

          You mentioned a prosthesis. I use one that has a toe filler, but doesn´t do much in terms of compensating for the loss of gait. I imagine a carbon fibre foot plate could work, but I haven´t found anything specific for hallux amputation.

          Just yesterday I went for a long walk and towards the end started feeling the pains in my leg reapear.

          Thanks for the reply

          Luis

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          Participant

            Thanks for the reply Barb. I appreciate it 🙂

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            Participant

              Thanks for the reply Mark and sharing your experience with me. I agree with you, that our body does have an incredible capacity to adjust and relearn. I myself found that I adapted pretty quickly and was limping after surgery, but after a while was walking quite normaly and you wouldn´t guess I had lost the big toe (hallux). However recently, I have had more pain in my foot, walking has been incfedible difficult and I tire very quickly.

              I haven´t found anyone yet that has lost their hallux through amputation caused by cancer. There are quite a few people who have lost it for being diabetic and I haven´t been able to get much information in terms of what its like to live without your toe on the long run. I use to love to run and even though surgery was in January, it is something I don´t see mysef doing in the short distant future.

              At the time I posted, I hadn´t received my pathology results, but all came out clear. No cancer cells were detected in the removed lymph nodes so basically I am cancer free!

              Luis

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