The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

jmm1052

Forum Replies Created

Viewing 1 reply thread
  • Replies
      jmm1052
      Participant

        Thank you! Lots of great info!

        jmm1052
        Participant

          Thank you! Lots of great info!

          jmm1052
          Participant

            Thank you! Lots of great info!

            jmm1052
            Participant

              Hi, 

              My husband was just diagnosed also- he had a swollen lymph node in his groin and finally was diagnosed with Melanoma- no evidence of where or when it began. He had the lymph node ( large one) plus 11 others removed. He is having some fluid retention issues and the incision isn't healing as quickly as we had hoped because of the internal pressure from the fluid. He wears a sleeve on that leg and still has a drain. It's been 2 1/2 weeks so really not too concerning yet. 

              His surgeon said the only way to be sure all the micro cells have been removed is to take out the whole section in one large piece. It was a 4 hr procedure and he did great. He has told him he is NED because of this so we are thrilled. He starts the ipi March 10. Before you put off the surgery, check all the sources you can to make your decision. 

               

              jmm1052
              Participant

                Hi, 

                My husband was just diagnosed also- he had a swollen lymph node in his groin and finally was diagnosed with Melanoma- no evidence of where or when it began. He had the lymph node ( large one) plus 11 others removed. He is having some fluid retention issues and the incision isn't healing as quickly as we had hoped because of the internal pressure from the fluid. He wears a sleeve on that leg and still has a drain. It's been 2 1/2 weeks so really not too concerning yet. 

                His surgeon said the only way to be sure all the micro cells have been removed is to take out the whole section in one large piece. It was a 4 hr procedure and he did great. He has told him he is NED because of this so we are thrilled. He starts the ipi March 10. Before you put off the surgery, check all the sources you can to make your decision. 

                 

                jmm1052
                Participant

                  Hi, 

                  My husband was just diagnosed also- he had a swollen lymph node in his groin and finally was diagnosed with Melanoma- no evidence of where or when it began. He had the lymph node ( large one) plus 11 others removed. He is having some fluid retention issues and the incision isn't healing as quickly as we had hoped because of the internal pressure from the fluid. He wears a sleeve on that leg and still has a drain. It's been 2 1/2 weeks so really not too concerning yet. 

                  His surgeon said the only way to be sure all the micro cells have been removed is to take out the whole section in one large piece. It was a 4 hr procedure and he did great. He has told him he is NED because of this so we are thrilled. He starts the ipi March 10. Before you put off the surgery, check all the sources you can to make your decision. 

                   

                  jmm1052
                  Participant

                    Great advice! My husband starts his on Mar 10- 10mg. We have heard that he definitely needs to be careful around crowds. I don't quite understand it because I thought the immune system gets boosted. 

                    I hope you are feeling much better now!

                     

                    jmm1052
                    Participant

                      Great advice! My husband starts his on Mar 10- 10mg. We have heard that he definitely needs to be careful around crowds. I don't quite understand it because I thought the immune system gets boosted. 

                      I hope you are feeling much better now!

                       

                      jmm1052
                      Participant

                        Great advice! My husband starts his on Mar 10- 10mg. We have heard that he definitely needs to be careful around crowds. I don't quite understand it because I thought the immune system gets boosted. 

                        I hope you are feeling much better now!

                         

                        jmm1052
                        Participant

                          That is awesome to hear- my husband starts on March 10 and he's nervous so it's great to hear from someone who just began the ipi. 

                          jmm1052
                          Participant

                            That is awesome to hear- my husband starts on March 10 and he's nervous so it's great to hear from someone who just began the ipi. 

                            jmm1052
                            Participant

                              That is awesome to hear- my husband starts on March 10 and he's nervous so it's great to hear from someone who just began the ipi. 

                              jmm1052
                              Participant

                                Sounds like it was manageable and that is very encouraging! Are you going to start the boosters every three months? Thank you so much for this info! 

                                Janet

                                jmm1052
                                Participant

                                  Sounds like it was manageable and that is very encouraging! Are you going to start the boosters every three months? Thank you so much for this info! 

                                  Janet

                                  jmm1052
                                  Participant

                                    Sounds like it was manageable and that is very encouraging! Are you going to start the boosters every three months? Thank you so much for this info! 

                                    Janet

                                Viewing 1 reply thread
                                About the MRF Patient Forum

                                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                Popular Topics