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lshepard27
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lshepard27

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      • June 26, 2017 at 2:39 am
      lshepard27
      Participant

        Definitely, positively, without a doubt see a specialist and get second or third opinions.  This is a v. serious disease, and the bottomline: All Doctors Are Not Created Equal.  Find a top melanoma specialist/center.  Recommend this piece in Washington Post.  All doctors are not the same.  This woman's sister found treatment her NYC dr couldn't.

        https://www.washingtonpost.com/national/health-science/this-is-not-the-end-experimental-therapy-that-targets-genes-gives-cancer-patients-hope/2017/05/28/cdce31de-365c-11e7-b373-418f6849a004_story.html?utm_term=.a2499c223aaa

        • June 19, 2017 at 2:32 pm
        lshepard27
        Participant

          Donna –only 40 percent of people finish all four doses according to our Georgetown Dr  we only got one double dose in.  but that was enough to get things started. 

          • June 14, 2017 at 2:27 am
          lshepard27
          Participant

            How long did you have the treatment before stopping?  DId you have 2 treatments of Yervoy/Opdivo and then Opdivo only for a long time?  My partner has stage 4 melanoma with three tumors in the brain and some in lungs and liver.

            He only could handle one treatment of Yervoy/Opdivo.  And is now on Opdivo every two weeks. No side effects. And will be for the next 18 months. He's part of an experimental treatment at Georgetown.  He had surgery to remove three brain tumors. The immunotherapy seems to be shrinking the 3 remaining in the brain.  This is tough stuff.    

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