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IvanaDim
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IvanaDim

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      • June 22, 2016 at 9:53 pm
      IvanaDim
      Participant
        What is the name of the FB group page? I am allready registered in one…

        Thanks!

        • June 22, 2016 at 9:53 pm
        IvanaDim
        Participant
          What is the name of the FB group page? I am allready registered in one…

          Thanks!

          • June 22, 2016 at 9:53 pm
          IvanaDim
          Participant
            What is the name of the FB group page? I am allready registered in one…

            Thanks!

            • July 23, 2016 at 10:08 pm
            IvanaDim
            Participant
              Hi Gary,

              Thanks for the reply. My dad has mucosal melanoma wild type. Since we live in small country on Balkan unfortunately non of the new approved therapies is covered by insurance, somehow we collected money for 6 rounds of keytruda and that is it 🙁 other problem is the melaboma specialist…not existing such here 🙁 so my source of knowledge is this precious forum and advices for all of you.. He is too weak now to go travel abroad so I try to find out if chemotherapy will do any good or I have to leave therapies out.. I know it souds like dead end but I know that God takes care for my dad and things will work out. He must win this terrible melanoma!!!

              • July 23, 2016 at 10:08 pm
              IvanaDim
              Participant
                Hi Gary,

                Thanks for the reply. My dad has mucosal melanoma wild type. Since we live in small country on Balkan unfortunately non of the new approved therapies is covered by insurance, somehow we collected money for 6 rounds of keytruda and that is it 🙁 other problem is the melaboma specialist…not existing such here 🙁 so my source of knowledge is this precious forum and advices for all of you.. He is too weak now to go travel abroad so I try to find out if chemotherapy will do any good or I have to leave therapies out.. I know it souds like dead end but I know that God takes care for my dad and things will work out. He must win this terrible melanoma!!!

                • July 23, 2016 at 10:08 pm
                IvanaDim
                Participant
                  Hi Gary,

                  Thanks for the reply. My dad has mucosal melanoma wild type. Since we live in small country on Balkan unfortunately non of the new approved therapies is covered by insurance, somehow we collected money for 6 rounds of keytruda and that is it 🙁 other problem is the melaboma specialist…not existing such here 🙁 so my source of knowledge is this precious forum and advices for all of you.. He is too weak now to go travel abroad so I try to find out if chemotherapy will do any good or I have to leave therapies out.. I know it souds like dead end but I know that God takes care for my dad and things will work out. He must win this terrible melanoma!!!

                  • June 6, 2016 at 4:43 pm
                  IvanaDim
                  Participant
                    I will reach Merk and BSM although it wont be the first time 🙁 Thank you celeste anyway it is very important to be able to discuss this with you, you have all the knowledge and more importang great heart ♡♡♡! Today, the doctor said maybe temozolamide would be better…I’m even more lost but i pray God to show us the best path.
                    • June 6, 2016 at 4:43 pm
                    IvanaDim
                    Participant
                      I will reach Merk and BSM although it wont be the first time 🙁 Thank you celeste anyway it is very important to be able to discuss this with you, you have all the knowledge and more importang great heart ♡♡♡! Today, the doctor said maybe temozolamide would be better…I’m even more lost but i pray God to show us the best path.
                      • June 6, 2016 at 4:43 pm
                      IvanaDim
                      Participant
                        I will reach Merk and BSM although it wont be the first time 🙁 Thank you celeste anyway it is very important to be able to discuss this with you, you have all the knowledge and more importang great heart ♡♡♡! Today, the doctor said maybe temozolamide would be better…I’m even more lost but i pray God to show us the best path.
                        • June 6, 2016 at 7:53 am
                        IvanaDim
                        Participant
                          If only all of us could be equal in the health system.. in my country none of the immunotherapies is for free.. we could afford only 6 doses 🙁
                          Would you try chemo/interferon/IL2 if you are at my position?
                          • June 6, 2016 at 7:53 am
                          IvanaDim
                          Participant
                            If only all of us could be equal in the health system.. in my country none of the immunotherapies is for free.. we could afford only 6 doses 🙁
                            Would you try chemo/interferon/IL2 if you are at my position?
                            • June 6, 2016 at 7:53 am
                            IvanaDim
                            Participant
                              If only all of us could be equal in the health system.. in my country none of the immunotherapies is for free.. we could afford only 6 doses 🙁
                              Would you try chemo/interferon/IL2 if you are at my position?
                              • June 5, 2016 at 9:25 pm
                              IvanaDim
                              Participant
                                I just saw it..thanks Ed it brings some hope.
                                • June 5, 2016 at 9:25 pm
                                IvanaDim
                                Participant
                                  I just saw it..thanks Ed it brings some hope.
                                  • June 5, 2016 at 9:25 pm
                                  IvanaDim
                                  Participant
                                    I just saw it..thanks Ed it brings some hope.
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