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joycedixon

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      joycedixon
      Participant

        Zelboraf has side effects.I would not stop .

        I have had skin problems and see my dermatologist every 6 weeks.

        He mentioned that it seemed that people who had skin problems  responded well.

        THis was just a comment but worth thinking about.

        I had joint problems the first two months that really limited me.

        I walk carefully –steps-threshholds–in and out of cars so I do not strain my knees

        no problem walking flat ground

        First PET after 5 months lesions on liver and lung were gone.

        I am losing hair and it suddenly turned fuzzy recently.However,with the success

        and future success I pray–I  will stay on the zelboraf.I still take 4 two times per day

        There are side effects but prayers that they are worth it.Read other peoples' notes

        on their experiences.

        joycedixon
        Participant

          Zelboraf has side effects.I would not stop .

          I have had skin problems and see my dermatologist every 6 weeks.

          He mentioned that it seemed that people who had skin problems  responded well.

          THis was just a comment but worth thinking about.

          I had joint problems the first two months that really limited me.

          I walk carefully –steps-threshholds–in and out of cars so I do not strain my knees

          no problem walking flat ground

          First PET after 5 months lesions on liver and lung were gone.

          I am losing hair and it suddenly turned fuzzy recently.However,with the success

          and future success I pray–I  will stay on the zelboraf.I still take 4 two times per day

          There are side effects but prayers that they are worth it.Read other peoples' notes

          on their experiences.

          joycedixon
          Participant

            Zelboraf has side effects.I would not stop .

            I have had skin problems and see my dermatologist every 6 weeks.

            He mentioned that it seemed that people who had skin problems  responded well.

            THis was just a comment but worth thinking about.

            I had joint problems the first two months that really limited me.

            I walk carefully –steps-threshholds–in and out of cars so I do not strain my knees

            no problem walking flat ground

            First PET after 5 months lesions on liver and lung were gone.

            I am losing hair and it suddenly turned fuzzy recently.However,with the success

            and future success I pray–I  will stay on the zelboraf.I still take 4 two times per day

            There are side effects but prayers that they are worth it.Read other peoples' notes

            on their experiences.

            joycedixon
            Participant

              Joint pain during the first couple of months made my days difficult.

              I  found that my movements although they did not hurt me caused an overreaction from the immune system.

              I changed a toddler on the floor several times and could barely walk all weekend-same  when I climbed a chair.

              I gave a shot  to husband and couple hours later had pain in thumb to wrist for days.I walk normally however when going over threshholds and stairs–I try to move carefully.

              My hands have hurt for 2 months because of peeling fresh produce–shoulder hurts from lying on it at night.

              I thought I  might be over it but did get on floor twice recently to adjust a sofa recliner and had pain in knees next day.

              For every ache I have had–there has been a cause.Rest for several days usually helps.I had two small skin cancers removed yesterday on my arms so I am anxious to see if they will feel better because I will not be using them as much.

              I take 2 x4 pills pr day.My recent PET showed that lesions on liver and lungs were gone.Lymph glands had went from 12 to 2 on the uptake.I am starting my sixth month.

              When you can't move around ,itis very discouraging.It could be something as simple as carrying a small child often.

              joycedixon
              Participant

                Joint pain during the first couple of months made my days difficult.

                I  found that my movements although they did not hurt me caused an overreaction from the immune system.

                I changed a toddler on the floor several times and could barely walk all weekend-same  when I climbed a chair.

                I gave a shot  to husband and couple hours later had pain in thumb to wrist for days.I walk normally however when going over threshholds and stairs–I try to move carefully.

                My hands have hurt for 2 months because of peeling fresh produce–shoulder hurts from lying on it at night.

                I thought I  might be over it but did get on floor twice recently to adjust a sofa recliner and had pain in knees next day.

                For every ache I have had–there has been a cause.Rest for several days usually helps.I had two small skin cancers removed yesterday on my arms so I am anxious to see if they will feel better because I will not be using them as much.

                I take 2 x4 pills pr day.My recent PET showed that lesions on liver and lungs were gone.Lymph glands had went from 12 to 2 on the uptake.I am starting my sixth month.

                When you can't move around ,itis very discouraging.It could be something as simple as carrying a small child often.

                joycedixon
                Participant

                  Joint pain during the first couple of months made my days difficult.

                  I  found that my movements although they did not hurt me caused an overreaction from the immune system.

                  I changed a toddler on the floor several times and could barely walk all weekend-same  when I climbed a chair.

                  I gave a shot  to husband and couple hours later had pain in thumb to wrist for days.I walk normally however when going over threshholds and stairs–I try to move carefully.

                  My hands have hurt for 2 months because of peeling fresh produce–shoulder hurts from lying on it at night.

                  I thought I  might be over it but did get on floor twice recently to adjust a sofa recliner and had pain in knees next day.

                  For every ache I have had–there has been a cause.Rest for several days usually helps.I had two small skin cancers removed yesterday on my arms so I am anxious to see if they will feel better because I will not be using them as much.

                  I take 2 x4 pills pr day.My recent PET showed that lesions on liver and lungs were gone.Lymph glands had went from 12 to 2 on the uptake.I am starting my sixth month.

                  When you can't move around ,itis very discouraging.It could be something as simple as carrying a small child often.

                  joycedixon
                  Participant

                    A rash that began soon after I started went away in a few weeks.I did not have any severe itching .I use Gold Bond, which is a brand name, for what little I had.

                    The dermatologist  burns off most of the spots that appear with liquid nitrogen I believe.

                    Most of my spots have been little and wart like .They usually need treated twice .He said there is a close relationship between squamous skin cancer and warts.He biopsied 5 spots in July-the two that looked minor were removed later surgically.One was sqaumous and one was basal..One had popped up two days before my appointment..He said his job is to zap them before they need excised.

                    The skin issues are also a side effect of zelboraf.My regular dermatologist just happens to work some with my cancer center doctors so he is familiar with zelboraf.I have seen posts where people said their doctors were not familiar with the med.

                     I take a 50,000 vitamin D3 prescription every two weeks–many sources recommend vit D for cancer patients.I take a turmeric capsule on my own.I drink organic whole milk.I try to eat many vegetables like broccoli,cooked tomatoes –and any that articles recommend  –and seem to need protein too–eating well makes me feel better.I don't do as much as I had hoped to because your energy level is down some and eating well involves shopping -preparing ,cooking and dishes–I do believe it is important though

                    Pharmacist from company that calls does not want me to drink alcohol at all(not even the drink I enjoyed eating out once a month)

                    I also think about interactions from taking other herbs or meds.The nurse said some people take way too many so be cautious.

                    I took ibuprofen for joint pain and they switched me to Advil because of possible kidney effects.However the pharmacist said they were in the same family so… anyway I only take if I need too.

                    I hope your brother feels better soon.I feel better than I expected to feel but  do have to do less than I used to.

                     

                    joycedixon
                    Participant

                      A rash that began soon after I started went away in a few weeks.I did not have any severe itching .I use Gold Bond, which is a brand name, for what little I had.

                      The dermatologist  burns off most of the spots that appear with liquid nitrogen I believe.

                      Most of my spots have been little and wart like .They usually need treated twice .He said there is a close relationship between squamous skin cancer and warts.He biopsied 5 spots in July-the two that looked minor were removed later surgically.One was sqaumous and one was basal..One had popped up two days before my appointment..He said his job is to zap them before they need excised.

                      The skin issues are also a side effect of zelboraf.My regular dermatologist just happens to work some with my cancer center doctors so he is familiar with zelboraf.I have seen posts where people said their doctors were not familiar with the med.

                       I take a 50,000 vitamin D3 prescription every two weeks–many sources recommend vit D for cancer patients.I take a turmeric capsule on my own.I drink organic whole milk.I try to eat many vegetables like broccoli,cooked tomatoes –and any that articles recommend  –and seem to need protein too–eating well makes me feel better.I don't do as much as I had hoped to because your energy level is down some and eating well involves shopping -preparing ,cooking and dishes–I do believe it is important though

                      Pharmacist from company that calls does not want me to drink alcohol at all(not even the drink I enjoyed eating out once a month)

                      I also think about interactions from taking other herbs or meds.The nurse said some people take way too many so be cautious.

                      I took ibuprofen for joint pain and they switched me to Advil because of possible kidney effects.However the pharmacist said they were in the same family so… anyway I only take if I need too.

                      I hope your brother feels better soon.I feel better than I expected to feel but  do have to do less than I used to.

                       

                      joycedixon
                      Participant

                        A rash that began soon after I started went away in a few weeks.I did not have any severe itching .I use Gold Bond, which is a brand name, for what little I had.

                        The dermatologist  burns off most of the spots that appear with liquid nitrogen I believe.

                        Most of my spots have been little and wart like .They usually need treated twice .He said there is a close relationship between squamous skin cancer and warts.He biopsied 5 spots in July-the two that looked minor were removed later surgically.One was sqaumous and one was basal..One had popped up two days before my appointment..He said his job is to zap them before they need excised.

                        The skin issues are also a side effect of zelboraf.My regular dermatologist just happens to work some with my cancer center doctors so he is familiar with zelboraf.I have seen posts where people said their doctors were not familiar with the med.

                         I take a 50,000 vitamin D3 prescription every two weeks–many sources recommend vit D for cancer patients.I take a turmeric capsule on my own.I drink organic whole milk.I try to eat many vegetables like broccoli,cooked tomatoes –and any that articles recommend  –and seem to need protein too–eating well makes me feel better.I don't do as much as I had hoped to because your energy level is down some and eating well involves shopping -preparing ,cooking and dishes–I do believe it is important though

                        Pharmacist from company that calls does not want me to drink alcohol at all(not even the drink I enjoyed eating out once a month)

                        I also think about interactions from taking other herbs or meds.The nurse said some people take way too many so be cautious.

                        I took ibuprofen for joint pain and they switched me to Advil because of possible kidney effects.However the pharmacist said they were in the same family so… anyway I only take if I need too.

                        I hope your brother feels better soon.I feel better than I expected to feel but  do have to do less than I used to.

                         

                        joycedixon
                        Participant

                          Thank you,Tina!

                          My first spot was six years ago followed by regular visits but no problems. You seem to have been

                          fightng this whole time.Indeed,we are grateful to still be around.I don't think always being watchful is

                          negative just cautious–it comes back too often to disregard–

                          joycedixon
                          Participant

                            Thank you,Tina!

                            My first spot was six years ago followed by regular visits but no problems. You seem to have been

                            fightng this whole time.Indeed,we are grateful to still be around.I don't think always being watchful is

                            negative just cautious–it comes back too often to disregard–

                            joycedixon
                            Participant

                              Thank you,Tina!

                              My first spot was six years ago followed by regular visits but no problems. You seem to have been

                              fightng this whole time.Indeed,we are grateful to still be around.I don't think always being watchful is

                              negative just cautious–it comes back too often to disregard–

                              joycedixon
                              Participant

                                Thank you ! How long was your husband on zelboraf?

                                joycedixon
                                Participant

                                  Thank you ! How long was your husband on zelboraf?

                                  joycedixon
                                  Participant

                                    Thank you ! How long was your husband on zelboraf?

                                Viewing 5 reply threads
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