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magnus31

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      • April 14, 2015 at 5:51 pm
      magnus31
      Participant

        This sounds very interesting, thanks for sharing. Do you know which type of lesions are eligible for this treatment? Cutanous versus lesions in organs, etc? A link to more information about this therapy study would be appreciated.

        Best,

        Magnus

        • April 14, 2015 at 5:51 pm
        magnus31
        Participant

          This sounds very interesting, thanks for sharing. Do you know which type of lesions are eligible for this treatment? Cutanous versus lesions in organs, etc? A link to more information about this therapy study would be appreciated.

          Best,

          Magnus

          • April 14, 2015 at 5:51 pm
          magnus31
          Participant

            This sounds very interesting, thanks for sharing. Do you know which type of lesions are eligible for this treatment? Cutanous versus lesions in organs, etc? A link to more information about this therapy study would be appreciated.

            Best,

            Magnus

            • March 30, 2015 at 9:17 pm
            magnus31
            Participant

              Hi there,

               

              I was offered a 12 month Interferon treatment programme after I was diagnosed with 3A melanoma with primary on my upper arm. I was warned about side effects but told this was the only medical option at the point (adjuvant therapy).

              I decided to go for it. I hear many report about unbearable side effects. Fatigue and flu-like symptoms. I personally would characterize my side effects as minor. I usually felt a bit tired the day after taking them. Toward the end of the 12 month period, I started feeling anxious and claustrophobic, but I did manage to live with these without too many problems. Physically, I was quite fit, managing to run long 10K km runs two-three times every week, like I used to before starting treatment.

              Good luck with your choice.

               

              Magnus

              • March 30, 2015 at 9:17 pm
              magnus31
              Participant

                Hi there,

                 

                I was offered a 12 month Interferon treatment programme after I was diagnosed with 3A melanoma with primary on my upper arm. I was warned about side effects but told this was the only medical option at the point (adjuvant therapy).

                I decided to go for it. I hear many report about unbearable side effects. Fatigue and flu-like symptoms. I personally would characterize my side effects as minor. I usually felt a bit tired the day after taking them. Toward the end of the 12 month period, I started feeling anxious and claustrophobic, but I did manage to live with these without too many problems. Physically, I was quite fit, managing to run long 10K km runs two-three times every week, like I used to before starting treatment.

                Good luck with your choice.

                 

                Magnus

                • June 11, 2017 at 11:58 am
                magnus31
                Participant

                  Thank you Tom for this, very useful in order to understand how clinical trials work in the US.

                  • June 11, 2017 at 11:57 am
                  magnus31
                  Participant

                    Thank you Patrisa, will post to melanomeinternational.org which I did not know about.

                    • June 11, 2017 at 11:56 am
                    magnus31
                    Participant

                      Thank you TP! Will get in touch with your contact in Poland for more info. Best.

                      • May 14, 2017 at 4:40 pm
                      magnus31
                      Participant

                        Thanks Gary for replying to my post. It encourages me to read about other patients in similar situations. I am very happy to read about your partially responding to the meds. Truly hoping the meds will control the disease for years to come. I particularly found you "a little denial is not a bad thing"-remark very useful as I think stage IV life quality is often deteriorated by endless worrying and "what if" thinking.

                         

                        All the best to you,

                        Magnus

                        • June 28, 2016 at 5:54 pm
                        magnus31
                        Participant

                          Thanks for your reply, Tom.

                          I traveled to Africa last summer, on Nivo, and was approved malaria pills as well. I'll chase my doc on whether the Nivo/yellow fever combo is advisable. May I ask why you would avoid East and Central Africa?

                          I hope you are responding well to Nivo, I've been on for 18 months and have continued response.

                          Best,

                          Magnus

                          • June 28, 2016 at 5:54 pm
                          magnus31
                          Participant

                            Thanks for your reply, Tom.

                            I traveled to Africa last summer, on Nivo, and was approved malaria pills as well. I'll chase my doc on whether the Nivo/yellow fever combo is advisable. May I ask why you would avoid East and Central Africa?

                            I hope you are responding well to Nivo, I've been on for 18 months and have continued response.

                            Best,

                            Magnus

                            • June 28, 2016 at 5:54 pm
                            magnus31
                            Participant

                              Thanks for your reply, Tom.

                              I traveled to Africa last summer, on Nivo, and was approved malaria pills as well. I'll chase my doc on whether the Nivo/yellow fever combo is advisable. May I ask why you would avoid East and Central Africa?

                              I hope you are responding well to Nivo, I've been on for 18 months and have continued response.

                              Best,

                              Magnus

                              • April 14, 2015 at 5:49 pm
                              magnus31
                              Participant

                                Hi Terrie,

                                thanks for sharing the good news. I am happy to hear your lesions are shrinking! I have my new 2 month check-up tomorrow and hoping for the best. And as far as vitiligo is concerned… Bring it on!

                                 

                                Best,

                                Magnus

                                • April 14, 2015 at 5:49 pm
                                magnus31
                                Participant

                                  Hi Terrie,

                                  thanks for sharing the good news. I am happy to hear your lesions are shrinking! I have my new 2 month check-up tomorrow and hoping for the best. And as far as vitiligo is concerned… Bring it on!

                                   

                                  Best,

                                  Magnus

                                  • April 14, 2015 at 5:49 pm
                                  magnus31
                                  Participant

                                    Hi Terrie,

                                    thanks for sharing the good news. I am happy to hear your lesions are shrinking! I have my new 2 month check-up tomorrow and hoping for the best. And as far as vitiligo is concerned… Bring it on!

                                     

                                    Best,

                                    Magnus

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