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Julie May

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      Julie May
      Participant

        Well, after the initial round of pathology work which showed nothing, they've done genetic testing and the particular marker genes are mutated which apparently definitely means melanoma. I will learn more as this process unfolds. Of course, I hope they are wrong — and my daughter was misdiagnosed completely with a different horror when she was 6 — so it can happen. I'm not counting on it, though. Just trying to surf this and working on framing it for her when I tell her on Sunday before our Monday appointment. Thank you again.

        Julie May
        Participant

          Well, after the initial round of pathology work which showed nothing, they've done genetic testing and the particular marker genes are mutated which apparently definitely means melanoma. I will learn more as this process unfolds. Of course, I hope they are wrong — and my daughter was misdiagnosed completely with a different horror when she was 6 — so it can happen. I'm not counting on it, though. Just trying to surf this and working on framing it for her when I tell her on Sunday before our Monday appointment. Thank you again.

          Julie May
          Participant

            Well, after the initial round of pathology work which showed nothing, they've done genetic testing and the particular marker genes are mutated which apparently definitely means melanoma. I will learn more as this process unfolds. Of course, I hope they are wrong — and my daughter was misdiagnosed completely with a different horror when she was 6 — so it can happen. I'm not counting on it, though. Just trying to surf this and working on framing it for her when I tell her on Sunday before our Monday appointment. Thank you again.

            Julie May
            Participant

              Thanks very much for the name. Dr. Leboit at UCSF did all the pathology. We have an appointment with Dr. Kashani at CPMC for Monday. If that doesn't seem like the right path, I'll see if we can see Dr. Boris Bastian at UCSF. Thanks again to everyone who responded to me. It feels like hands held out to me in the darkness.

              Julie May
              Participant

                Thanks very much for the name. Dr. Leboit at UCSF did all the pathology. We have an appointment with Dr. Kashani at CPMC for Monday. If that doesn't seem like the right path, I'll see if we can see Dr. Boris Bastian at UCSF. Thanks again to everyone who responded to me. It feels like hands held out to me in the darkness.

                Julie May
                Participant

                  Thanks very much for the name. Dr. Leboit at UCSF did all the pathology. We have an appointment with Dr. Kashani at CPMC for Monday. If that doesn't seem like the right path, I'll see if we can see Dr. Boris Bastian at UCSF. Thanks again to everyone who responded to me. It feels like hands held out to me in the darkness.

                  Julie May
                  Participant

                    Thanks very much for the recommendation!

                    Julie May
                    Participant

                      Thanks very much for the recommendation!

                      Julie May
                      Participant

                        Thanks very much for the recommendation!

                        Julie May
                        Participant

                          Thanks very much for your advice. I've taken notes and now we are just waiting on our doctor visit on Monday. I am calmer now and have some idea of what questions to ask.

                          Julie May
                          Participant

                            Thanks very much for your advice. I've taken notes and now we are just waiting on our doctor visit on Monday. I am calmer now and have some idea of what questions to ask.

                            Julie May
                            Participant

                              Thanks very much for your advice. I've taken notes and now we are just waiting on our doctor visit on Monday. I am calmer now and have some idea of what questions to ask.

                              Julie May
                              Participant

                                Thank you, Gary, I appreciate your feedback. My daughter is strong and otherwise in perfect health, so I just pray it was caught early. I am going to do my best to frame it kind of one step at a time — hey, when they did that further testing on your mole it turns out that it was one of the bad kind, so we're going to see a specialist in San Francisco to get the rest of it taken out, and they might run some other tests too.

                                Julie May
                                Participant

                                  Thank you, Gary, I appreciate your feedback. My daughter is strong and otherwise in perfect health, so I just pray it was caught early. I am going to do my best to frame it kind of one step at a time — hey, when they did that further testing on your mole it turns out that it was one of the bad kind, so we're going to see a specialist in San Francisco to get the rest of it taken out, and they might run some other tests too.

                                  Julie May
                                  Participant

                                    Thank you, Gary, I appreciate your feedback. My daughter is strong and otherwise in perfect health, so I just pray it was caught early. I am going to do my best to frame it kind of one step at a time — hey, when they did that further testing on your mole it turns out that it was one of the bad kind, so we're going to see a specialist in San Francisco to get the rest of it taken out, and they might run some other tests too.

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