Hey All, thanks for your replies-so helpful to know other people are experienceing the same stuff! Its been a bit of a rollar coaster with the side effects these past few weeks. After I posted I was admitted to the hospital for the fevers-my doc called it a mini cytokine storm and my pituitary was inflammed-so then put on 20mg prednisone. Felt great!! Then tapered off to get my next treatment and my liver enzymes shot way up and fevers came back. Now on 50mg prednisone. That makes me feel wacko but I need my liver function back to a safe zone to get my next treatment. So my 3rd ipi/nivo treatment is postponed. This is so disappointing but my doc said its not a race, the treatments will work better if my body is working well and he said you are responding too well-that we are "poking the bear". This makes me laugh so I had to share. My immune system is on overdrive and attacking the rest of my body is what he meant. I am trying to stay positive but I am so worried that I will be taken off the dual treatment which I know is working. The tumor in my inguinal lymph node is way smaller-doc measured it and it is less than half the size.
