Jacqueh27

They are being aggressive as she is young and all of her blood levels are completely normal. She had her first three hour infusion of both on Monday. The first two days after, she felt fatigue and a little flu type symptoms, appetitie low but as of yesterday she felt completelfy normal again! The best thing, is our insurance is covering it!! She had Yervoy at the beginnning of year which shrunk the tumor by 6cm so we are hoping this is the perfect combo. She will have a PET after three more infusions to see if this is effective. I believe it will be. 

They are being aggressive as she is young and all of her blood levels are completely normal. She had her first three hour infusion of both on Monday. The first two days after, she felt fatigue and a little flu type symptoms, appetitie low but as of yesterday she felt completelfy normal again! The best thing, is our insurance is covering it!! She had Yervoy at the beginnning of year which shrunk the tumor by 6cm so we are hoping this is the perfect combo. She will have a PET after three more infusions to see if this is effective. I believe it will be. 

They are being aggressive as she is young and all of her blood levels are completely normal. She had her first three hour infusion of both on Monday. The first two days after, she felt fatigue and a little flu type symptoms, appetitie low but as of yesterday she felt completelfy normal again! The best thing, is our insurance is covering it!! She had Yervoy at the beginnning of year which shrunk the tumor by 6cm so we are hoping this is the perfect combo. She will have a PET after three more infusions to see if this is effective. I believe it will be. 

Thanks everybody. I am feeling encouraged! Good to know that others are responding and it's at least staying "Manageable". I'm very optimistic. I also am remembering that it was after the Yervoy it shrank that many centimeters but I guess the combo of both is helping too because the tumor activity is way lower? 

Thanks everybody. I am feeling encouraged! Good to know that others are responding and it's at least staying "Manageable". I'm very optimistic. I also am remembering that it was after the Yervoy it shrank that many centimeters but I guess the combo of both is helping too because the tumor activity is way lower? 

Thanks everybody. I am feeling encouraged! Good to know that others are responding and it's at least staying "Manageable". I'm very optimistic. I also am remembering that it was after the Yervoy it shrank that many centimeters but I guess the combo of both is helping too because the tumor activity is way lower? 

Thank you! I hope you keep responding!

Thank you! I hope you keep responding!

Thank you! I hope you keep responding!

They only said as small as it could get. I am waiting to hear back from her main oncologist because he seemed he was opting that before she went to Mayo Clinic. She lives in Tallahassee, Fl and I am in Miami where she was treated when living home. She is now getting infusions in Jacksonville at Mayo and the Oncologist there is saying another year. I am hoping to hear from our Dr. here as I just wish they could take it out! It has not spread and I just fear it will like it did after four years of NED. The Keytruda started about two months after Yervoy.

They only said as small as it could get. I am waiting to hear back from her main oncologist because he seemed he was opting that before she went to Mayo Clinic. She lives in Tallahassee, Fl and I am in Miami where she was treated when living home. She is now getting infusions in Jacksonville at Mayo and the Oncologist there is saying another year. I am hoping to hear from our Dr. here as I just wish they could take it out! It has not spread and I just fear it will like it did after four years of NED. The Keytruda started about two months after Yervoy.

They only said as small as it could get. I am waiting to hear back from her main oncologist because he seemed he was opting that before she went to Mayo Clinic. She lives in Tallahassee, Fl and I am in Miami where she was treated when living home. She is now getting infusions in Jacksonville at Mayo and the Oncologist there is saying another year. I am hoping to hear from our Dr. here as I just wish they could take it out! It has not spread and I just fear it will like it did after four years of NED. The Keytruda started about two months after Yervoy.

Artie, thanks and you remembered correctly. After four infusions no shrinkage. She had been being treated at Mayo but I have not consulted yet with her main Oncologist at Mt Sinai Dr Lutzky who's goal is to get it to resect size. I will be calling him first thing Monday so thank you! 

Artie, thanks and you remembered correctly. After four infusions no shrinkage. She had been being treated at Mayo but I have not consulted yet with her main Oncologist at Mt Sinai Dr Lutzky who's goal is to get it to resect size. I will be calling him first thing Monday so thank you! 

Artie, thanks and you remembered correctly. After four infusions no shrinkage. She had been being treated at Mayo but I have not consulted yet with her main Oncologist at Mt Sinai Dr Lutzky who's goal is to get it to resect size. I will be calling him first thing Monday so thank you!