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ktode10910

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      ktode10910
      Participant

        HI Robbie,

        I think that all sounds exactly correct for treatment from where you are and out.  Those were all the same tests I had for my original Stage III.  LIkely, they will recommend a treatment course as well.  I had many lymp nodes removed with my original diagnosis (mine has now recurred ten years later back to my lymph system) so if they can take them–take them!  I did well with that surgery.  It did leave me with lymphadema in my left leg (as my original melanoma was in my left groin) so I do have swelling in that leg that can be managed by a stocking when needed but really isn't anything that affects my daily life.  My drain did get infected with my first surgery all those years ago, but maybe they are better now.  It was a simple cellulitis that was easily treated.  

        I hope that helps and best of luck–it sounds like your oncologist is right on track for exactly what I've seen before and would be recommended.  Just don't be surprosed if they add in a medicinal treatment option as well. 

        ktode10910
        Participant

          Thank you so much for your reply!  This is great information and I did question my port–it was decided to do it though because I have so much scar tissue from having to access veins for Interferon 10 years ago.  It has been bothering me, but I hope it settles in and works well.  If you would keep me updated on how you progress, I'd really appreciate it. Anything I can know or anything that works for you tips/tricks, etc is all super helpful!

          ktode10910
          Participant

            Thank you so much for replying!  It is so good to hear positive reports.  I am praying, hoping, and dreaming this is indeed the treatment to keep me alive for my two year old and cancer free in the fututre. 

            Thanks again 🙂 

            ktode10910
            Participant

              Thank you for the reply!  I am in the Chicago area, and I am looking into a seocnd opinion.  Currently. I am happy with the oncologist I have and want to start treatment, so I am not rushing it but I definitely want to get involved with a larger system (I am a Northwestern Medicine patient in the Western Suburbs right now) just to be sure I have all my options covered.  I used to see a Dr. Kauffman at Rush, but he has been long gone so I will look into Dr. Luke.  Thank you for replying!  

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