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JustOnceCubbies
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JustOnceCubbies

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      • December 19, 2013 at 6:00 am
      JustOnceCubbies
      Participant

        Hi Wayne.   I'm also starting year 4 on Sylatron.   You can follow my journey in my blog listed below my signature,and feel free to contact me if you want to talk to someone about in the same stage as you of treatment.    

         

         

        • December 19, 2013 at 6:00 am
        JustOnceCubbies
        Participant

          Hi Wayne.   I'm also starting year 4 on Sylatron.   You can follow my journey in my blog listed below my signature,and feel free to contact me if you want to talk to someone about in the same stage as you of treatment.    

           

           

          • December 19, 2013 at 6:00 am
          JustOnceCubbies
          Participant

            Hi Wayne.   I'm also starting year 4 on Sylatron.   You can follow my journey in my blog listed below my signature,and feel free to contact me if you want to talk to someone about in the same stage as you of treatment.    

             

             

            • December 19, 2013 at 5:55 am
            JustOnceCubbies
            Participant

              I have been on Sylatron for two years, and am dealing with the side effects well.   I just had a reoccurance of Melanoma in the same area and surgery yesterday.   I was also a fan of reading Jake's blog, as it helped with the early treatments and what to expect. 

               

              So…..I started my own blog, and have tried to keep adding to it as I see the need.   Just in case anyone is looking for a very simple, not written by a pharm company approach to it.

               

              http://www.thepeters4.blogspot.com

               

              I hope anyone that is looking for info is able to benefit from it….thanks.

               

              Mike

              • December 19, 2013 at 5:55 am
              JustOnceCubbies
              Participant

                I have been on Sylatron for two years, and am dealing with the side effects well.   I just had a reoccurance of Melanoma in the same area and surgery yesterday.   I was also a fan of reading Jake's blog, as it helped with the early treatments and what to expect. 

                 

                So…..I started my own blog, and have tried to keep adding to it as I see the need.   Just in case anyone is looking for a very simple, not written by a pharm company approach to it.

                 

                http://www.thepeters4.blogspot.com

                 

                I hope anyone that is looking for info is able to benefit from it….thanks.

                 

                Mike

                • December 19, 2013 at 5:55 am
                JustOnceCubbies
                Participant

                  I have been on Sylatron for two years, and am dealing with the side effects well.   I just had a reoccurance of Melanoma in the same area and surgery yesterday.   I was also a fan of reading Jake's blog, as it helped with the early treatments and what to expect. 

                   

                  So…..I started my own blog, and have tried to keep adding to it as I see the need.   Just in case anyone is looking for a very simple, not written by a pharm company approach to it.

                   

                  http://www.thepeters4.blogspot.com

                   

                  I hope anyone that is looking for info is able to benefit from it….thanks.

                   

                  Mike

                  • September 9, 2013 at 5:42 pm
                  JustOnceCubbies
                  Participant

                    My surgical oncologist was involved in the study at John Wayne………so only if you were enrolled in that study would there be a need for further evaluation of the nodes.

                    • September 9, 2013 at 5:42 pm
                    JustOnceCubbies
                    Participant

                      My surgical oncologist was involved in the study at John Wayne………so only if you were enrolled in that study would there be a need for further evaluation of the nodes.

                      • September 9, 2013 at 5:42 pm
                      JustOnceCubbies
                      Participant

                        My surgical oncologist was involved in the study at John Wayne………so only if you were enrolled in that study would there be a need for further evaluation of the nodes.

                        • September 9, 2013 at 4:06 pm
                        JustOnceCubbies
                        Participant

                          It was the Sun Belt Trial…………..after 2 months of being miserable, and 6 months of marginally better (and losing 40 pounds) I stopped the Interferon.   But we also looked at the statistical benefits of continuing the Interferon, and learned there was VERY little benefit compared to the downside of the side effects.   That is why I'm wondering if there is a statistical study with Sylatron, because if there is a 5% improvement in life expectancy, then I question the quality of life from the side affects.

                          • September 9, 2013 at 4:06 pm
                          JustOnceCubbies
                          Participant

                            It was the Sun Belt Trial…………..after 2 months of being miserable, and 6 months of marginally better (and losing 40 pounds) I stopped the Interferon.   But we also looked at the statistical benefits of continuing the Interferon, and learned there was VERY little benefit compared to the downside of the side effects.   That is why I'm wondering if there is a statistical study with Sylatron, because if there is a 5% improvement in life expectancy, then I question the quality of life from the side affects.

                            • September 9, 2013 at 4:06 pm
                            JustOnceCubbies
                            Participant

                              It was the Sun Belt Trial…………..after 2 months of being miserable, and 6 months of marginally better (and losing 40 pounds) I stopped the Interferon.   But we also looked at the statistical benefits of continuing the Interferon, and learned there was VERY little benefit compared to the downside of the side effects.   That is why I'm wondering if there is a statistical study with Sylatron, because if there is a 5% improvement in life expectancy, then I question the quality of life from the side affects.

                              • September 9, 2013 at 3:50 pm
                              JustOnceCubbies
                              Participant

                                I was in a study that was based out of the John Wayne Cancer Institute in Cali.    They sent off my lymph nodes that were "clear" from the local path that was done, but showed signs of pre-cancerous cells in Cali.  I then went to MD Anderson for a second opinion, and after they looked at the results from Cali, they suggested the most aggressive form of treatment, that was also the most thorough form of treatment, which was to start Interferon.

                                • September 9, 2013 at 3:50 pm
                                JustOnceCubbies
                                Participant

                                  I was in a study that was based out of the John Wayne Cancer Institute in Cali.    They sent off my lymph nodes that were "clear" from the local path that was done, but showed signs of pre-cancerous cells in Cali.  I then went to MD Anderson for a second opinion, and after they looked at the results from Cali, they suggested the most aggressive form of treatment, that was also the most thorough form of treatment, which was to start Interferon.

                                  • September 9, 2013 at 3:50 pm
                                  JustOnceCubbies
                                  Participant

                                    I was in a study that was based out of the John Wayne Cancer Institute in Cali.    They sent off my lymph nodes that were "clear" from the local path that was done, but showed signs of pre-cancerous cells in Cali.  I then went to MD Anderson for a second opinion, and after they looked at the results from Cali, they suggested the most aggressive form of treatment, that was also the most thorough form of treatment, which was to start Interferon.

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