The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Kelley888

Forum Replies Created

Viewing 1 reply thread
  • Replies
      Kelley888
      Participant
        My 1a returned 15 years later. Three doctors dismissed my concerns that melanoma could come back after such a long period. Well, it did. And the melanoma specialist that I am now seeing says that the cells can stay dormant for a long time … recurrence is not as uncommon as they once thought.
        Better to remain vigilant.
        Kelley888
        Participant
          Thanks Melody, it does. The stabbing pains tapered off after a day or so, but that gut-burn has persisted. My gut feels raw and sore. The docs seem mostly concerned about eliminating the possibility of colitis … while I have had diarrhea for a while, it is not bad enough to raise flags. I’ll chalk it up to yet another odd side effect. Or a sign that the medication is doing it’s job and destroying those rogue cells 🙂
          Kelley888
          Participant
            I only put my North shirt on in the third … I was on the sofa in pain and did not feel like moving. I forced myself to get up and put it on when they fell behind and … boom! game changer! Hahahaha
            Kelley888
            Participant
              Thanks so much for your feedback Melanie!
              I read that “intense abdominal pain” is one of the common side effects of Keytruda. I told my oncologist about the abdominal tenderness (I have had it off and on from the beginning). His concern is colitis, so I watch for other symptoms of that.
              I have left a message for callback from my oncology nurse about these new sharper pains, and I predict that once again I will be warned to be on the lookout for other signs of colitis. This drug is still so new that I think that even the experts are still not certain about what symptoms mean what! I have learned a lot from the anecdotes I have found on this forum, — valuable complementary information from people who have lived it!
              I really hope that the new pain is a sign that my body has turned its attention to all the lesions in my abdomen.
              I was just in TO last weekend — I have my We The North shirt ready to wear for tonight’s game 🙂
              Thanks again … it is comforting having a forum like this to turn to.
          Viewing 1 reply thread
          About the MRF Patient Forum

          The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

          The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

          Popular Topics