@kfalkinburg
Forum Replies Created
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- July 27, 2011 at 4:59 pm
Thank you for the kind words! My Dad is an amazing man…the world will surely be less one great man when he passes. He isn't fairing very well with treatments and the side effects from the brain tumor have debilitated him. His tumor is in the pons area of his brain and it is inoperable. It is amazing how quickly the disease can ravage a persons body. He, like me, kept on top of his follow up care. Never missed an appointment in the 10 years he was cancer free (PET scans,MRI's, bloodwork, xrays). My fathers depth at diagnosis was deeper than mine. He was 58 when initially diagnosed…I was 43.
I just thought I would see if my treatment was in line with others. Knowing that it is definitely gives me the peace of mind knowing that I am doing all I can do. I enjoy each day, live life to the fullest and love my life!
Certainly don't feel strange about giving advice. I find that we all become fast friends when you have such a nasty disease in common.
Be healthy!
Karin
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- July 27, 2011 at 4:59 pm
Thank you for the kind words! My Dad is an amazing man…the world will surely be less one great man when he passes. He isn't fairing very well with treatments and the side effects from the brain tumor have debilitated him. His tumor is in the pons area of his brain and it is inoperable. It is amazing how quickly the disease can ravage a persons body. He, like me, kept on top of his follow up care. Never missed an appointment in the 10 years he was cancer free (PET scans,MRI's, bloodwork, xrays). My fathers depth at diagnosis was deeper than mine. He was 58 when initially diagnosed…I was 43.
I just thought I would see if my treatment was in line with others. Knowing that it is definitely gives me the peace of mind knowing that I am doing all I can do. I enjoy each day, live life to the fullest and love my life!
Certainly don't feel strange about giving advice. I find that we all become fast friends when you have such a nasty disease in common.
Be healthy!
Karin
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- July 27, 2011 at 4:51 pm
Ok so with each reply I feel better! Thank you Janner. My depth was 1.1 and my fathers was 2.0 at initial diagnosis. I really do live life to the fullest but I always have a slight concern when it comes to my health. I feel that you can never be too careful. Especially when you see someone you love so dearly suffer so much!
I appreciate your response…be healthy!
Karin
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- July 27, 2011 at 4:51 pm
Ok so with each reply I feel better! Thank you Janner. My depth was 1.1 and my fathers was 2.0 at initial diagnosis. I really do live life to the fullest but I always have a slight concern when it comes to my health. I feel that you can never be too careful. Especially when you see someone you love so dearly suffer so much!
I appreciate your response…be healthy!
Karin
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- July 27, 2011 at 4:45 pm
Thank you Michael! I appreciate your response. I just felt that it may be worth it to "pick someone else's brain" to see if my care is consistent with others. I do have a great dermatologist and I visit every three months. That coupled with my surgical oncologists appointments every six months seems in line with everyone else. I absolutely keep on top of my follow up care and I don't let the thought of recurrence stop me from enjoying my life. I live every day to the fullest…I am beyond blessed!
Mr father's oncologist did contact the thoracic surgeon who removed my fathers lung to see if they tested him for the BRAF mutation but unfortunately they did not. So far his oncologist has not recommended it but I believe that is because he is so ill. Most days getting out of bed is a struggle. He is 69 years old and has deteriorated extremely fast over the past three months.
Tthanks again for your response…be happy and healthy!
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- July 27, 2011 at 4:45 pm
Thank you Michael! I appreciate your response. I just felt that it may be worth it to "pick someone else's brain" to see if my care is consistent with others. I do have a great dermatologist and I visit every three months. That coupled with my surgical oncologists appointments every six months seems in line with everyone else. I absolutely keep on top of my follow up care and I don't let the thought of recurrence stop me from enjoying my life. I live every day to the fullest…I am beyond blessed!
Mr father's oncologist did contact the thoracic surgeon who removed my fathers lung to see if they tested him for the BRAF mutation but unfortunately they did not. So far his oncologist has not recommended it but I believe that is because he is so ill. Most days getting out of bed is a struggle. He is 69 years old and has deteriorated extremely fast over the past three months.
Tthanks again for your response…be happy and healthy!
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- June 1, 2011 at 7:03 pm
I am curious how you your IPI treatment approved with BCBS as well. Can you give any advice?? My Dad is currently stage 4 (mets on brian, liver, lungs and now bone) diagnosed April '11. BCBS has spent the past month denying his treatment for every possible reason imaginable. Their latest is to say that it is an "investigational drug" according to the list of approved BCBS drugs. He was diagnosed 41/2 weeks ago and has YET to receive any treatment. Oncologist today referred him to Cancer Institute of NJ (where I had my treatment) to get enrolled in clinical trial. We have filed a written appeal which will take a minimum of 45 days, consulted an attorney AND his oncologist did a peer-to-peer review with BCBS…still denied! We feel that this is immoral and unethical. He is a human being and it seems as though to ask for treatment is an unrealistic request. Any advice would be greatly apprecited.
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- June 1, 2011 at 7:03 pm
I am curious how you your IPI treatment approved with BCBS as well. Can you give any advice?? My Dad is currently stage 4 (mets on brian, liver, lungs and now bone) diagnosed April '11. BCBS has spent the past month denying his treatment for every possible reason imaginable. Their latest is to say that it is an "investigational drug" according to the list of approved BCBS drugs. He was diagnosed 41/2 weeks ago and has YET to receive any treatment. Oncologist today referred him to Cancer Institute of NJ (where I had my treatment) to get enrolled in clinical trial. We have filed a written appeal which will take a minimum of 45 days, consulted an attorney AND his oncologist did a peer-to-peer review with BCBS…still denied! We feel that this is immoral and unethical. He is a human being and it seems as though to ask for treatment is an unrealistic request. Any advice would be greatly apprecited.
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