The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

khimes

Forum Replies Created

Viewing 2 reply threads
  • Replies
      khimes
      Participant

        Thanks for sharing your experiences on cost.  it seems I have inqueries to make to see if I can find other options.  I smply chose my current center for location

         

        Thanks again!

        khimes
        Participant

          Started Opdivo as a Adjuvant this past thursday for Stage 3c.  After 1st treatement no real side effects to report. maybe a bit tired … but not uncommon for me at times.  I am doing 13 treatments 1 time every 4 weeks. next one is june 7th.  wishing all of the best!

          khimes
          Participant

            Sorry for you news.  I was at the same spot you are now at the end of March of this year.

            2.9 mm deep, calf, High metotic rate (12.)  I had the SNB, 2 nodes, came back negative.  For now I guess I only have to routine exams by my Dermatologist.

            Try not get to far ahead … It is difficult… but wait for your staging. 

            khimes
            Participant

              I don't post as much as I read here … but my experience is much like your husbands.  first diagnosed March 28th 2015.  I was refered to U of M.  Dr Cohen did the WME and the SB. Procedure completed the end of May.  My expericence with U of M and Dr Cohen was great.

              more details:

              breslow 2.9, no ulceration, mitotic 12.  To date no nodal involvment.

              Wishing you and your family the best!

              khimes
              Participant

                I don't post as much as I read here … but my experience is much like your husbands.  first diagnosed March 28th 2015.  I was refered to U of M.  Dr Cohen did the WME and the SB. Procedure completed the end of May.  My expericence with U of M and Dr Cohen was great.

                more details:

                breslow 2.9, no ulceration, mitotic 12.  To date no nodal involvment.

                Wishing you and your family the best!

                khimes
                Participant

                  I don't post as much as I read here … but my experience is much like your husbands.  first diagnosed March 28th 2015.  I was refered to U of M.  Dr Cohen did the WME and the SB. Procedure completed the end of May.  My expericence with U of M and Dr Cohen was great.

                  more details:

                  breslow 2.9, no ulceration, mitotic 12.  To date no nodal involvment.

                  Wishing you and your family the best!

                  khimes
                  Participant

                    mdoh,  you are about right where I was two months ago. My stats from the path, as I stated, earlier, are similar to yours, even a little worse.  I remember the stress and fear of worst case possibilities.  My derm told be worrying is counter productive and changes nothing … easy said … and true…. but difficult just the same.

                    I found this sight to help me cope.   knowing what my diagnoses could bring for both good and bad outcomes.  Although I do think we are all different.  I actually expected a worse outcome.

                    To answer your question… I waited a long 6 days for my SLNB results as they have to go to pathology, but my surgical oncologist did comment right after the procedure the nodes looked good.

                    Can I ask what part of your leg is your primary and what hospital you going to?

                     

                     

                    khimes
                    Participant

                      mdoh,  you are about right where I was two months ago. My stats from the path, as I stated, earlier, are similar to yours, even a little worse.  I remember the stress and fear of worst case possibilities.  My derm told be worrying is counter productive and changes nothing … easy said … and true…. but difficult just the same.

                      I found this sight to help me cope.   knowing what my diagnoses could bring for both good and bad outcomes.  Although I do think we are all different.  I actually expected a worse outcome.

                      To answer your question… I waited a long 6 days for my SLNB results as they have to go to pathology, but my surgical oncologist did comment right after the procedure the nodes looked good.

                      Can I ask what part of your leg is your primary and what hospital you going to?

                       

                       

                      khimes
                      Participant

                        mdoh,  you are about right where I was two months ago. My stats from the path, as I stated, earlier, are similar to yours, even a little worse.  I remember the stress and fear of worst case possibilities.  My derm told be worrying is counter productive and changes nothing … easy said … and true…. but difficult just the same.

                        I found this sight to help me cope.   knowing what my diagnoses could bring for both good and bad outcomes.  Although I do think we are all different.  I actually expected a worse outcome.

                        To answer your question… I waited a long 6 days for my SLNB results as they have to go to pathology, but my surgical oncologist did comment right after the procedure the nodes looked good.

                        Can I ask what part of your leg is your primary and what hospital you going to?

                         

                         

                        khimes
                        Participant

                          Sorry for the delay in replying to you question.  I landed at 2A stage.  Feeling very blessed and praying for others dealing with the battle.

                           

                          khimes
                          Participant

                            Sorry for the delay in replying to you question.  I landed at 2A stage.  Feeling very blessed and praying for others dealing with the battle.

                             

                            khimes
                            Participant

                              Sorry for the delay in replying to you question.  I landed at 2A stage.  Feeling very blessed and praying for others dealing with the battle.

                               

                              khimes
                              Participant

                                I had blood tested for LDH which was in normal range.  Did not need a PET but did have chest xray done also normal.  As Jenner stated mitotic rate was counted from the biopsy.  As it was explained to me…the level of screening is determined by staging starting with biopsy, WME, SNB.

                                khimes
                                Participant

                                  I had blood tested for LDH which was in normal range.  Did not need a PET but did have chest xray done also normal.  As Jenner stated mitotic rate was counted from the biopsy.  As it was explained to me…the level of screening is determined by staging starting with biopsy, WME, SNB.

                                  khimes
                                  Participant

                                    I had blood tested for LDH which was in normal range.  Did not need a PET but did have chest xray done also normal.  As Jenner stated mitotic rate was counted from the biopsy.  As it was explained to me…the level of screening is determined by staging starting with biopsy, WME, SNB.

                                Viewing 2 reply threads
                                About the MRF Patient Forum

                                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.