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jazzygal

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      jazzygal
      Participant

        I was diagnosed with an amelanotic melanoma on my forearm on Monday.  I had blood tests, and chest x-rays done on Tuesday which were pretty much nomal with the excecption of my lympohcytes being slightly less than nomal and my eosinophis being slightly greater than normal.  They also ordered a PET scan which was done today and I haven't seen the results of. 

        I will be seeing a melanoma specialist and surgeon in two weeks to have the remainder of the area around the primary melanoma on my forearm removed, the SLNB performed, and to see what else needs to be done and where I go from here.  I feel perfectly fine.  I was told that x-rays, blood work, and a PET/CT scan is imperativel to see if the melanona has metastasized and where to, so they can get rid of it, and do whatever is necessary to stop it from spreading as soon as possible.  Unlike blood work and x-rays, a PET scan is a complete body scan that tends to show everywhere that a tumor or cancer cells may be if it is done, and analyzed, correctly. 

        If I were you I would push for a PET scan, x-rays, blood work, and anything else that could show if your husband's melatoma has spread and metastasized so that they can do all they can to get rid of it everywhere that it could possibly be and stop it form moving on and causing any further problems.  The sooner it is completely eliminated from his body the better and the more likely that he will survive for a very long time.  The scans are not painful or detrmrimental so I can see absolutely no reason not to have them done since they may show something that otherwise may not show up.  I would also recommend that he see a melanoma speicalist instead of just a dermatologist or oncologist because melanoma speicalists tend to know far more about melanomas than any other specialist and they stay on top of the most recent results and treatments. 

        I am thankful that when my dermatologist who thought all I had was a basal cell carcinoma found out from the lab results that I have a melanoma he ordered all kinds of tests and referred me to one of the top melanoma specialists in our area to make sure that all will be done to save my life. 

             

        jazzygal
        Participant

          I was diagnosed with an amelanotic melanoma on my forearm on Monday.  I had blood tests, and chest x-rays done on Tuesday which were pretty much nomal with the excecption of my lympohcytes being slightly less than nomal and my eosinophis being slightly greater than normal.  They also ordered a PET scan which was done today and I haven't seen the results of. 

          I will be seeing a melanoma specialist and surgeon in two weeks to have the remainder of the area around the primary melanoma on my forearm removed, the SLNB performed, and to see what else needs to be done and where I go from here.  I feel perfectly fine.  I was told that x-rays, blood work, and a PET/CT scan is imperativel to see if the melanona has metastasized and where to, so they can get rid of it, and do whatever is necessary to stop it from spreading as soon as possible.  Unlike blood work and x-rays, a PET scan is a complete body scan that tends to show everywhere that a tumor or cancer cells may be if it is done, and analyzed, correctly. 

          If I were you I would push for a PET scan, x-rays, blood work, and anything else that could show if your husband's melatoma has spread and metastasized so that they can do all they can to get rid of it everywhere that it could possibly be and stop it form moving on and causing any further problems.  The sooner it is completely eliminated from his body the better and the more likely that he will survive for a very long time.  The scans are not painful or detrmrimental so I can see absolutely no reason not to have them done since they may show something that otherwise may not show up.  I would also recommend that he see a melanoma speicalist instead of just a dermatologist or oncologist because melanoma speicalists tend to know far more about melanomas than any other specialist and they stay on top of the most recent results and treatments. 

          I am thankful that when my dermatologist who thought all I had was a basal cell carcinoma found out from the lab results that I have a melanoma he ordered all kinds of tests and referred me to one of the top melanoma specialists in our area to make sure that all will be done to save my life. 

               

          jazzygal
          Participant

            I was diagnosed with an amelanotic melanoma on my forearm on Monday.  I had blood tests, and chest x-rays done on Tuesday which were pretty much nomal with the excecption of my lympohcytes being slightly less than nomal and my eosinophis being slightly greater than normal.  They also ordered a PET scan which was done today and I haven't seen the results of. 

            I will be seeing a melanoma specialist and surgeon in two weeks to have the remainder of the area around the primary melanoma on my forearm removed, the SLNB performed, and to see what else needs to be done and where I go from here.  I feel perfectly fine.  I was told that x-rays, blood work, and a PET/CT scan is imperativel to see if the melanona has metastasized and where to, so they can get rid of it, and do whatever is necessary to stop it from spreading as soon as possible.  Unlike blood work and x-rays, a PET scan is a complete body scan that tends to show everywhere that a tumor or cancer cells may be if it is done, and analyzed, correctly. 

            If I were you I would push for a PET scan, x-rays, blood work, and anything else that could show if your husband's melatoma has spread and metastasized so that they can do all they can to get rid of it everywhere that it could possibly be and stop it form moving on and causing any further problems.  The sooner it is completely eliminated from his body the better and the more likely that he will survive for a very long time.  The scans are not painful or detrmrimental so I can see absolutely no reason not to have them done since they may show something that otherwise may not show up.  I would also recommend that he see a melanoma speicalist instead of just a dermatologist or oncologist because melanoma speicalists tend to know far more about melanomas than any other specialist and they stay on top of the most recent results and treatments. 

            I am thankful that when my dermatologist who thought all I had was a basal cell carcinoma found out from the lab results that I have a melanoma he ordered all kinds of tests and referred me to one of the top melanoma specialists in our area to make sure that all will be done to save my life. 

                 

            jazzygal
            Participant

              I got my PET scan results.  Other than the obvious melanoma on my forearm, the scan showed nothing else except for increased FDG in my thyroid lobes and stomach, and in particular the gastric cardia part of my stomach.  They feel that the melanoma has not metastasized to those areas because I have had hypothyroid problems for years so it is likely that inflammation from that is what caused the increased FDGs, and that my stomach was also inflamed because of the barium I had to drink before the scan and that is why it also showed increased FDGs 

              None the less, my great doctors don't just cling to their beliefs and let things go.  So they have ordered that I have another thyroid test (I had one previously in February) and I am having an Upper GI endoscopy performed tomorrow to look around in my stomach to see if anything looks unusual and if it does biopsys will be taken. 

              I will be meeting with the melanoma specialist and surgeon on Monday so we will see where things go from there.  I believe that everything is going to be fine and this thing will be over and done with after that meeting.        

              jazzygal
              Participant

                I got my PET scan results.  Other than the obvious melanoma on my forearm, the scan showed nothing else except for increased FDG in my thyroid lobes and stomach, and in particular the gastric cardia part of my stomach.  They feel that the melanoma has not metastasized to those areas because I have had hypothyroid problems for years so it is likely that inflammation from that is what caused the increased FDGs, and that my stomach was also inflamed because of the barium I had to drink before the scan and that is why it also showed increased FDGs 

                None the less, my great doctors don't just cling to their beliefs and let things go.  So they have ordered that I have another thyroid test (I had one previously in February) and I am having an Upper GI endoscopy performed tomorrow to look around in my stomach to see if anything looks unusual and if it does biopsys will be taken. 

                I will be meeting with the melanoma specialist and surgeon on Monday so we will see where things go from there.  I believe that everything is going to be fine and this thing will be over and done with after that meeting.        

                jazzygal
                Participant

                  I got my PET scan results.  Other than the obvious melanoma on my forearm, the scan showed nothing else except for increased FDG in my thyroid lobes and stomach, and in particular the gastric cardia part of my stomach.  They feel that the melanoma has not metastasized to those areas because I have had hypothyroid problems for years so it is likely that inflammation from that is what caused the increased FDGs, and that my stomach was also inflamed because of the barium I had to drink before the scan and that is why it also showed increased FDGs 

                  None the less, my great doctors don't just cling to their beliefs and let things go.  So they have ordered that I have another thyroid test (I had one previously in February) and I am having an Upper GI endoscopy performed tomorrow to look around in my stomach to see if anything looks unusual and if it does biopsys will be taken. 

                  I will be meeting with the melanoma specialist and surgeon on Monday so we will see where things go from there.  I believe that everything is going to be fine and this thing will be over and done with after that meeting.        

                  jazzygal
                  Participant

                    Thanks for this info. Janner.  I will just keep hoping for the best.

                    jazzygal
                    Participant

                      Thanks for this info. Janner.  I will just keep hoping for the best.

                      jazzygal
                      Participant

                        Thanks for this info. Janner.  I will just keep hoping for the best.

                        jazzygal
                        Participant

                          Sorry, but I wasn't able to find a way to post my pathology report on my profile.

                          jazzygal
                          Participant

                            Sorry, but I wasn't able to find a way to post my pathology report on my profile.

                            jazzygal
                            Participant

                              Sorry, but I wasn't able to find a way to post my pathology report on my profile.

                              jazzygal
                              Participant

                                Thanks for your response.  I will take a look at your profile for sure.  Like you, it almost seems like they are giving me information about someone else when it is directed at me, but it still terrifies me when it finally hits home.  I have not had serious health problems (except for having to have two cervical discs removed after they caused a spinal cord injury which was once again something that just struck me hard out of the blue with no warning signs whatsoever).

                                Because I feel and look fine, I just can't seem to believe that there is something that is so serious wrong with me.  My husband said I should start taking it more seriously than I seem to.  It tends to just hit me hard and deep in the shower so that is where I have the most severe anxiety attacks and start to shake and cry.  By the time I get out it has passed so no one sees it. I have been watching TV far more than I usually do just to take my mind away from thinking about the melanoma and what I will be going through and feeling so terrified.  I just hope it will be over and done with quickly and easily before I start being constantly worried and terrified.

                                jazzygal heart

                                 

                                jazzygal
                                Participant

                                  Thanks for your response.  I will take a look at your profile for sure.  Like you, it almost seems like they are giving me information about someone else when it is directed at me, but it still terrifies me when it finally hits home.  I have not had serious health problems (except for having to have two cervical discs removed after they caused a spinal cord injury which was once again something that just struck me hard out of the blue with no warning signs whatsoever).

                                  Because I feel and look fine, I just can't seem to believe that there is something that is so serious wrong with me.  My husband said I should start taking it more seriously than I seem to.  It tends to just hit me hard and deep in the shower so that is where I have the most severe anxiety attacks and start to shake and cry.  By the time I get out it has passed so no one sees it. I have been watching TV far more than I usually do just to take my mind away from thinking about the melanoma and what I will be going through and feeling so terrified.  I just hope it will be over and done with quickly and easily before I start being constantly worried and terrified.

                                  jazzygal heart

                                   

                                  jazzygal
                                  Participant

                                    Thanks for your response.  I will take a look at your profile for sure.  Like you, it almost seems like they are giving me information about someone else when it is directed at me, but it still terrifies me when it finally hits home.  I have not had serious health problems (except for having to have two cervical discs removed after they caused a spinal cord injury which was once again something that just struck me hard out of the blue with no warning signs whatsoever).

                                    Because I feel and look fine, I just can't seem to believe that there is something that is so serious wrong with me.  My husband said I should start taking it more seriously than I seem to.  It tends to just hit me hard and deep in the shower so that is where I have the most severe anxiety attacks and start to shake and cry.  By the time I get out it has passed so no one sees it. I have been watching TV far more than I usually do just to take my mind away from thinking about the melanoma and what I will be going through and feeling so terrified.  I just hope it will be over and done with quickly and easily before I start being constantly worried and terrified.

                                    jazzygal heart

                                     

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