MRF-Logo2019-Horizontal-RGB
jjanekroll1
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

jjanekroll1

Forum Replies Created

Viewing 3 reply threads
  • Replies
      • January 8, 2025 at 8:07 pm
      jjanekroll1
      Participant
        Throughout the process they did not measure the bone mass index?
        • November 23, 2021 at 1:18 pm
        jjanekroll1
        Participant
          This reply has been marked as private.
          • July 31, 2020 at 11:29 am
          jjanekroll1
          Participant
            May I ask how often you have had a CT scan and where the other mets are located?
            • July 29, 2020 at 9:18 pm
            jjanekroll1
            Participant
              I have had 15 infusions with Opdivo now; the treatment had no side effects initially but gradually i feel more bloated. As a weightlifter and athlete, gaining muscle weight is fine but bloat is not helpful and extremely uncomfortable. I have been eating small amounts throughout the day, mostly fat based like nuts and seeds, that help with inflammation. Several times a day, i also have 1/2 lemon juiced with water and ginger tea as well. The herbs peppermint, ginger, fennel, cinnamon bark and rose hip (can be found in teas for digestion) are also beneficial. Lastly, ensure that he stays away from foods that promote inflammation, especially high sugar (or any sugar). Reishi and cordyceps mushrooms are also helpful!
              • January 9, 2025 at 10:34 am
              jjanekroll1
              Participant
                I hope not because this is harder mentally than treatment was 🙁 (for me!)
                • January 9, 2025 at 10:33 am
                jjanekroll1
                Participant
                  May I ask how it did interfere with your activity levels? Did you ever have pone pain / soreness?
                  Also did you have radiation at all during treatment?
                  • January 8, 2025 at 8:56 pm
                  jjanekroll1
                  Participant
                    And you were able to keep running during the treatments? I very much appreciate your info!!
                    • January 8, 2025 at 7:20 pm
                    jjanekroll1
                    Participant
                      Thank you again!
                      Were you able to simply stop the treatment? Were you able to see improvements with your bone mass during the time your were on it, and was there a specific reason that your dr chose that drug as opposed to others?
                      • January 8, 2025 at 5:24 pm
                      jjanekroll1
                      Participant
                        Thank you, Edwin! May I ask how many infusions you had and how long you had treatment? Did they say you would have to restart at any point or that there would be long term consequences for which to be aware?
                        • July 30, 2020 at 6:49 pm
                        jjanekroll1
                        Participant
                          I appreciate your input very much! Thank you again and best wishes to you.
                          • July 30, 2020 at 11:09 am
                          jjanekroll1
                          Participant
                            Thank you, Ted! Yes, I am new 🙂 I am doing my best, but everyday I feel like there is more to it…may I ask for how long you underwent treatment, and if there were any specific supplements or other aids that helped you along your journey?
                            • July 30, 2020 at 11:06 am
                            jjanekroll1
                            Participant
                              Thank you! Are you doing anything else that has helped muscle / joint fatigue?
                          Viewing 3 reply threads
                          About the MRF Patient Forum

                          The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                          The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                          Popular Topics