JJO

Hi Alicia,

My name is Jody and I currently have 2 brain tumors. I can tell you that a headache and vomiting is a sign of brain tumor, as well as the swelling and bleeding from the tumors. I would definitely have this evaluated via MRI or CAT SCAN as soon as you can. This is one of thesituations to be safe than sorry!. Hope this helps and Good Luck.

Jody

Hi Alicia,

My name is Jody and I currently have 2 brain tumors. I can tell you that a headache and vomiting is a sign of brain tumor, as well as the swelling and bleeding from the tumors. I would definitely have this evaluated via MRI or CAT SCAN as soon as you can. This is one of thesituations to be safe than sorry!. Hope this helps and Good Luck.

Jody

Andrew,

I have completed the 4 rounds of IPI treatment and experienced side effects of the rash and the bowel distress.

These were managed by my doctor. Immodium was used for the bowels and calmed them within a day or two. The rash was a little more difficult but I was put on Hydroxyzine and it helped some. I also used Sarna lotion by the bottle.

I would not consider the side effect to my bowels drastic, basically I had sever diarrhea and cramping and my Oncologist was on top of it and managed it. From what I understand the drastic side effects come into play if you develop and infection but not really sure as mine never progressed that far.

To tell you a little about me, I am stage IV and have multiple tumors throughout my body. During the IPI I also underwent radiation to the lymph nodes under my arm along with a tumor in the humorous bone of the same  arm. Then I needed radiation on my sacrum as a tumor was pressing on the sciatic nerve causing a lot of pain.

Prior to the IPI, I was treated with the GMC-SF and IL-2 combination injections. This worked very well on the tumors that were injected. However, systemically I developed, 3 additional tumors including 1 in the brain. This is when I was moved to the IPI trial.

To just updated folks on the status of my IPI treatments. I have completed all 4 rounds at Franklin Square Hospital outside of Baltimore. I have had a follow up brain MRI and a second brain tumor was found since I began the IPI treatments. I have had other follow up tests(CT"s etc) and meet with the Oncologist tomorrow to learn the results. I   already know that I have developed another tumor under my breast as you can see and feel it.

I hope this helps and I would just add that I would not let the potential side effect of IPI prevent me from going into the trial.

Good Luck

Jody

Andrew,

I have completed the 4 rounds of IPI treatment and experienced side effects of the rash and the bowel distress.

These were managed by my doctor. Immodium was used for the bowels and calmed them within a day or two. The rash was a little more difficult but I was put on Hydroxyzine and it helped some. I also used Sarna lotion by the bottle.

I would not consider the side effect to my bowels drastic, basically I had sever diarrhea and cramping and my Oncologist was on top of it and managed it. From what I understand the drastic side effects come into play if you develop and infection but not really sure as mine never progressed that far.

To tell you a little about me, I am stage IV and have multiple tumors throughout my body. During the IPI I also underwent radiation to the lymph nodes under my arm along with a tumor in the humorous bone of the same  arm. Then I needed radiation on my sacrum as a tumor was pressing on the sciatic nerve causing a lot of pain.

Prior to the IPI, I was treated with the GMC-SF and IL-2 combination injections. This worked very well on the tumors that were injected. However, systemically I developed, 3 additional tumors including 1 in the brain. This is when I was moved to the IPI trial.

To just updated folks on the status of my IPI treatments. I have completed all 4 rounds at Franklin Square Hospital outside of Baltimore. I have had a follow up brain MRI and a second brain tumor was found since I began the IPI treatments. I have had other follow up tests(CT"s etc) and meet with the Oncologist tomorrow to learn the results. I   already know that I have developed another tumor under my breast as you can see and feel it.

I hope this helps and I would just add that I would not let the potential side effect of IPI prevent me from going into the trial.

Good Luck

Jody