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jene8511

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      jene8511
      Participant

        Your post caught my eye because of "single cells". Currently there is some big debate on my sentinel node results. The Melanoma clinic in Boston has reviewed my case several times and finally last night the Dr told me they believe there is a "small focus" but they had a hard time with it, they even debated whether or not my primary lesion was melanoma! I have 2 nodes removed, and of course they want me to have the rest of them out. I feel this surgery and treatment is maybe to aggressive? If that makes sense. Everyone always wants to take the most aggresive approach to this disease, but I think people get scared and just do what the Drs tell them to do. Had I not argued with them at my first visit about WHY they wanted to do all of this without any proof it was going to do anything, they wouldn't have brought my case up to the board several times!

        jene8511
        Participant

          Your post caught my eye because of "single cells". Currently there is some big debate on my sentinel node results. The Melanoma clinic in Boston has reviewed my case several times and finally last night the Dr told me they believe there is a "small focus" but they had a hard time with it, they even debated whether or not my primary lesion was melanoma! I have 2 nodes removed, and of course they want me to have the rest of them out. I feel this surgery and treatment is maybe to aggressive? If that makes sense. Everyone always wants to take the most aggresive approach to this disease, but I think people get scared and just do what the Drs tell them to do. Had I not argued with them at my first visit about WHY they wanted to do all of this without any proof it was going to do anything, they wouldn't have brought my case up to the board several times!

          jene8511
          Participant

            Thanks for the reply…the reason I asked your age was becayse my surgical oncologist feels that because I am young, I have a better chance of not getting lymphadema…however, I did find a leopard print sleeve just incase!! I hear what you are saying, and I appreciate it. I need all the advice, support and encouragement I can get. 

            I start my first Reiki therapy session in a week and I am looking forward to that. I cant believe this tiny freckle turned out to be all this. As soon as I noticed it changing, I called…imagine if I did nothing? Yikes.

            Since my sentinel node biopsy, I have pushed myself to heal…not over do it though. Ive been doing pilates strength exercises on my arm and almost have full range back and its been 3 weeks since the surgery. The dressing finally fell off last night and it looks great. How big of a incision is it for the lymphandectomy?

            jene8511
            Participant

              Thanks for the reply…the reason I asked your age was becayse my surgical oncologist feels that because I am young, I have a better chance of not getting lymphadema…however, I did find a leopard print sleeve just incase!! I hear what you are saying, and I appreciate it. I need all the advice, support and encouragement I can get. 

              I start my first Reiki therapy session in a week and I am looking forward to that. I cant believe this tiny freckle turned out to be all this. As soon as I noticed it changing, I called…imagine if I did nothing? Yikes.

              Since my sentinel node biopsy, I have pushed myself to heal…not over do it though. Ive been doing pilates strength exercises on my arm and almost have full range back and its been 3 weeks since the surgery. The dressing finally fell off last night and it looks great. How big of a incision is it for the lymphandectomy?

              jene8511
              Participant

                Thanks to all for the posts! I am getting married on 8-5 and told my surgeon NOTHING is going to happen until after the wedding. She didnt seem so concerned, and said that is fine.  I go back on June 8th to meet with her ( Jennifer Wargo, and Keith Flaherty). My biggest concern is getting pregnant after all of this. I was supposed to start nursing school this fall, and now that is being put off because I cant afford to lose my insurance. We were also going to get pregnant next year…so we are trying our best to keep everything as normal as we can. 

                jene8511
                Participant

                  Thanks to all for the posts! I am getting married on 8-5 and told my surgeon NOTHING is going to happen until after the wedding. She didnt seem so concerned, and said that is fine.  I go back on June 8th to meet with her ( Jennifer Wargo, and Keith Flaherty). My biggest concern is getting pregnant after all of this. I was supposed to start nursing school this fall, and now that is being put off because I cant afford to lose my insurance. We were also going to get pregnant next year…so we are trying our best to keep everything as normal as we can. 

                  jene8511
                  Participant

                    Carol, may I ask your age? I am concerned with the lymphadema, and my surgical oncologist said based on my age, which is 25, I should heal in no time. I am pretty skeptical about this, so they were going to try to connect me with a patient my age who they performed the surgery on so I could talk with them. Do you have to wear it all the time? I have seen studies that say there is no added benefit, I have read so much my eyes feel like I cant even read anymore and my brain can no longer understand ha!

                    Why do you have a chance of it going to your brain or lungs, where was your original?

                    jene8511
                    Participant

                      Carol, may I ask your age? I am concerned with the lymphadema, and my surgical oncologist said based on my age, which is 25, I should heal in no time. I am pretty skeptical about this, so they were going to try to connect me with a patient my age who they performed the surgery on so I could talk with them. Do you have to wear it all the time? I have seen studies that say there is no added benefit, I have read so much my eyes feel like I cant even read anymore and my brain can no longer understand ha!

                      Why do you have a chance of it going to your brain or lungs, where was your original?

                      jene8511
                      Participant

                        Hi Linda thanks for the reply so fast! My clark level was IV, and mitotic rate of 2, which those 2 factors alone I guess were concerning. My surgeon who did the SNB was excellent. She found all the new criteria and spoke with her husband who is also a surgeon ( he mainly does plastic reconstruction, but also with melanoma patients). She left it up to me, and I decided on doing it. 

                        Usually she said they take the node out, then send it right down and make a decision to do the full disection right away, but she said she wasnt going to do that to me. Which I was, and still am grateful for. The dermatop. at mass general is the best so I hear, so the surgical oncologist down there feels like he is right in seeing something….but, they can't clearly tell me what it is, besides it resembles melanoma cells. So, I am confused, and pressing for more answers

                        jene8511
                        Participant

                          Hi Linda thanks for the reply so fast! My clark level was IV, and mitotic rate of 2, which those 2 factors alone I guess were concerning. My surgeon who did the SNB was excellent. She found all the new criteria and spoke with her husband who is also a surgeon ( he mainly does plastic reconstruction, but also with melanoma patients). She left it up to me, and I decided on doing it. 

                          Usually she said they take the node out, then send it right down and make a decision to do the full disection right away, but she said she wasnt going to do that to me. Which I was, and still am grateful for. The dermatop. at mass general is the best so I hear, so the surgical oncologist down there feels like he is right in seeing something….but, they can't clearly tell me what it is, besides it resembles melanoma cells. So, I am confused, and pressing for more answers

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