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lizzykittycat

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      lizzykittycat
      Participant

        i had a pet/ct a few weeks ago before a lymphadenectomy.  my dr stated that he saw 2 things in my neck.  he said it was bilateral and couldn't be identified.  said he thinks it's nohing, but we will repeat in three months – which i think we would've been doing anyway for awhile since i'm newly diagnosed.  it was confusing to me also… has anyone ever heard of something of this nature?  my surgeon loves to tell me all the time how there's the school of thought that we over-test and scan and that so often it's just "stuff" going on.  had we not scanned and tested, it would've just "gone on" and done no harm and scared no one.  but, with the melanoma now, the book is officially open.  every "thing" going on will scare  me!

        lizzykittycat
        Participant

          i had a pet/ct a few weeks ago before a lymphadenectomy.  my dr stated that he saw 2 things in my neck.  he said it was bilateral and couldn't be identified.  said he thinks it's nohing, but we will repeat in three months – which i think we would've been doing anyway for awhile since i'm newly diagnosed.  it was confusing to me also… has anyone ever heard of something of this nature?  my surgeon loves to tell me all the time how there's the school of thought that we over-test and scan and that so often it's just "stuff" going on.  had we not scanned and tested, it would've just "gone on" and done no harm and scared no one.  but, with the melanoma now, the book is officially open.  every "thing" going on will scare  me!

          lizzykittycat
          Participant

            i had a pet/ct a few weeks ago before a lymphadenectomy.  my dr stated that he saw 2 things in my neck.  he said it was bilateral and couldn't be identified.  said he thinks it's nohing, but we will repeat in three months – which i think we would've been doing anyway for awhile since i'm newly diagnosed.  it was confusing to me also… has anyone ever heard of something of this nature?  my surgeon loves to tell me all the time how there's the school of thought that we over-test and scan and that so often it's just "stuff" going on.  had we not scanned and tested, it would've just "gone on" and done no harm and scared no one.  but, with the melanoma now, the book is officially open.  every "thing" going on will scare  me!

            lizzykittycat
            Participant
              I have been in your position. It sucks. It would almost be easier if WE didn’t have to make the decision. Search my posts though… I’ve asked a few times and have gotten some invaluable advice. I did the surgery. Last week. Recovering now. The drain is a bit gross but not so bad. In fact I think it may be helping to reduce what was pretty major swelling ore-op. feel free to keep in touch or ask anynquestions. Sorry for typos. On iPad and HATE it,
              lizzykittycat
              Participant
                I have been in your position. It sucks. It would almost be easier if WE didn’t have to make the decision. Search my posts though… I’ve asked a few times and have gotten some invaluable advice. I did the surgery. Last week. Recovering now. The drain is a bit gross but not so bad. In fact I think it may be helping to reduce what was pretty major swelling ore-op. feel free to keep in touch or ask anynquestions. Sorry for typos. On iPad and HATE it,
                lizzykittycat
                Participant
                  I have been in your position. It sucks. It would almost be easier if WE didn’t have to make the decision. Search my posts though… I’ve asked a few times and have gotten some invaluable advice. I did the surgery. Last week. Recovering now. The drain is a bit gross but not so bad. In fact I think it may be helping to reduce what was pretty major swelling ore-op. feel free to keep in touch or ask anynquestions. Sorry for typos. On iPad and HATE it,
                  lizzykittycat
                  Participant
                    Regarding the leg elevation… Do you recall how high leg was to be? If I have the option to borrow a comfy recliner, would you think it would be worth moving into my house? Thx.
                    lizzykittycat
                    Participant
                      Regarding the leg elevation… Do you recall how high leg was to be? If I have the option to borrow a comfy recliner, would you think it would be worth moving into my house? Thx.
                      lizzykittycat
                      Participant
                        Regarding the leg elevation… Do you recall how high leg was to be? If I have the option to borrow a comfy recliner, would you think it would be worth moving into my house? Thx.
                        lizzykittycat
                        Participant
                          Thx Cindy,

                          That’s encouraging to hear. I fear my swelling may be worse just bc I’m already going into the surgery w lymphemema from excision.

                          I was just wondering… If you don’t mind me asking… How is it that you are stage 4? I thought (and I’m sure I’m just ignorant of facts) that there had to be organ involvement. It’s so tough trying to “get” how it all works.

                          Thx!

                          lizzykittycat
                          Participant
                            Thx Cindy,

                            That’s encouraging to hear. I fear my swelling may be worse just bc I’m already going into the surgery w lymphemema from excision.

                            I was just wondering… If you don’t mind me asking… How is it that you are stage 4? I thought (and I’m sure I’m just ignorant of facts) that there had to be organ involvement. It’s so tough trying to “get” how it all works.

                            Thx!

                            lizzykittycat
                            Participant
                              Thx Cindy,

                              That’s encouraging to hear. I fear my swelling may be worse just bc I’m already going into the surgery w lymphemema from excision.

                              I was just wondering… If you don’t mind me asking… How is it that you are stage 4? I thought (and I’m sure I’m just ignorant of facts) that there had to be organ involvement. It’s so tough trying to “get” how it all works.

                              Thx!

                              lizzykittycat
                              Participant
                                Thx Cindy,

                                That’s encouraging to hear. I fear my swelling may be worse just bc I’m already going into the surgery w lymphemema from excision.

                                I was just wondering… If you don’t mind me asking… How is it that you are stage 4? I thought (and I’m sure I’m just ignorant of facts) that there had to be organ involvement. It’s so tough trying to “get” how it all works.

                                Thx!

                                lizzykittycat
                                Participant
                                  Thx Cindy,

                                  That’s encouraging to hear. I fear my swelling may be worse just bc I’m already going into the surgery w lymphemema from excision.

                                  I was just wondering… If you don’t mind me asking… How is it that you are stage 4? I thought (and I’m sure I’m just ignorant of facts) that there had to be organ involvement. It’s so tough trying to “get” how it all works.

                                  Thx!

                                  lizzykittycat
                                  Participant
                                    Thx Cindy,

                                    That’s encouraging to hear. I fear my swelling may be worse just bc I’m already going into the surgery w lymphemema from excision.

                                    I was just wondering… If you don’t mind me asking… How is it that you are stage 4? I thought (and I’m sure I’m just ignorant of facts) that there had to be organ involvement. It’s so tough trying to “get” how it all works.

                                    Thx!

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