life is sweet

Hi Opal, I had desmoplastic melanoma as well.  I did not fit the description of  elderly male either as a 32 year old female.  I had desmoplastic melanoma in my left jaw on the mental nerve in the mental foramen.  I had my lower jaw removed and replaced with my left fibula.  My tumor was also painful at times and always uncomfortable.  It would itch like crazy internally so that i could not relieve the itch, it would tingle (like when you sit on your leg for too long), it would burn, and at times it would have sharp pains.

How did your biopsy and surgery go? Are you cancer free now?

I look forward to hearing from you I went to the Miles for Melanoma walk yesterday in Los Angeles hoping to meet someone else that has had, have or heard of desmoplastic melanoma and had no luck.

Hi Opal, I had desmoplastic melanoma as well.  I did not fit the description of  elderly male either as a 32 year old female.  I had desmoplastic melanoma in my left jaw on the mental nerve in the mental foramen.  I had my lower jaw removed and replaced with my left fibula.  My tumor was also painful at times and always uncomfortable.  It would itch like crazy internally so that i could not relieve the itch, it would tingle (like when you sit on your leg for too long), it would burn, and at times it would have sharp pains.

How did your biopsy and surgery go? Are you cancer free now?

I look forward to hearing from you I went to the Miles for Melanoma walk yesterday in Los Angeles hoping to meet someone else that has had, have or heard of desmoplastic melanoma and had no luck.

Hi Opal, I had desmoplastic melanoma as well.  I did not fit the description of  elderly male either as a 32 year old female.  I had desmoplastic melanoma in my left jaw on the mental nerve in the mental foramen.  I had my lower jaw removed and replaced with my left fibula.  My tumor was also painful at times and always uncomfortable.  It would itch like crazy internally so that i could not relieve the itch, it would tingle (like when you sit on your leg for too long), it would burn, and at times it would have sharp pains.

How did your biopsy and surgery go? Are you cancer free now?

I look forward to hearing from you I went to the Miles for Melanoma walk yesterday in Los Angeles hoping to meet someone else that has had, have or heard of desmoplastic melanoma and had no luck.

Hi MacMac, yeah I call it my old man cancer.  I was diagnosed at 32.  I have not found very much information. Only that it is very rare and usually found in elderly men.  My progress has been good.  I have been cancer free since my first surgery in April 2012.  I have my six month scans again next month, so getting the anxiety that I get every six months.  My desmoplastic melanoma was in my left lower jaw.  So I had a free flap done which uses my fibula, tissue and skin to reconstruct my jaw.  I then had 30 treatments of radiation. After radiation, I took a break from reconstruction to have a baby.  I was newly married I was diagnosed exactly one month before our wedding.  My first surgery was the day after we returned from our honeymoon.  Now that we have a healthy, happy little girl we have been finishing the reconstructive portion of recovery the goal is to eventually have teeth on my lower left side and fix a large gap in my lips.  I had a surgery in April 2014 and 30 treatments in a hyperbaric chamber.  I had another surgery in September 2014.  I have another scheduled for December.  Some days are harder than others; I wonder how much longer until life is “normal” again and not revolving around surgeries and doctor appointments.  

How are you doing?

Hi MacMac, yeah I call it my old man cancer.  I was diagnosed at 32.  I have not found very much information. Only that it is very rare and usually found in elderly men.  My progress has been good.  I have been cancer free since my first surgery in April 2012.  I have my six month scans again next month, so getting the anxiety that I get every six months.  My desmoplastic melanoma was in my left lower jaw.  So I had a free flap done which uses my fibula, tissue and skin to reconstruct my jaw.  I then had 30 treatments of radiation. After radiation, I took a break from reconstruction to have a baby.  I was newly married I was diagnosed exactly one month before our wedding.  My first surgery was the day after we returned from our honeymoon.  Now that we have a healthy, happy little girl we have been finishing the reconstructive portion of recovery the goal is to eventually have teeth on my lower left side and fix a large gap in my lips.  I had a surgery in April 2014 and 30 treatments in a hyperbaric chamber.  I had another surgery in September 2014.  I have another scheduled for December.  Some days are harder than others; I wonder how much longer until life is “normal” again and not revolving around surgeries and doctor appointments.  

How are you doing?

Hi MacMac, yeah I call it my old man cancer.  I was diagnosed at 32.  I have not found very much information. Only that it is very rare and usually found in elderly men.  My progress has been good.  I have been cancer free since my first surgery in April 2012.  I have my six month scans again next month, so getting the anxiety that I get every six months.  My desmoplastic melanoma was in my left lower jaw.  So I had a free flap done which uses my fibula, tissue and skin to reconstruct my jaw.  I then had 30 treatments of radiation. After radiation, I took a break from reconstruction to have a baby.  I was newly married I was diagnosed exactly one month before our wedding.  My first surgery was the day after we returned from our honeymoon.  Now that we have a healthy, happy little girl we have been finishing the reconstructive portion of recovery the goal is to eventually have teeth on my lower left side and fix a large gap in my lips.  I had a surgery in April 2014 and 30 treatments in a hyperbaric chamber.  I had another surgery in September 2014.  I have another scheduled for December.  Some days are harder than others; I wonder how much longer until life is “normal” again and not revolving around surgeries and doctor appointments.  

How are you doing?