Kev12

Hi all

So today was a roller coaster of note. I got called and given an ‘interim’ all clear re my sentinel nodes but my surgeon told me that the pathologists were still performing two more tests. Well, I just got a phone call now to inform me that the tests picked up mets in my sentinels. To say that I am gutted is an understatement. I was told that the mets are tiny- 2 clusters- one with two cells and one with three.

My surgeon reckons its so minute that its not worth removing more lymph nodes but He has referred me to an oncologist and seems to think that I will have to have a PET scan and hear what she thinks.

Guys- all of you who have been through this- how bad is this? Is this the type of news that means that I cannot responsibly consider still having kids? Man this beast sucks!

Hi all

So today was a roller coaster of note. I got called and given an ‘interim’ all clear re my sentinel nodes but my surgeon told me that the pathologists were still performing two more tests. Well, I just got a phone call now to inform me that the tests picked up mets in my sentinels. To say that I am gutted is an understatement. I was told that the mets are tiny- 2 clusters- one with two cells and one with three.

My surgeon reckons its so minute that its not worth removing more lymph nodes but He has referred me to an oncologist and seems to think that I will have to have a PET scan and hear what she thinks.

Guys- all of you who have been through this- how bad is this? Is this the type of news that means that I cannot responsibly consider still having kids? Man this beast sucks!

Hi all

So today was a roller coaster of note. I got called and given an ‘interim’ all clear re my sentinel nodes but my surgeon told me that the pathologists were still performing two more tests. Well, I just got a phone call now to inform me that the tests picked up mets in my sentinels. To say that I am gutted is an understatement. I was told that the mets are tiny- 2 clusters- one with two cells and one with three.

My surgeon reckons its so minute that its not worth removing more lymph nodes but He has referred me to an oncologist and seems to think that I will have to have a PET scan and hear what she thinks.

Guys- all of you who have been through this- how bad is this? Is this the type of news that means that I cannot responsibly consider still having kids? Man this beast sucks!

Hi all- thanks so much for all the responses and support- it’s really been a God send.
My update- had blood work done and CT scans with IV which all came back clean! That was such a relief. Yesterday I had the lymphoscintigraphy which picked up 2 nodes and I went ino surgery today for a wide excision and node biopsy. So glad that is over! Apparently my nodes looked rather big but it could be as a result of the healing to my first excision- so I am holding thumbs! I should get the results tomorrow. My whole leg is covered in compression bandages and pretty sore but at least the pain meds are strong!

I live in Cape Town, South Africa- which has more sun than my fair skin can clearly handle!

Hi all- thanks so much for all the responses and support- it’s really been a God send.
My update- had blood work done and CT scans with IV which all came back clean! That was such a relief. Yesterday I had the lymphoscintigraphy which picked up 2 nodes and I went ino surgery today for a wide excision and node biopsy. So glad that is over! Apparently my nodes looked rather big but it could be as a result of the healing to my first excision- so I am holding thumbs! I should get the results tomorrow. My whole leg is covered in compression bandages and pretty sore but at least the pain meds are strong!

I live in Cape Town, South Africa- which has more sun than my fair skin can clearly handle!

Hi all- thanks so much for all the responses and support- it’s really been a God send.
My update- had blood work done and CT scans with IV which all came back clean! That was such a relief. Yesterday I had the lymphoscintigraphy which picked up 2 nodes and I went ino surgery today for a wide excision and node biopsy. So glad that is over! Apparently my nodes looked rather big but it could be as a result of the healing to my first excision- so I am holding thumbs! I should get the results tomorrow. My whole leg is covered in compression bandages and pretty sore but at least the pain meds are strong!

I live in Cape Town, South Africa- which has more sun than my fair skin can clearly handle!

Brendan and POW

 

Thanks! Wise advice and both messages have conciously made me more positive about the rest of this week already. Thank you both so much for taking the time to reply.

And it is very true re the internet! After about the first 30 mins of research I had almost convinced myself that I had at most a year or two left. I am now trying to only research everything further on 'official' melanoma sites. This site has been an amazing comfort as well as an alarming eye opener at the same time. Keep Calm and Carry On I guess… I just found out my surgeon is not in office today so I will only get the CT scan results tomorrow- scanxiety for another 24 hours! 

Brendan and POW

 

Thanks! Wise advice and both messages have conciously made me more positive about the rest of this week already. Thank you both so much for taking the time to reply.

And it is very true re the internet! After about the first 30 mins of research I had almost convinced myself that I had at most a year or two left. I am now trying to only research everything further on 'official' melanoma sites. This site has been an amazing comfort as well as an alarming eye opener at the same time. Keep Calm and Carry On I guess… I just found out my surgeon is not in office today so I will only get the CT scan results tomorrow- scanxiety for another 24 hours! 

Brendan and POW

 

Thanks! Wise advice and both messages have conciously made me more positive about the rest of this week already. Thank you both so much for taking the time to reply.

And it is very true re the internet! After about the first 30 mins of research I had almost convinced myself that I had at most a year or two left. I am now trying to only research everything further on 'official' melanoma sites. This site has been an amazing comfort as well as an alarming eye opener at the same time. Keep Calm and Carry On I guess… I just found out my surgeon is not in office today so I will only get the CT scan results tomorrow- scanxiety for another 24 hours!